• Is anyone out there that has had breast cancer and it was a triple negative and has had chemo? I'm really scared..

    Asked by Littlehouse on Friday, December 2, 2011

    Is anyone out there that has had breast cancer and it was a triple negative and has had chemo? I'm really scared..

    10 Answers from the Community

    10 answers
    • mspinkladybug's Avatar

      I am not a tnbc but I have friends who r send me a send me a personal email and I will pass it on to my friend she is a 3 year susrvior

      almost 5 years ago
    • CancerAdvocate's Avatar

      Call Y-Me at[phone number redacted] 24/7 365 trained breast survivors. Ask for a Match Call. They will hook you up with someone who has had TNBC and chemo. It helps to talk to someone who has "been there, done that."

      almost 5 years ago
    • leepenn's Avatar

      i have tnbc, and i am currently in chemo. i have just completed 12 cycles of taxol, with carboplatin every third cycle and a 2x daily pill (part of a clinical trial). ispy 2 is the name of the clinical trial.

      anyway... i'm happy to talk to you about it.... personal message me, and then we can exchange emails... i also invite you to have a look at my blog - it might help.


      i'll tell you that i was scared too. but, in the end, it was far more manageable than i expected. some cycles are harder than others... my hemoglobin is low... my infection fighters are missing in action... but it really is going pretty well. i'm managing to work and be a mom etc... sometimes i am TIRED tho!!!!!

      a few pieces of advice.
      one - MOVE - even if all you do is walk around the block once or twice, make sure you move. it makes EVERYTHING better. i ride my bike EVERY DAY - no matter what. and it really does make everything better.

      two - talk to your docs about supplements. mine are selenium, iron, GLUTAMINE (this one is important, in my opinion), vitamin b12, and vitamin d. glutamine was studied as a supplement to prevent mouthsores and neuropathy etc... i drink about 10 g in water 3x per day during days 1-4 after each cycle.
      google this: Reduction of Paclitaxel-induced Peripheral Neuropathy with Glutamine

      my doc said i should continue the glutamine regimen during the ac stage of my chemo, which is slated to start on tuesday.

      so, guess what? i'm all scared all over again. will i have severe side effects? will i be able to continue working? will i be able to ride my bike? will i have a reaction? ack????!!!!! in the end, from what i read, i should expect it to be quite similar to weeks on which i had both taxol and carboplatin.

      so, i keep telling myself that - it'll be similar... it'll be manageable... it'll just be an inconvenience... a bummer... but i can manage. so far, that's working for me....

      hugs - sorry you are dealing with this. it sucks... but cancer sucks worse.

      almost 5 years ago
    • Bluebird's Avatar

      I have just finished radiation after 6 courses of chemo every 3 weeks for tnbc. I have many other health issues that made chemo very hard for me so it was hard but let me tell you every doc and nurse or tech cares and helped me get thru it ! I was so scared because we had to hit this thing with everything we could so I had FEC . Anything more I could not do. In the middle of my treatment my daughter graduated from vet school in Scotland - I didn't think there was any way I could be there - my docs promised me they would get me there and I saw her graduate! My friends, family and faith helped but you need to take this one day at a time and know that the chemo is killing the XXX out of that cancer ! I have a website and you could start one too if it would help. It's CaringBridge/visit/chriscordelli.org. I'm pretty honest about my journey but I am now on the other side - I know you can do it too! There are lots of sites with info on nutrition and positive things you can do when having chemo - I spent hours on as many sites as I could. Good Luck with your journey - I wish you nothing but hopeful days

      almost 5 years ago
    • leepenn's Avatar

      hey there - checking back in with you... when is your first chemo? is it possible for you to get into a clinical trial (ispy2 is the trial i am in... and my results are looking good).... hope you are having a peaceful day.

      almost 5 years ago
    • leepenn's Avatar

      oh sweetie - i see it starts TODAY! ok - positive thoughts of easy and smooth chemo today for you.... good luck! i hope it's boring. honestly, when it's boring, i get in a fabulous nap because of some of the meds that go with the chemo.... so, that's what i'll hope for you. a fabulous and peaceful nap.

      almost 5 years ago
    • Lanage's Avatar

      Hi Littlehouse, I had triple negative breast cancer and had eight treatments of chemo -- four of Adriamycin and Cytoxan and four of Taxotere. I finished chemo last November and just celebrated the one-year anniversary of that. The first chemo treatment is typically the worst because after that, you know what to expect and have a better idea how your body will respond. Take it easy. Give yourself time, and pamper yourself every chance you get. I am here for you any time you need me.

      almost 5 years ago
    • Chrissy's Avatar

      How are you doing? I had stage 2b triple neg. breast cancer in 2009. I am now cancer free after chemo, lumpectomy, and radiation. Had to have a mast. in 2010, cancer came back and they didn't want to mess around. Have been cancer free for over a year and a half. Feeling better all the time, don't be scared, you can do this. Stay positive!

      over 4 years ago
    • AbbysMom's Avatar

      Hi! I had TNBC - diagnosed 1 year ago. I had 2 lumpectomies, chemo and radiation finishing in March, 2012. It was difficult to say the least, but I made it. Other than neuropathy, I'm feeling pretty good. My hair has grown back and I feel more "normal" - is there such a thing? There are alot more of us TNs out there than you think - I've been very surprised how many. Keep in touch.

      over 4 years ago
    • survivor1's Avatar

      I know that you posted this 7 months ago, which is about the same time I was dx with tnbc. Not sure what stage, won't know for sure till after surgery. Went through 16 weeks of chemo, now waiting for surgery, double masectomy with reconstruction, and followed by radiation. First, we have to take care of my ovaries, which were noticed to have cysts on them. Don't think they are cancer, but want to make sure. I'm having that surgery on tue the 26th.
      I was scared, and have had moments along the way. Just keep thinking that this is just a bump in the road and you can't let it control your life. I've continued with my normal "mom" duties, continued with my full time job, only missing a couple extra days on chemo weeks, leader of 4h group, taking care of animals on our small farm, carry on with life. It's not going to stop for me, so why should I stop for it? Sure I get tired, and I have stepped it back a few notches as I still get tired easy, but I have to keep going.
      I hope things have gotten bearable for you. Take it one day at a time and just keep lovin yourself. I'm glad to know that there are more of "our kind" out there. Take care and please keep in touch.

      over 4 years ago

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