• invasive ductal breast cancer

    Asked by Twinkletoes on Thursday, December 6, 2018

    invasive ductal breast cancer

    Who has gone through this with some advice for me?

    5 Answers from the Community

    5 answers
    • Carool's Avatar

      Hi! Glad you found us, sorry you needed to.

      Many of us here had or have breast cancer (it being such "popular" cancers). In case you don't know this, you can find other breast cancer survivors here by going to your home page and then to "Diagnoses."

      I had triple-positive, stage 1 breast cancer, 19 years ago. "Triple-positive" means positive for estrogen, progesterone, and HER2. I looked at your profile and saw that you are positive for ER and PR but not HER2 (HER2 means the cancer is more aggressive, but one can then take Herceptin).

      Since my diagnosis 19 years ago, the Oncogene test is available (and probably there've been other medical advances made, too). That test can let your oncologist and you know if chemo would benefit you.

      I had a lumpectomy, some chemo (4 infusions, each 3 weeks apart, of Adriamycin and Cytoxan, combined), then 33 radiation treatments (every weekday). After that I took Tamoxifen for 4.5 years and then Femara for the next 5.5 years. Those are given to block estrogen when the tumor was ER-positive. Femara is one of a few AIs (Aromatase Inhibitors, which also block estrogen). Again, protocols may have changed since my time.

      I lost all hair during chemo (beginning two weeks after first chemo). Felt queasy but still able to work and play, most of the time. It is doable - but I hope you won't need it! Radiation was very easy for me.

      Everyone's body is unique and reacts differently. Remember that you will get through this. Breast cancer survivors are legion (not lesion!). Okay, sorry for my stupid pun.

      If you want great info from a WhatNext breast cancer survivor, look up Ejourneys here.

      Please let us know what you want to know. I'm no medical professional, and I may be wrong about some of what I've said here.

      Hugs -

      5 months ago
    • lujos' Avatar

      Carool is quite right, new research shows that stage I and even II cancers may not necessarily benefit from chemo, so I’m sure they will talk to you about that!

      I was treated 4 years ago for stage IIb IDC, and things have changed a lot even in that short time. I had lumpectomy, chemo (ACT) and radiation, followed by a hormone blocker called letrozole.

      Best of luck, and we’re here for you!

      5 months ago
    • slaterdl's Avatar

      Today is last of 6 chemo treatments (big ones 4 drugs including tamoxifin, projeta,herceptin, carbo?) Masectomy left breast next month, 6 months of antibody chemo with herceptin and projeta. Stage 3a IDC diagnosed early June this year. My question is regarding the thirty radiation treatments 5 days week for 6 weeks which Drs are suggesting after surgery. Can they be delayed or are they really necessary as I am already so weak and tired I am worried about side effects and want to work some part time during March and April. Tax season and have some client friends been doing their taxes for sometime. Oh I will be 64 next month by the way. Any thoughts from anyone else been there too. Thank you.

      5 months ago
    • lujos' Avatar

      Slaterdl, I had radiation, too, but my oncologist gave me a few weeks to recover after chemo, as I think most people feel pretty weak.

      Additionally, I had what they call “hyperfractionated” radiation, where they give you a bit more each time, but with fewer sessions. For example, I had 15 sessions, with 3 boost sessions to the tumour bed. Same total amount of radiation, but I found it easier, as I had an hour journey to get to the hospital. Might be worth considering. I think they certainly worth doing, though, as they are designed to zap any last cancer cells hanging around.

      Best of luck - I think you’re through the worst of it, as I found chemo hard, radiation easy. I also have had a mastectomy, and it’s not as bad as I expected.

      5 months ago
    • banditwalker's Avatar

      I was diagnosed with IDC. I can only give you my experience. Even tho' we both were diagnosed with the same disease, we will have different treatments. Many, many factors go into treatment decisions.
      I was stage lll. I opted for a bilateral mastectomy. Had chemo, radiation, and am currently taking Arimidex to keep my estrogen levels down. That was all over 5 years ago and I may be a little slower now a days but I'm still here to tell you about it.
      I am also a big proponent of high rated cancer treatment centers. If you are lucky enough to have one close or you can travel, I would think about at least using it for second opinions.
      Good luck to you.

      5 months ago

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