• Infusaport

    Asked by 66Susie on Tuesday, July 8, 2014

    Infusaport

    I have consult with surgeon for port placement with surgery scheduled the following day.... How much pain will I be in from your own experiences? What were your limitations, if any? Of course, the surgeon will give me instructions. etc. Just wanted a heads-up on what to expect. This is getting all too friggen real now.....Done working for now!!

    15 Answers from the Community

    15 answers
    • Ejourneys' Avatar
      Ejourneys

      My port is high up on my chest (right-hand side), with a line going up into my jugular. I was sore for several days afterwards, but I did not need analgesics. Chewing was dicey for the first day or two because it involved my neck muscles around the line. I also supported my head with one hand while lying down and getting back up, to let my neck muscles relax as much as possible. That said, it was all very manageable.

      When driving I use a breast pillow (also good for protecting ports) to avoid friction from my seatbelt. I use this one, which I love:
      http://www.hellocourage.com/products/breast-surgery-pillow-for-the-car

      I asked for numbing spray for my first couple of infusions, so that I had no discomfort when the port was accessed so soon (two days) after surgery. After infusion, they tape gauze where the port had been accessed. For my second infusion (having learned from the first), I asked that they try to avoid placing the tape on top of my surgical skin, because the tape grabs onto the skin. Separating them had been a bit of a challenge. :-)

      about 5 years ago
    • schweetieangel's Avatar
      schweetieangel

      My Port is on the left side higher up ...and personally was a little sore to the touch when it was first put in and getting used to sleeping on that side. But i have experienced no pain in the process or itch like i have read some have.
      Good luck and stay positive :-)

      about 5 years ago
    • leepenn's Avatar
      leepenn

      yeah - i would say that port installation was the "moment" at which it all became way way to friggn real....

      as for what to expect - i wrote a blog piece on getting the port. here's the link - i hope it will be useful for you to read....

      http://rleepenn.wordpress.com/2011/08/10/port-placement/

      it was a bit annoying to deal with a few things - the car seat belt and my messenger bag were two big ones. but really - i had no issues with it. i did not like the sensation of pulling in my neck - had that even after port removal... but it was a mild thing, really. i didn't buy anything special - just carried my messenger bag on the other side and adjusted the seat belt a bit. all fine.

      i was up and at them the next day - no serious limitations.

      they put a simple bandaid over my port after accessing for chemo... i like the paper bandaids because my skin is pretty sensitive to adhesive. speaking of which - if you have sensitive skin, request glue instead of tape.... that was GREAT for me....

      i hope it goes smoothly..... good luck!

      about 5 years ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Hi, have had my power port on upper right chest for ten months.First few day had very bad neck pain and took Tylenol with Codeine to control that.No problems since except sometimes it does itch.Most of time forget I have it.

      about 5 years ago
    • GregP_WN's Avatar
      GregP_WN

      I had two ports, the first one for a couple months then something went wrong with it, and It had to come out and be replaced. The second one went in the other side, and I kept it for about 15 years. As for pain, it's not a big procedure, there wasn't too much pain and I didn't lose any work. Most of the time it's a rather simple procedure, and yes, it's go time.

      about 5 years ago
    • cam32505's Avatar
      cam32505

      I was sore, but my only limitation was that I couldn't sleep on my side (because it pulled on the port). It makes getting blood draws, chemo, scans so much easier because there is one poke for everything.

      about 5 years ago
    • kiki95632's Avatar
      kiki95632

      I have a power port in chest and goes up to juggler vein. The procedure was mildly uncomfortable just because you are awake and can not feel pain but can feel them tugging to get in place. I winced once and they added more pain meds and a sedative because I was nervous. Afterwards I was sore for a few days, but I had it put in on a Friday and had chemo the following Monday. I did not want a port and fought getting ones for years, but it is easier than having the nurses dig forever in my arms to try to find a vein. My veins are bad for all the years of chemo. I have had my port now for four months and only once in a while it will ache if I do something like stretch to reach something in an awkward position. Have them use lots of freezing spray to the point that it almost hurts when they access it and it is so easy to get chemo. Good luck.

      about 5 years ago
    • Tana928's Avatar
      Tana928

      I've had my Powerport for over 2 years now. Very little discomfort on the day it was inserted. After that nearly pain free. I have not had any issues since and chemo was a breeze with no pain when they accessed it. Used numbing cream first time, but that was more of a hassle than the tiny little pin XXX from the needle.

      Good luck as you start your fight.

      about 5 years ago
    • myronbob's Avatar
      myronbob

      everyone is different of course but I was very slightly sore for about a day but for chemo and my recent surgery is was a godsend . good luck . bob

      about 5 years ago
    • Schlegel's Avatar
      Schlegel

      Nine years ago but I don't remember having any pain.

      about 5 years ago
    • ariez's Avatar
      ariez

      I have a Powerport which was put in over a year ago on the top right hand side and have had very minor problems with it. The first couple of nights it was uncomfortable sleeping but after that it's fine. I also have the seatbelt problem of not wanting it or anything else to rub against it but clothing is fine. Once in a while I would get a feeling that something is there, but that's about all. No pain putting it in or afterwards. It's the best thing to have. Good Luck!

      about 5 years ago
    • 66Susie's Avatar
      66Susie

      Thanks everyone for responding. Tomorrow is THE day......

      about 5 years ago
    • Schlegel's Avatar
      Schlegel

      Let us know how it goes.

      about 5 years ago
    • Jalemans' Avatar
      Jalemans

      I was not prepared for how painful my port was for the first 2 weeks. Most people have discomfort for the first couple days, but mine lasted about 2 weeks. The whole right side of my chest was swollen & black and blue. It was also hot & so I thought infected. Ended up in ER (weekend) & doctor also thought infected, but they called in a fellow from the U. She took pics & sent to my oncologist. Turns out there was no problem. It has now been about 4 weeks & things have cleared up.

      it is like anything else I guess, individual experience has a spectrum. Most people have a few days discomfort. Some people have a bit more difficulty (like me). On occasion there could be issues beyond that. Good luck! I am sure it will be OK.

      about 5 years ago
    • ITLBOK's Avatar
      ITLBOK

      I've had two ports, it's no big deal. Done on out patient. Woke up in no pain either time. Don't be scared. You'll forget about it. I did think about it when I drove , because of the seat belt. Any good full service car wash will carry a seat belt protected usually made of sheep skin or something soft. Otherwise, the thought is the scariest thing about it.

      about 5 years ago

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