• IIf my tumor is on the middle of my brain stem, how operable is the tumor? I have not gotten clear answers from my doctors yet.

    Asked by MarktheMan on Tuesday, February 19, 2013

    IIf my tumor is on the middle of my brain stem, how operable is the tumor? I have not gotten clear answers from my doctors yet.

    2 Answers from the Community

    • carm's Avatar

      MarktheMan, A lot depends on where in the brain stem the tumor is. Upper Brain Stem is the midbrain or tectum, Middle Brain Stem is the pons, and Lower Brain Stem is the cervico-medullary. If it is indeed in the Middle Brain Stem then that is at the location of the pons and most of those cannot be surgically removed. I had heard that John Hopkins was doing the surgery and I cannot say how well they were doing. A lot also depends on not only the location but also the grade, and if it is circumscribed (contained) or exophytic (on the outside of the brain stem). These are questions only your oncologist can know based on the MRI because these types are seldom ever biopsied due to their location. I can understand how this is concerning to you, and options may seem limited however this is the one area in oncology where there has been gallant efforts made in research and treatment. A perfect example of this is The Burzynski Clinic in Houston who does phase II trials and has been very, very successful with the use of his antineoplastic drug. Many University Hospitals do quite a lot of research on tumors of the brain as well so I think first you must find out from your oncologist what the MRI defined it as, and then make decisions together as to how to proceed. I wish you the best of luck, Carm RN.

      over 3 years ago
    • DayByDay's Avatar

      I was recently diagnosed with a Tectal plate Glioma. I have seen 3 Neurosurgeons. The main thing i got from all 3. Is that in this region they do not like to do biopsy due to risks involved. Surgery is an option if my tumor becomes bigger, or my vision and balance issues reach a level that is worse, than possible permanent side effects from surgery. My type of tumor is extremely rare. Not alot of information on it. I understand how you feel. Not being able to do anything, except take one day at a time hoping there is a long term solution, so you can have your normal life back. Although, once this happens, i think your life takes on a new normal. I hope this helps some..

      over 3 years ago

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