• Internal Radiation

    Asked by rosey on Saturday, January 26, 2013

    Internal Radiation

    Today I completed 5 weeks of external radiation and will soon begin 3 rounds of internal high dose radiation. If you've had this procedure, would you mind sharing the details of your experience? Thank you :)

    7 Answers from the Community

    7 answers
    • Karenhopeful's Avatar

      I think I had two internal radiations in 2007 after 25 external and a full hysterectomy. I sang to myself the longest songs I knew to keep my mind off of things. I didn't notice any great pains before or after. In fact, we left on vacation the next day. I also had uterine cancer, only a 95% chance of it coming back. However it did in 2011 and I am now terminal with so many spots: lungs, brain, omentum, liver. Be sure they check your lungs on your six month ct scans. They never checked mine and I had a three inch tumor at the top of each lung!! inoperable, and chemo failed.

      over 3 years ago
    • Beaner54's Avatar

      Rosey, I had 2 internal radiation treatments in Feb.2012. I did not experience any pain but will admit that the procedure is "awkward" because of the area. It's been almost a year and I have had no problems.
      Best of luck to you. Feel free to ask any more questions you may have.

      over 3 years ago
    • Ivy's Avatar

      I had 3 internal radiations after surgery and during chemo treatments. I found it extremely distressful, although not particularly painful. I don't think awkward describes it. You will be truly exposed to everyone running around the radiation treatment area. You will be "immobilized," which really means that the internal cylinder will be attached to the table. I thought it was de-humanizing, and it was made worse by the lack of full information provided before the treatments started. I think the standard protocol for explaining the treatment glosses over way too much. I complained after the first treatment, and I got much better care for the next two treatments, including medication to deal with anxiety. The protocols must have been designed by uncaring people, and this is sexist, but if men had to have this treatment, I'll bet it would be handled better in advance.

      That said, the side effects weren't too bad, but of course, after each time they were a little worse. Since you've had 5 weeks of external radiation already, you sound like you'll be tough enough to handle it. You may have more frequent urination, abdominal discomfort, some pain with urination, some internal soreness. Some people may have more side effects, but I didn't. My radiation was interspersed with chemo, so as you can imagine, by the time of the third one, it took longer to recover.

      All of that said, you'll weather it. Good luck, and may all your treatments prevent any recurrence.

      over 3 years ago
    • SettledSue's Avatar

      Rosey, I didn't mind the internal radiation at all. I had no side effects. It was a little odd having so many people focused on that part of your body, but parts even seemed funny to me, like the guy who comes in at the end and waves the geiger counter around to make sure no radiation had escaped from the equipment.

      over 3 years ago
    • jmsterr's Avatar

      Rosey, I had the 5 weeks of external and 1 plus days of internal (40 hours in the hospital). I did get blisters (burns) on the buttox and some diahhrea for weeks after. Some mild urine leakage, use a pad now, but I am doing well after 5 years. The initial diagnosis was 17 years ago. It sounds like several treatments, instead of 1, may be easier on the body. Good luck and good health to you.

      over 3 years ago
    • Joachima's Avatar

      I had chemo, then 4 rounds of internal high dose radiation. I had no problems with the radiation - no side effects at all. It is an awkward treatment, but my radiation oncologist is a female and made me feel comfortable. I was glad that there was a "simulation" appointment in the beginning, so I was able to get a good sense of what would happen during the actual treatment. I was covered well and did not feel exposed - they made it as dignified as possible given the nature of the treatment. My opinion only - it seems a little barbaric and I can't help but wonder what folks in the next century will think about internal radiation, assuming that advances in medical science will occur.

      over 3 years ago
    • rosey's Avatar

      thank you to all who took a moment to answer my question, reading your replies truly helped =)

      over 3 years ago

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