• Is Tamoxifen worth it?

    Asked by jcbis1 on Thursday, March 6, 2014

    Is Tamoxifen worth it?

    I really hate Tam, and am wondering about how much good it actually does. Any thoughts?

    8 Answers from the Community

    8 answers
    • Catpals' Avatar

      I have been struggling with this same question. I have been taking tam for 25 months and have awful side effects. But my understanding is that without it, it doubles my risk of reoccurence. So I have decided it is worth it. Now Doctors are talking about a 10 year regimen instead of 5. That would be something I would have to think long and hard about!

      over 7 years ago
    • barryboomer's Avatar

      My friend took it for 6 years and had no side effects and is cancer free.

      over 7 years ago
    • lilymadeline's Avatar

      Is life worth fighting for? There is your answer.
      Yes it has side effects and I can't stand the side effects from hormone blockers either but they usually work very well to keep us estrogen positive ladies alive. But if you really hate it please ask your oncologist if you can try a different one, because you may tolerate another hormone blocker better than Tamoxifen. I use natural hormone blockers as well alongside my prescription hormone blockers but unfortunately they simply aren't strong enough on their own to keep the estrogen from feeding the cancers. Good luck and best wishes!

      over 7 years ago
    • karen1956's Avatar

      Only you can answer if its worth it!!! I struggled on AI's for 3 1/2 years (including 2 months on tamox) and finally said enough is enough!!! The side effects were just too much to bare (or is it bear)!!
      If tamox is not good for you, and your are post menopausal ask your onc about the AI's.
      Some gals have no side effects, others have them for a while and either they go away or they get used to them. I was in the small group that had side effect after side effect. That said, I did give it my all for 3 1/2 years!!! I know in my heart that I have done everything possible to beat the beast!! That's almost 4 years ago....I see my onc next week and will find out if I'm still NED.
      Listen to your heart and do what makes the most sense to you...Only you know the answer

      over 7 years ago
    • leepenn's Avatar

      Tamoxifen does lower your risk of recurrence.
      But something to consider, in my opinion, is what are the numbers?
      If your risk of recurrence is 5%, then tamoxifen gets you down to maybe two and a half percent....
      So, with tamoxifen, you have a 97.5% chance of no recurrence.
      Without tamoxifen, you have a 95% chance of no recurrence....
      To me, those numbers look awfully similar.

      BUT - if your risk of recurrence looks like 30%.... then dropping to 15% seems like a big drop in risk to me....

      Factors that go into estimating your risk of recurrence include size of tumor, # of positive nodes, grade, and so on...

      So, consider making an appointment with your care team and talk about the numbers. What do they estimate your risk of recurrence is with and without this medication?

      Then, you can weigh that against quality of life... and hopefully, you can make the most informed decision possible. In the end, this is YOUR decision - no one else's.

      There are definitely other drugs that can be used to lower the risk of recurrence. Those may or many not have similar, more, or fewer side effects.

      So consider scheduling an appointment with your team... and consider asking for a second opinion. This way, you can come to a decision that really feels right for you. I think that's key. You need to feel confident that you are making the right decision...

      I'm so sorry you have so many side effects. That sucks!!!!

      over 7 years ago
    • junie1's Avatar

      I took Tamoxifen for 5 years,, side effect were minimal.. i did have a little weight gain,( but lost it shortly after being off the drug),, other than a few hot flashes,or cold sweats,, i really didn't see much bad things about the drug,,, It was well worth all that,, to know that i'd be living another 20+ years,(,and hopefully longer,),, that's how long it's been for me.. and I'm gratefull to be able to tell everyone.. Wishing you the best of luck,, june

      over 7 years ago
    • JudyDowell's Avatar

      You can use DCA along with chemo. DCA reverses the war burg effect in cancer cells so they can die a natural cell death. DCA is harmless to healthy cells and has no side effects that remain once you stop taking DCA. Chemo drugs cause permanant damage even after you've stopped getting chemo. I was diagnosed stage 4e mantle cell lymphoma in Feb. 2006. Oncologists said I had maybe 6 to 8 months to live with or without chemo. I studied cancer down to the molecular level and then found DCA. It was an orphaned drug for kids with lactic acidosis in the 60's. I began my search to acquire some and found there was a web site with human trials being performed in Edmonton, Canada at the univ. Of Alberta. The head Dr. Was Akbar Kahn. You can read about the human trials and cures at www.thedcasite.com. you can buy Na DCA from www.puredca.com. a 50 gram bottle should last a person weighing 120 to 150 pounds a good six months or longer. It improves the quality of life by eliminating symptoms as well as causing the cancer cells to die a natural cell death instead of the cancer being immortal! Read up on it! I'm still here! I wasn't supposed to see 2007, but here I am 8 years later! Energetic, happy, and in remission! I keep dca on top of my refrig. And would use it if a symptom appeared! This could easily put oncologists out of work, but don't they want to get rid of cancer? The majority of them don't want to see a cure because they would be out of a job. It's cheap, it's effective, it's safe, it works! I am living proof! Read everything you can, keeping in mind, the American cancer societies, FDA, drug companies and most oncologists are in this for the money. They do not want you to find "the cure". They lose ! Www.thedcasite.com has your answers, www.puredca.com sells the product. Like I said, I am living proof!

      over 7 years ago
    • baridirects' Avatar

      Personally, I am willing to put up with pretty much anything in order to bring all available weapons to bear against this beast. I've been on Tamoxifen since I finished primary treatment at Thanksgiving, and while I've experienced some of the side effects, there hasn't been anything I've not been able to live with in exchange for being on the green side of the grass every day.

      A note of caution about supplements...no matter how innocuous herbs/supplements/OTC medications may seem, and how much gospel folks preach about them, it is EXTREMELY UNWISE to take ANYTHING in addition to the regimen your oncologist prescribes without consulting with him/her first - that's not a decision you should make solely based on information you find on this or any other site. A lot of these substances are not particularly well regulated, as they don't come under the auspices of the FDA...but perhaps more importantly, just because something appears to work for one person, it may not be appropriate for you and your individual situation. I know of multiple people who decided to self-medicate with what appeared to be harmless supplements, only to develop worse problems than what they started with. I'm not saying that anything in particular is evil - I'm just saying that you need to take care about these ancillary decisions. Make absolutely no mistake...the folks who are selling this stuff are in it for the money, too - otherwise, if it were simply all about wanting to cure us all, they would be giving their product away. No disrespect intended - just sayin'.

      Exercise - absolutely. Making good dietary choices - you bet. If you're overweight, getting back to a healthy BMI- a must. Stress reduction/meditation - for sure. We need to be proactive in our own healing, and meet our care teams halfway. If you have questions about your risk for recurrance, and how taking Tamoxifen may affect that, definitely ask...it's important that you feel confident that you're following the best path towards a long and healthier life.


      over 7 years ago

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