• If you have or had a trach how are you handling it?

    Asked by edwards on Tuesday, September 4, 2012

    If you have or had a trach how are you handling it?

    2 Answers from the Community

    • shawn's Avatar

      Day by day. I had my larynx removed in March of this year. I will be a "neckbreather" the rest of my life. I've gotten used to it enough that most of the time I don't think about it unless I "cough" or sneeze.
      The two most distressing times for me were/are showering and sleeping. I have a "flap" of extra skin that can block my stoma. My head has to maintain a certain angle to keep airway clear. Showering was a major challenge, I was told I could drown if water got into stoma. Fortunately, we have a shower head on a hose so I can control the spray very effectively.

      over 8 years ago
    • jimfrommin's Avatar

      My wife was diagnosed with cancer on her larynx on her birthday in 2010.
      She got a track and feeding tube before her radiation and Chemo started.
      Like you, I was, and am her primary caregiver. (her cancer recurred after 6 months)
      Her first trach tube, a nurse in ICU thew away the inner canum, and we were sent home without one.
      Since we knew "Nothing" , this caused a lot of problems and anxiety for both of us.
      The tube itself is an irritant in the airway. Mucus is you body's way to heal this, so it is normal to have a lot.
      My wife's tube, without the inner canum was trying to plug constantly. I had to use the suction machine regularly, and that scared me to death. Finally I couldn't even get the suction tube through, and she had to get the tube changed.
      After that, I cleaned the inner canum daily, with the brush from the trach kit, a drop of mild soap, and hot water. I then sterilized it with peroxide and rinsed it before replacing it in her neck. I don't think I ever had to use suction again.
      I know this is tough on your husband, but I also know how hard it is for you.
      I will add you to my prayer list. I wish you both the best.

      over 8 years ago

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