Oh man - I am so sorry for his diagnosis - what a difficult time for you both. I know absolutely nothing except for what a quick pub med search produces... which, as you say, is very little.
Good luck tomorrow....
Incredibly rare heart cancer....
My husband has been newly diagnosed with synovial sarcoma (a sarcoma typically found in joints) in his heart. He had to undergo emergency open heart surgery to remove an orange size tumor from his heart, but unfortunately they were not able to get it all as it goes through the wall of his heart. We have our first oncologist visit tomorrow to find out any and all information we can regarding the plan of attack. But we are not finding any information on it as it is incredibly rare....has anyone else out there heard of or experienced this?
So sorry that you have to deal with this...
I did a quick search and found this. But it is old.
Primary Cardiac Synovial Sarcoma: A Case Report and Brief Review of the Literature
Brian Boulmay,1* Gary Cooper,2 John D. Reith,3 and Robert Marsh1
Sarcoma. 2007; 2007: 94797. Published online 2007 July 5. doi: 10.1155/2007/94797 PMCID: PMC1931497
You may want to try clinical trial site, www.ct.gov
let me know if you need more information.
So not the best news in the world. My husband is maybe looking at a heart transplant, if it can get approved. Synovial sarcoma is a cancer that spreads so it might not be approved. If its not, then maybe some cutting out and rebuilding of his heart if its not too evasive. If neither of those are options, then he is looking at staying on chemo for who knows how long, just to keep it from growing.