• Johns Hopkins Liver Tumor Center

    Asked by jntqnn on Friday, August 2, 2013

    Johns Hopkins Liver Tumor Center

    Hi! My husband has primary liver cancer (HCC). He will be going to the Johns Hopkins Liver Tumor Center to attend their multidisciplinary clinic. Has anyone else been to the clinic and also is anyone being treated at their center for HCC? My husband has one tumor 7 cm and three tiny satellite tumors all in the right lobe. He also has hemochromatosis and we would be curious to know if there are any other liver cancer patients with the same genetic disorder. Thanks!

    2 Answers from the Community

    • geekling's Avatar

      Please remember the lyrics to that song about walking on through a storm.

      Sometimes genetic disorders have more to do with epigenetics.

      I've no idea if this would be relevant to your hubby but I do have a friend who had radioactive isotopes placed around his lesions.

      I've another friend who went on a radically different food intake methodology and reduced the size of her tumor by three fourths over the course of two months. She couldn't keep it up but she regained energy and hope and the quality of her life. Because she was an MD she kept searching for some sort of chemotherapy to completely rid her of the tumor. She submitted to a biopsy at the beginning of her fifth year without conventional treatment of any sort. The surgeon nicked the tumor while trying to remove it, allowing the cancer cells to spread throughout her body. She was dead in less than six months. Govern yourself accordingly and very good luck.

      almost 8 years ago
    • CAS1's Avatar

      Well you are in the right hands and I have heard that when the tumors are localized in one area of the liver the prognosis is much better and they can be killed with proton therapy or even surgery.

      Hoping for the best outcome

      almost 8 years ago

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