• Is stoma necessary?

    Asked by Davina8960 on Wednesday, July 6, 2016

    Is stoma necessary?

    I am newly diagnosed and have had chemo and radiation treatment for rectal cancer. On to the second part of the journey. Surgery is scheduled for my birthday. While I am looking forward to it, am a little apprehensive about the stoma. Is it necessary? Anyone have one? How did the reversal go?

    15 Answers from the Community

    15 answers
    • geekling's Avatar
      geekling

      http://www.coloplast.co.uk/stoma/people-with-a-stoma/after-stoma-surgery/

      I was treated 14+ years ago.

      They gave me the surgery first. Until the surgery and subsequent biopsy (for which I had to specifically ask) I had been repeatedly told the tumor was a wart or hemmorrhoid by a lot of docs including the surgeon.

      How much radiation did you have? Ask about a dilator, if you need it and make friends with Kegel exercises. I eventually used a product called Femtones which were weights to wake up those muscles.

      Is this procedure reversable? Surgeons sure know how to muck up a good celebration.

      Happy birthday and many more wished to you which are a heck of a lot better than a hospital stay.

      over 2 years ago
    • Davina8960's Avatar
      Davina8960

      Thank you for your response. I did six weeks of chemo and radiation combo.What is a dilator? Yes, the surgeon told me about Kegel exercises today. She said it is temporary but there is the possibility it can be permanent. It is further complicated because I have a lung disease called Sarcoidosis.

      Chemo and radiation were a walk in the park. Last year I was on life support and in a coma because of Sepsis. This past March I had ACDF - disc removed in my neck, a new one put in and secured by a plate and screws.

      over 2 years ago
    • seattlesister's Avatar
      seattlesister

      Hi Davina,
      I don't have any input for your question but I wanted to say I hope the surgery goes well. Also, my coworker/friend is a Davina. Unique name!
      Best,
      Alia

      over 2 years ago
    • geekling's Avatar
      geekling

      You're welcome.

      Omgosh .. you're a neck cyborg .. hugz .. do you have good range of motion?

      A dilator is like a medical XXX to stretch the tissues that the radiation shrunk.

      How in the world did you get to suffer sepsis? Serious stuff.

      Im sorry it has been so rough for you. I hope it starts to get easier from now forward

      Best wishes.

      over 2 years ago
    • Skyemberr's Avatar
      Skyemberr

      I had a colostomy which was pretty easy to manage for six months and I just transitioned to a ileostomy in June when they took out my rectal tumor and reconnected my colon. I HAD to have the colostomy because the tumor was causing impaction that had me in emergency surgery. I was very scared and didn't want any ostomy.

      However, once they did it I was able to actually go to the bathroom and ignore the tumor while I did radiation and chemo. No more agony from that tumor from pressure against it!

      Now I have the ileostomy and its a pain because it's so active, but I have to have that stoma for six months to let my colon rest and actually heal back together. We only had 1cm to reconnect with so we're not rushing the end of the ileostomy.

      As for the colostomy reversal, I think that went well. I was in pain from a bunch of other surgical stuff at the time, but the surgeon was able to reverse it and use the same hole in my tummy for the ileostomy. We're going in steps, and not all of them are pleasant, but they are doable.

      I hope your prognosis is great and that you get full function back at the end. In the meantime I hope you make friends of a sort with your stoma and don't have too much inconvenience.

      I recommend Hollister bags, (though everyone likes their own particular thing) and always use an eakin wax seal inside, rough side up, because it adheres better. I put a hearing pad on the dressing on a low setting for about ten minutes after I apply it to get the wax and stuff to adhere well.

      Good luck to you!

      over 2 years ago
    • geekling's Avatar
      geekling

      dilator is a medical dill doh. Did not realize the censor woyld be upset.

      They are size graded to gently stretch out tissue which treatment has constricted.

      over 2 years ago
    • Davina8960's Avatar
      Davina8960

      Thank you all for your responses. So glad I found this site. Kaiser recommended it. My mother is in the medical field but when it comes to me that all goes out the window and she is my mother. No mother wants their child to make this journey.

      They say the Sepsis was from a UTI. Funny because I had no symptoms as I take fluid pills to keep fluid off my lungs and my bladder is small so I have always had frequent trips to the restroom. Yes, it was pretty serious - life support and medically induced coma for a week.

      I have truly been on the battlefield but get through it with comedy. Was apprehensive regarding the stoma but you have all put my fears at ease. Truly appreciate ya'll (yep kind of southern) calming my fears.

      over 2 years ago
    • joyce1979's Avatar
      joyce1979

      I had the ileostomy and reversal and all went well. The stoma (ileostomy) is necessary as it gives the rectal area where the tumor was time to heal after surgery. It is a nuisance but eventually it will have been worth it.

      over 2 years ago
    • cindywho's Avatar
      cindywho (Best Answer!)

      Hi Davina8960 I went thru the same ordeal that you are going thru. I had radiation chemo wore a fanny pack on my side. First surgery was in 2009 yes I had a ileostomy and a stoma which I thought oh boy but I did it. 6 months I had the ileostomy on my right side even went to work told my coworkers about it very supportive wanted to help me all the time I told them that I needed to do this on my own. Before my reversal I had more chemo which I am glad that I did. In 2010 had my reversal and everything went AWESOME!!! Going on 7 years cancer free and doing GREAT!!! Good luck!! Cindy Burnett Sherburn Minnesota

      over 2 years ago
    • Davina8960's Avatar
      Davina8960

      cindywho, THANK YOU SO MUCH for sharing your experience. I have been working from home since mid-March. Because of Sarcoidosis, I have been on prednisone every day for the past 10 years and will be on it the rest of my life. As you know chemo and radiation further compromises my immune system so the doctor advised it best I work from home until this is all over. Especially since I was sepsis last year - they don't want to take any chances.

      My first round of chemo was via pill form but they tell me the second round the side effects won't be as bad. We felt the pill form was better for the first part of treatment because it was not going through my entire body just my digestive system. Good thing I did because by the third week the potty and I were very intimate with each other LOL. Spent most of my time there 15 - 25 times a day.

      At radiation therapy, they called me Sunshine because I was always smiling and brightened up the waiting area when I walked in. Met some really nice people there and it was more like family than anything else.

      I will continue to walk in my faith knowing everything will be ok.

      Again, thank you so much for responding. All of you have put me at ease.

      over 2 years ago
    • Skyemberr's Avatar
      Skyemberr

      That Positivity of yours will see you through a heck of a lot!!! Keep us posted. I hope we can continue to help.

      over 2 years ago
    • Davina8960's Avatar
      Davina8960

      Skyemberr, thank you for taking the time to respond. I truly appreciate ALL who have responded.

      I thank all who took the time to respond and give words of encouragement. Does my heart good to know I have some place to come for answers and reassurance. I hate that any of us is taking this journey but surely glad I am not alone on my journey. <3

      over 2 years ago
    • cindywho's Avatar
      cindywho

      Davina8960 you are not alone on this journey I will be with you all the way. I hope all is going ok for you?? Remember we are strong. We will beat cancer. Take care.

      over 2 years ago
    • Davina8960's Avatar
      Davina8960

      Thank you cindywho!!! Much appreciated.

      over 2 years ago
    • cindywho's Avatar
      cindywho

      You are so welcome Davina8960. Have a great week.

      over 2 years ago

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