• Interesting Article On Genetic Testing

    Asked by barryboomer on Wednesday, March 11, 2015

    Interesting Article On Genetic Testing

    http://www.oncotherapynetwork.com/cancer-and-genetics/genetic-tests-overemphasize-benefits-de-emphasize-drawbacks

    SO much Commerce and such a big business cancer is.

    13 Answers from the Community

    13 answers
    • CAS1's Avatar
      CAS1

      Barry when you make these kinds of comments you discredit and demean the hard work of thousands and thousands of people who have saved the lives of millions of people because of their knowledge, money and efforts.

      The number one reason we cannot fulfill clinical trials is because people are frightened of them. This puts their life at risk and holds up progress.

      Just a few months ago it was learned that etoposide does not work on my mutation. I was given etop because we didn't know any better. Had we known this I may not have lost 30% of my lung. This is all in just 3 years.

      Please tell me Barry what you know first hand..first hand that tells you mutation testing is useless. Because there are 100's of respected researchers who say we are on the cusp of curing cancer BECAUSE of mutation testing. These are Dr's who have saved the lives of thousands of people. I respect them and what they say.

      over 4 years ago
    • barryboomer's Avatar
      barryboomer

      I didn't say they were useless just that the article says that sometimes these companies don't always tell the truth and put a positive spin on what they can do. I'm for HONEST studies and when So much in ALL Industries especially in the Medical is based on the next quarter profits the truth isn't always known. Every year Drug Companies pay HUGH fines for misrepresenting their studies and that's a fact. IF they are more worried about the next quarter profits HOW can we be sure all their stats are correct. WE deserve the true facts. WHERE you think I'm demeaning the hard work of the Scientists I don't see. The Scientists work for these Wall Street Companies and do the work NOT THE Business. If you don't see that a lot of info we get is skewed than I don't believe you being honest with yourself. I think clinical Trials are wonderful but it can be scary because they don't know all the side effects and we are sort of a guinea pig....but many are great and help people. SO I think you read my motives wrong. I NEVER used the word Useless ....what's up with what you said...I think they can be great and I wish there would be more of them and btw the new ideas are ALL about trying to stimulate the immune system and going away from just the killing and I think that's great. SO....read what I say first before condemning me for saying something I didn't say...ugh

      over 4 years ago
    • CAS1's Avatar
      CAS1

      Dear Barry
      Thank you for your explanation..However one of the great things about mutation testing is: The clinical trials will be smaller AND the results more accurate because with targeted therapy they will know right away if its working not the current needle in a haystack.

      Drug companies are not bad. And we have the best drug discovery system in the WORLD thats why people come from all over just for the treatments we have here..Available to us.
      And in no other country are you given advanced medical care even if you cannot pay and are not a citizen of the country they are not turned away.

      We have to many people dying who could be helped with clinical trials but someone they know told them: Oh no,,,don't do that..Drug companies are bad.They make money..they are bad.

      I thank the Lord Almighty every day for the good old US of A and all of our warts and scars and bumps etc. Including Drug companies.

      over 4 years ago
    • barryboomer's Avatar
      barryboomer

      We will have to agree to disagree on some points you made.
      I wish more clinical trials were allowed before chemo as MOST aren't.
      By then a lot of people have NO Immune system left and a lot if not most are
      tweaking the immune system. As for Drugs? I believe that MOST drugs just treat the symptoms and it's up to US to fix problems. Not sure you are correct that people are not getting clinical trials because somebody is telling them not to because drug companies are bad....that makes no sense. Whatever works is good as far as I'm concerned. WHY more people don't even know about them MAY be because their Oncologist doesn't tell them about it. MOST are not like people on this site who are questioning and knowledgeable. I have a few friends with cancer and they don't know anything but what their Docs tell them. They don't research or read or talk to others. Many never heard of a clinical trial. Many oncologists don't want to lose the business until there is diminishing returns when MAYBE if the something else was tried before that point it would work better. The System of WHO and WHEN people can get into these trials needs some tweaking so More are offered and more KNOW about them.

      over 4 years ago
    • CAS1's Avatar
      CAS1

      The largest group of people who refuse chemo, clinical trials or do not complete treatments are 55 and older. They hold the largest amount of inaccurate information on the components of chemotherapy..

      over 4 years ago
    • barryboomer's Avatar
      barryboomer

      I'm not talking about chemo.....that's standard therapy. HOW and when does an Oncologist Recommend one of these trials and do YOU think it is done often enough. IF NOT why NOT....just looking for answers as to why this is.....Chemo is done on 95% of patients when the cancer has spread.....but the clinical trials aren't done like that are they?

      over 4 years ago
    • CAS1's Avatar
      CAS1

      There are a number of factors..Many are simply human. Some people when told they have cancer say..Give me everything you've got..Some say: I don't think I can do this.
      Many times Onc's are trying to read minds and offer what they think the patients can handle.
      But it's all far from perfect.
      And Onc's know this. They are not up to date all the time on every clinical trial for every cancer.
      There is a great deal left up to the patient. I have been asked to speak to three different newly dx people to help guide them on treatments..they never called me...I offered my time and attention but they didn't want it.
      So this is how it goes sometimes. A great deal more needs to be available to help people and everyone knows it but it takes time and money.

      over 4 years ago
    • barryboomer's Avatar
      barryboomer

      Thanks!! SAD....

      over 4 years ago
    • CAS1's Avatar
      CAS1

      Well there is the new AACR magazine that is chock full of GREAT new support information. There is the new clinical trial website..easier from NCI to seek out trials.There is the upcomming documentry put together to open up the dialogue about cancer.

      Barry we all need to do more..We need to hOUND our politicians for money and resources..I am telling you as the day is long The only reason we don't have the cure today is because of funds. For what we spent on just two bombs in Iraq we could have the cure for lung cancer.

      The reserchers know where they are going with immunotherapy..just need he money to get there.

      over 4 years ago
    • barryboomer's Avatar
      barryboomer

      Don't count on the Money going to the right place. I'm afraid most of the research money is going to the same old same...I continue to ask WHERE ARE THE NEW IDEAS? Where are the creative people. Maybe The Google Guys should be tasked with finding a cure....they are free thinkers and have a lot of money and creative talent. Maybe a new approach will come form outside the medical community....Just thinking. It's like the definition of insanity...DOING THE SAME THING OVER AND OVER AND EXPECTING A DIFFERENT OUTCOME. Something just isn't right and I'm not smart enough to figure out exactly WHAT....but we don't have to be Weathermen to know which way the wind is blowing.

      over 4 years ago
    • BigE54's Avatar
      BigE54

      Barry. as usual I question the very basis of some of your statements. First, you easily throw around words like "most" or "many". Where are the exact numbers Barry? Where are your sources for those statements? As for money going to the "same old, same old", maybe the same old, same old is working. The CDC released research this week that shows that as of right now, the 5 year survival rate for ANY type of cancer is over 60%! Does that sound like what they are doing is NOT working?? Sure, we are all impatient for a cure, but things are getting better every day. One thing I agree with you is that immunotherapy seems to be the way to go, and if you don't believe that there are thousands of individuals and institutions who are currently working on that end, then you really don't have a clue. Right now, immunotherapy is a big part of that "same old, same old" that you so easily put down. We don't need new approaches, we don't need new ideas, what we need, as CAS1 says, is money thrown at the current ideas that are working. You are so caught up in your "Doctor, bad, drug company bad" mindthink, that you can't see the roses for the thorns.

      over 4 years ago
    • BigE54's Avatar
      BigE54

      and by the way, that article does not disparage all genetic testing. What is says is there are some, ok, a lot, of websites out there that are offering questionable tests. They don't say that genetic testing and targeted therapy doesn't have a place, just those websites are problematic.

      over 4 years ago
    • barryboomer's Avatar
      barryboomer

      There you go again.....LOL
      I NEVER said that genetic testing was bad....I said that accurate information is needed and not puffed up ones....That's what I meant.

      Also....WHY do you think MORE Money isn't used for the newer therapies?
      I think genetic testing is a great idea as is a lot of the direction the newer therapies are going.
      I think Doctors mostly are great and do a very tough job in lousy system. I think sometimes too many ads on TV for drugs drive people to demand those drugs....that's terrible. ALSO Docs see people after they are sick and I BELIEVE most people treat their bodies shabbily. SO everything you sand I SAID is NOT what I said...what else is new....LOL
      I Love ya anyway....enjoy the back and forth and only wish you the best Eliot.

      over 4 years ago

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