• Immunotherapy

    Asked by Carlina on Tuesday, August 21, 2018

    Immunotherapy

    Has anyone had treatment with Opdivo? What was your experience?

    10 Answers from the Community

    10 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      Hi Carlina,

      I have been receiving Opdivo for 5 years for lung cancer. My experience has been quite good. I experience a bit of fatigue on the day of and day after treatment and my thyroid quit working properly so I have to take a pill every day. Otherwise, I have pretty much continued to live my life.

      Others here have gotten to NED status with Opdivo. I haven't been as fortunate, but my tumors have been stable (except 1 that started growing last year and was radiated).

      Good luck!

      about 1 month ago
    • SandiA's Avatar
      SandiA

      Hi! I did opdivo off and on for about a year and a half. It went fairly well. My first problem was colitis but that was most likely from the yervoy so when I went to opdivo alone the colitis did not return. For the first part of the treatment I had mostly fatigue, fevers and some chills. The fevers and chills were mostly in the evening and not too bad. I was able to work during this time. About 3/4 into treatment I had some pretty bad joint pain and was eventually diagnosed with RA. It got pretty bad and I had to stop treatment but at that point I was NED so they felt the best thing to do was to stop. That was 2 years ago and currently still NED. I wish you all the best. Any questions feel free to ask. I would be happy to help.

      about 1 month ago
    • WoodsRLovely's Avatar
      WoodsRLovely

      I took Opdivo for about three months for Hodgkin's Lymphoma and it destroyed the tumors that my first-line chemo couldn't even penetrate - and put me in remission. For that, I am a big fan. I didn't have any noticeable side-effects but a few weeks later, another blood test showed I had some issues with my thyroid - which is a side effect of Opdivo. It's not serious...but now I have to take Synthroid every morning to keep it level...

      about 1 month ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      @WoodsRLovely - I'm always happy to see a post from you. How are you doing?

      about 1 month ago
    • Carlina's Avatar
      Carlina

      Thank you for your replies. I have been struggling with anxiety, worried about side effects and so many unknowns, emotional. I guess I have to tell myself to trust God more. Tomorrow has its own troubles, today is all we have.

      about 1 month ago
    • Carlina's Avatar
      Carlina

      About 20 years ago, my mom had diabetes, and had to face getting her legs amputated. It was that or die. She didn't have any other way. It was so hard to see her struggle to get from her bed to her wheel chair, deal with stump pain, but she always kept a good attitude. She passed away after 5 years of living without her legs. She was such a trouper! I hope I can face this cancer battle with the same determination she had. Through thick and thin!

      about 1 month ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      You can and will, @Carlina!! Especially after having such a great example. Thanks for sharing her story with us. I can't fathom having to lose my locomotion!!

      about 1 month ago
    • SandiA's Avatar
      SandiA

      @Carlina I am sure you will draw strength from your mothers example. I watched my mother and my niece battle cancer with tremendous courage and some days when I thought I couldn’t do it anymore I thought about them and it gave me the courage to go on. I am wishing you all the best and please reach out to us anytime. My biggest suggestion is to keep a list of side effects and keep your doctor up to date. I know my doctor was able to help me through a lot of the side effects by staying on top of it. Let us know how it goes!

      about 1 month ago
    • topsrvce4u's Avatar
      topsrvce4u

      I've been on opdivo for 8 or 9 months, and so far it's just keeping my cancer from spreading. But no side effects which is good.

      about 1 month ago
    • Carlina's Avatar
      Carlina

      Today went a lot better. Your support really helps! I also contacted my primary care doctor, who has been my doctor for 17 years. She recommended a counselor in family practice who is able to be a health coach. Awesome!

      about 1 month ago

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