• If you did, how did you decide that it was the right time to use Hospice?

    Asked by FreeBird on Saturday, July 28, 2012

    If you did, how did you decide that it was the right time to use Hospice?

    7 Answers from the Community

    7 answers
    • Mollie's Avatar

      Im so glad you brought this to the table. First, I'm in California and don't know if hospices in different states have different laws. We currently have Transitional hospice for my grandma. Basically that means we have access to a nurse M-F 8-5. You can have transitional while still in treatment. Now full hospice is different. You can no longer be in active treatment to have full. The only "requirement" we have to meet with full is that an rn comes to the house once a week to check vitals, overall health, etc. oh and the intake dept at full will coordinate getting the hospice order from the oncologist, they do most everything for you. With full you have 24 hour access to a nurse 7 days a week. My grandma has decided not to do a fourth chemo. She's so weak from it. Very soon we will be contacting the intake dept to go full. She needs a hospital bed with a pressure point relief mattress for her bed sores from sitting all the time. Let me know if you want to know how this all goes. :))). Hope this has helped.

      about 8 years ago
    • carm's Avatar

      Let me see if I can answer this question. I am a nurse that specializes in oncology and end of life issues. There are two arms to end of life care, palliative and hospice care. Both of these disciplines clearly state that their objective is NOT to cure you, but to give you comfort. The only difference is that palliative will try to extend your life, they will offer chemo, radiation, and surgery if the goal is to make you more comfortable and to buy you more time, whereas hospice will just make you comfortable without interfering in the process. In everyone's life there comes a time when that will to live becomes a will to leave, when the quality of life is no longer one that you can accept. At that time you will make the decision to go to hospice. If you still have the will to live then you owe it to yourself to find a physician who will treat you when your own oncologist says no more. Hospice is revokable, so even if you join, you can terminate their care at any time. You have to take stock of the situation and decide what it is you want to do. You cannot let fear of the unknown guide you, because you simply do not know. Your definition of the end is seldom what you experience. In the end, no one fears it, and when that time comes, you will come to understand that. I wish you the best of luck in your decision. The main thing to remember is that there can be no wrong answer as long as you are the one who chooses. Never yield to anything or anyone. We all were born with free will. We potty trained when we were ready, took the training wheels off our bikes when we were ready, and we die when we are ready, and not one moment before.

      about 8 years ago
    • GregP_WN's Avatar

      We went through this with both Mom and Dad. It's a terribly hard thing to do. Deciding was easy for us, the Dr's in both cases simply told us there wasn't anything that could be done, and each had a small amount of time left. So we accepted it and started the process. I absolutely couldn't be a Hospice nurse, but god bless them for what they do. They made the end process much easier than it would have been without them. Best of luck to you, I hope it's a peaceful process for you and your family, it was for us.

      about 8 years ago
    • Carol-Charlie's Avatar

      Listen to the doctors.. Listen to the patient.... Trust God to show you time when it comes. God bless you!

      about 8 years ago
    • FreeBird's Avatar

      Thanks for the input. I didn't realize that Hospice was revokable. I thought once you signed that paper, that was it as far as receiving treatment. So that's good to know.

      about 8 years ago
    • JannD's Avatar
      JannD (Best Answer!)

      I, too am an RN. I have worked with Hospice teams who helped my dialysis patients, ICU, and long term care folks. I also had them for my brother. Most issues were covered, but i wanted to say that most people do not call them soon enough. Sometimes they have only a few days on a case. Truly, it is best when they have time to establish a relationship with the family. Plus, many times, they help a family member more than the patient. They are great at helping, too with paper shuffle, meds, and ordering special equipment you might not have even thought of. They can get cool things like mattresses made of sand. So comfortable. Anyway, they need time to do a good job, and they will! You know in England they are on a case for as long as two years. Very smart. Like our VA here. They just started a program where palliative care follows you from diagnosis and it just switches to Hospice if you want, later on. Then the team already knows the family. Good idea.

      about 8 years ago
    • carm's Avatar

      When your will to live becomes a will to leave. As an oncology/ end of life nurse I can tell you that no one in end of life care wants a patient who still has a foot in the ring. If you are ready to move on you will follow that path. If not, plot a new course.

      about 8 years ago

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