• Just a rant about available Breast Prothesis problems.

    Asked by Beverly60 on Sunday, January 6, 2013

    Just a rant about available Breast Prothesis problems.

    And wondering if anybody is as disgusted as I am. My mastectomy removed all of my Breast down to the muscle wall and 3/4 of my arm pit area. I can put on a prosthesis that covers the most area, and still be able to put my fist in the hole that is left! And whoever decided that all mastectomy amputees still have a convex area left on their chest hasn't seen many lately. IMO. Does anyone else besides me want the prosthesis and the bra designs changed? It's bad enough when they take away a melon and give you a lemon, but couldn't they at least fill in the holes so you can wear a dress?
    Ok, said my piece. Anybody want to help me design a better one?

    6 Answers from the Community

    6 answers
    • Nancebeth's Avatar

      I had reconstruction after my bilat but I was searching for custom prosthetic nipples and came across these websites which offer custom breast prosthetics. Check it out, it may be just what you are looking for.
      www.radiantimpressions.com, www.newattitudeinc.com

      almost 8 years ago
    • JennyMiller's Avatar

      You are absolutely right!! I have that same hole on my right side -- it is so weird -- my left side seems fuller but I had radiation on that side so I am wondering if that would be the reason. My prosthesis is not too bad -- I got them through a local Pharmacy that has a specialist on staff that measured and counseled me. However, the past few days, I have gone bra-less/breast-less and it felt great -- lol! The best suggestion I got was "shower puffs" for the pockets of my Mastectomy Bathing Suit -- they work great!

      almost 8 years ago
    • Momofivedcisbc's Avatar

      Beverly at 60-62 you are very young...... it sounds like you would like the possibility of some chest and breast reconstruction. When I was making my decision I had had 1 biopsy, 3 lumpectomies and now 2 mastectomies, I was given the impression that breast reconstruction was cosmetic....It is not.....it is restoring.....to my physical body and my spirit. I had extra fat in a few places on my body and I had options they let me use my extra fat and put my body back together again RESTORATION. I admire those of you who can use prosthetic seemlessly but for some of us we need surgery to replace the tissue that was removed to feel complete/whole. I don't know what your options are Bev but.... a plastic surgeon might be able to help you if....a prosthetic is not doing the trick. It is o.k. with me if you rant.....are disgusted....and are frustrated...it is ok w me

      almost 8 years ago
    • raven's Avatar

      Just to provide another perspective. I had a unilateral mastectomy and do not wear a prosthesis at all. The first time I wore one for a semi formal party it caused increasing discomfort/pain in my arm and rib area through the evening. Decided to give more time for my nerves to regenerate. Then I developed lymphedema. I decided, as part of my arsenal of tricks to keep the lymphedema under control, to not restrict lymph flow with bra straps and bands. I am barely a B cup and do wear an exercise compression shirt most days.

      almost 8 years ago
    • hikerchick's Avatar

      Yes, the options stink, even if you aren't missing 3/4 of an armpit. I mean, there's lots of silicone sizes available, but the shaping does not conform to different scarring shapes of the chest area and beyond. I have made some of my own prostheses....
      If you bought oversized foam (recreational, non-silicone) breast forms, you could try chopping them to size.....probably expensive. I tried getting a foam cushion and cutting it to size. Really difficult for me.
      I think you could possibly sew an additional foobie to put toward the armpit area, if you have a bra that will hold it in place. Microbeads do a great job, but are very difficult to work with and need a padded top to hold shape, in my opinion. If you were my neighbor, I'd bring you over and we'd build one together! There are instructions at breastfree.org, though it's rather hard to locate.... try this: http://breastfree.blogspot.com/2010/07/how-to-make-microbead-breast-form.html if you feel inspired to try fixing it for yourself.
      It's a pain, but I found the altering and building on the sewing machine very therapeutic after I had bilateral mast. And it felt really great to walk up to my siblings and say, "Check these out! I made these because nothing suitable was available on the market!"

      almost 8 years ago
    • Beverly60's Avatar

      Thank you, all of you! I've been searching the Internet for solutions and there may be answers out there. Just haven't found anything in my area.
      Dealing with self image issues. And some wonder why Depression remains a problem after your treatment ends.

      almost 8 years ago

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