• Just curious about how long everyone has been living with cancer, or I guess if your in remission, how long has that been?

    Asked by Julesmom on Saturday, September 23, 2017

    Just curious about how long everyone has been living with cancer, or I guess if your in remission, how long has that been?

    I am told I might have to have treatments periodically for the rest of my life. That sounds scary.

    41 Answers from the Community

    41 answers
    • geekling's Avatar
      geekling

      I finished treatment for anal cancer in 2002.

      I took experimental drugs in the end of 2014 to get rid of a blood disease which resulted from a botched chemotherapy. Not only was the base of the drug kept quietly away from the public but also my doctors. I was allergic to the sulpha base.

      I got a bee in my bonnet in 2016 and saw 4 different dermatologists. The last one found a teeny squamous cell. Carcinoma on my shin skin. 5 months of bed rest after surgery to remove it. Arrrrgh.

      Then it was announced that one of the side effects of the experimental drug was, you guessed it, cancer.

      I feel pretty good now. I am always getting better. Healing is constant. I eat like a queen, exercise when I can, and am thrilled to be 'on the mend'.

      Might? The sky might fall in. There was just a huge arsed hurricane which messed up my house but did not destroy it. It might have been like Puerto Rico but it wasnt.

      You might stay healthy for the rest of your life. Who knows?

      Enjoy yourself as best as you are able.

      3 months ago
    • tracyt's Avatar
      tracyt

      I was diagnosed with Tnbc in June of 2013, had surgery, chemo then finshed radiation in March 2014. They said I was cleared but I never felt cleared. Kept going back n forth cause of the pain. I was diagnosed with Lymphedema and Fibromyalgia. I was getting injections in my knees, back & shoulder and told I needed surgery for a torn rotator cuff. I said no and I kept complaining about a hard knot right above my clavicle. They said it was just a swollen lymph-node cause of the lymphedema and gave me physical therapy. After all that I find out that I was never cleared the cancer progressed to stage 4, mets to my nodes, heart muscle, lung and brain. I had more surgeries, (at one point) each week for a month, a few blood transfusions, more radiation to the brain, more chemo than a person should ever have and plenty of clinical trials. Wheeew. Im a little tired but im here! Hope you're doing well.

      3 months ago
    • beachbum5817's Avatar
      beachbum5817

      I was diagnosed Dec. 10, 2013. So, almost 4 years ago. I finished all treatment in Jan. 2015, because I am HER2+ and got Herceptin for a year. I have had surgeries since regarding my permanent implants. I also had a scare in June 2016, but all was ok. Take care.

      3 months ago
    • GregP_WN's Avatar
      GregP_WN

      I have a few different dates, I am 29 years out from my first diagnosis, 28 out from the second and almost 10 years out from the third. We hope you get to live free of treatment for many years to come!

      3 months ago
    • Skyemberr's Avatar
      Skyemberr

      Since jan 2016 if you want to go by my diagnosis date, at least two years longer than that if you go by symptoms i could detect.

      There are people now who live for many years at stage 4! Treatments are so much more advanced than they used to be.

      3 months ago
    • barryboomer's Avatar
      barryboomer

      I have an indolent form of cancer called Marginal Zone, Nodal NHL and another like that is Follicular NHL....We are told that this is slow growing but usually converts to an aggressive form of the B Cell Lymphoma. The Docs tell us it is Incurable but manageable. I was diagnosed four years ago this Month....Had rads once and an 8 month period of XXX but I'm still here...I HATE Cancer....but have sure learned a lot about ME, Other People and Cancer and it's Industry.

      3 months ago
    • BoiseB's Avatar
      BoiseB

      I was diagnosed stage IV Esophageal Cancer 7 1/2 years ago, it returned February of 13. At the same time I was diagnosed with an aggressive Uterine Sarcoma. I am now living with the late effects of both cancers. I am NED and consider myself cured: I think I am cured therefore I am cured. That being said I will always have to have my esophagus stretched every two years. I have lost all my teeth, I sleep sitting up. I have neuropathy. But I am alive.

      3 months ago
    • Anniekell's Avatar
      Anniekell

      I was diagnosed with metastatic breast cancer in February of 2015 and told I had three months to live last September. I began treatment with herceptin and perjeta last January and my oncologist recently recommended adding abraxane to my regimens as well. I'm going to see how well I tolerate it and take all my treatments - and all my days - as they come. I try to be as much in the present as possible - while I have a few things in the future I really want to be around to see - like my daughters wedding this past may and my sons wedding next spring. Not to mention the grand babies I hope are in the offing...

      3 months ago
    • Floridagirl6's Avatar
      Floridagirl6

      I was diagnosed in February 2016 - colon cancer. Only symptom was anemia.

      3 months ago
    • lh25's Avatar
      lh25

      I was diagnosed with stage 3 uterine cancer in March of 2016. I finished treatment on Oct 26th, 2016. So almost a year.

      I do know two people who are on "maintenance chemo". One is doing very well, the other is having issue with her energy and strength, but both are still here fighting.

      3 months ago
    • Kris103's Avatar
      Kris103

      Diagnosed Dec. 18, 2013 with invasive ductal carcinoma in my left breast, and done with the major treatments by Feb. 2015. Have been on an aromatase inhibitor (currently exemestane) since. Depending on who you talk to, I may have another 2.5 or 7.5 years to go on that. I've had a few non-cancer things happen, such as the beginning stages of glaucoma, that require daily treatment for the rest of my life, so I've gotten pretty used to the concept of long term tests and treatments. The longer, the better!

      3 months ago
    • msesq's Avatar
      msesq

      I was diagnosed with HERS2+ breast cancer in May 2014 and finished treatment in June 2015. I have need NED ( no evidence of disease) since then. I had Herceptin for 19 infusions every 3 weeks.

      3 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Hi Julesmom! I was diagnosed in October 2012. I have had treatment of some kind since that time. For 4 years, I have had to go every 2 weeks for treatment. It gets old ... but I am alive and well to tell the story!!!

      3 months ago
    • fiddler's Avatar
      fiddler

      My husband's uncle was diagnosed with lymph cancer a few years ago. He went for periodic infusions to shrink the tumor, which was so large it infiltrated his chest through the ribs and pushed the lung away. It worked - the tumor was reduced. He's 91 this year and on the way out of this reality, but not from cancer. He outlived 2 wives, whom he loved dearly, and has said often that he's ready to go.

      3 months ago
    • fiddler's Avatar
      fiddler

      As for me, I have neuropathy and necrotic fat at the surgery site, plus calcifications (which can turn into cancer) from radiation tx have appeared twice.

      Tx is every 6 months for 2 years - a 3D mammo for the calcifications and ultrasound for necrotic fat. I just finished a 2-yr round on a calcification when another calcification and the necrotic fat showed up. Another year to go and, hopefully, I can go back to yearly mammos.

      3 months ago
    • geekling's Avatar
      geekling

      Gads, we sound like an AA or any other anonymous type sharing group.

      Lets hope that a great majority if not all of us can be in remission, free of named diseases and recouperating from the treatments, side effects, after effects as we type.

      A litle early but, as Tiny Tim said, "God bless us all."

      3 months ago
    • SandiA's Avatar
      SandiA

      Hi! I was diagnoised stage 4 May 2014. I finished treatment about a year ago. I am currently being scanned every 3 months.

      3 months ago
    • MyahsMom's Avatar
      MyahsMom

      I was diagnosed in 2009 and had two surgeries just one month apart. Here I am 8 yrs. later. I am now off all cancer meds. I see my oncologist next month and if all goes well I go on a yearly plan to see her. Have developed several medical problems since being diagnosed but at least I'm alive.

      3 months ago
    • Chachi's Avatar
      Chachi

      I had stage IV inflammatory breast cancer before I ever started treatment. I was fortunate to get to a point where the treatment worked and currently have no evidence of disease. Almost 3 years now from the date of diagnosis. I take a daily pill to reduce my estrogen but no other treatment. I know of many others they my IBC support group who have gone literally 10 years or more with regular chemo treatment of some sort for 10 years or more, so it is doable. I am not in their shoes so I do not know how easy or hard it is for each of them - I just know it can be done. I hate that we have to be warriors in this fight, but fight we will

      3 months ago
    • Molly72's Avatar
      Molly72

      I had a large melanoma in 1964 as a very young woman.
      Then 6 years ago had a series of sarcomas.
      Then, every 6 months I go to my dermatologist & get a squamous cell or whatever the other skin
      cancer is called, removed.
      It's just life, no big deal any more.

      3 months ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      I was diagnosed Aug 2012. I was NED at the end of treatment in Jan 2013. Currently no treatment -- just blood work every 6 months.

      3 months ago
    • fluteplayer's Avatar
      fluteplayer

      Stage 1 in 99 of breast cancer .In 2011 stage 4 also told 6 months to a year with treatment so another port and more chemo. Chemo almost killed me second time but Dr said she would put me in Phsyo ward to give it to me. Daughter was with me and said no way .I was going to Pittsburgh to Hillman cancer center. New Dr said 1 more chemo would have killed me. Now 2017 tumor markers went from 24 to 91 and still climbing.tired fighting so giving up

      3 months ago
    • DoreenLouise's Avatar
      DoreenLouise

      Don't give up fluteplayer. Be strong.

      3 months ago
    • GregP_WN's Avatar
      GregP_WN

      Sorry for the situation you are in @fluteplayer. The treatments do wear one you badly. We hope you are able to get some relief from them and continue, and we hope one of them turns into the miracle that you need.

      3 months ago
    • BarbarainBham's Avatar
      BarbarainBham

      Fluteplayer, don't give up. If your current doctor has nothing to help, you should ask him/her about clinical trials and research available for you. If still nothing, get another opinion at a National Cancer Institute-associated Comprehensive Cancer Center.
      https://www.cancer.gov/research/nci-role/cancer-centers/find

      God bless you.

      3 months ago
    • Skyemberr's Avatar
      Skyemberr

      @fluteplayer sometimes it feels hopeless, especially if you can feel it spreading as the days go by, but the longer you can hang in there the more likely you are to find a trial that may save your life!! Please don't give up unless you absolutely cannot stand it anymore.

      3 months ago
    • fluteplayer's Avatar
      fluteplayer

      Taking Ibrance and now mouth sores. Last resort so hope I can continue. Waiting for Dr. Office to call back . Will see them tomarrow for 2 painful shots if allowed to continue. Blood work too so will see if tumor markers have risen. No longer going to church as I feel my pastor caused my cancer to change. He said after arguing with him .the vengeance of God would get me . My tumor markers went from 21 to 91 the same month. I know he is just a man but he was my direct link with God . Going to another Dr. A physio one as I don't take death to well.will know tomorrow and thank you all for your kind thoughts and prayers

      3 months ago
    • Skyemberr's Avatar
      Skyemberr

      God doesnt punish people with cancer. That man that said that to you is a jerk.
      You can live the best lige and still vet cancer. You can be a child and get cancer. It's not your fault.

      I'm sitting here waiting to find out what radiation oncology wants to do to me for these new tumors.... Noir sure our will work but hope it does.

      I'll be keeping you in my prayers. Hang in there!

      3 months ago
    • fluteplayer's Avatar
      fluteplayer

      Skyember He didn't say God would give me cancer. I already had it since 1999 . He said the vengeance of God would get me caused I questioned him about the old testament. After I pointed out I was already stage 4 cancer .He said it could get worse and it sure did.Thank you anyway and really hope you hear good news

      3 months ago
    • DoreenLouise's Avatar
      DoreenLouise

      Fluteplayer, now is when you need God. He is not vengeful, he is all loving, he forgives us for our sins. I think you should talk to your pastor and tell him what you are feeling. If that does not work, please think of finding another church within your own religion. If my priest would say something that would make me feel that my actions caused my cancer, I would find another Church. I am a practicing Catholic and my religion has it problems, but you may want to considering calling a priest. Be strong, don't give up, continue fighting the cancer and God Bless you.

      3 months ago
    • BoiseB's Avatar
      BoiseB

      Flute Player have you ever considered that it might be your own thoughts and fears that are allowing your cancer to progress. I know that we cannot think ourselves cured but mental state does have a lot to do with our physical state. Please get a second opinion about the Bible. I am sure your pastor has an authority he answers to be that a synod, or bishop. Or even some governing board in the congregation.

      3 months ago
    • Chachi's Avatar
      Chachi

      Fluteplayer - we'll be praying for you - for strength and health. God is always with you and for you. I was stage IV and I am still here almost 3 years later. One of the best books that helped me mentally and emotionally they this time was "Jesus Calling". It is amazing for someone going they cancer or any difficult time. I found it incredibly helpful and it sure helped me keep hope alive and sure reminded me daily how God is with me and for me thru this whole journey. He is with you and for you too fluteplayer. God is love. I am so sorry you had a pastor or leader who was so crappy and ill-informed.

      3 months ago
    • BarbarainBham's Avatar
      BarbarainBham

      Fluteplayer, please find another priest or pastor to discuss the incident with your pastor as soon as possible. You said your pastor is your direct link to God, but we can communicate with God directly ourselves. You very much need to talk to another pastor to confirm what we already have told you---God does not "get people," and your pastor was sinning when he told you that. You shouldn't believe the pastor's evil words---they are not consistent with what the Bible says about God's love for us.

      I've been Stage IV since 2013 and take a chemo pill daily. I didn't do anything bad to be punished for, but I know sickness is a part of our lives as we age. My good news is that I have a chemo pill to treat it, so I live a normal life. We are all praying for you. Please talk to another pastor at another church IMMEDIATELY, so you can feel better soon.

      Please let us know how you are after you talk to another pastor. If you aren't feeling well, call one on the phone. Ask your family to help you do this.

      3 months ago
    • Molly72's Avatar
      Molly72

      You know, this is the second & quite recent (that I am aware of) time that one of our posters here has complained of a "christian" minister making threats of h"a"ll & damnation through the disease of cancer.
      I am appalled, once again by both the chutzpah (nerve) of the supposed man of god who says such things, and the response of the horrified victim.

      We are all adults here, and need to stand up for ourselves to bullying, no matter who is the bully.
      For goodness sake, we have managed to fight tooth & nail against one of the most terrifying disease there is. Yet some half-witted, poorly educated, and cruel man who managed somehow to get himself in a position of power in a church, can scare the bejesus out of some of us.

      Fluteplayer, don't ever bother having anything more to do with Rev. Bullyboy, find another church.
      Report that creep to his superiors, T.P. his house!!!!!

      3 months ago
    • fluteplayer's Avatar
      fluteplayer

      Thank you for all your kind words. I quit that church a couple weeks ago and did tell the deacons why. It was hard to do as that church is so special and if they get rid of the preacher we will be back. A vote to get rid of him is Nov 1 and have to go there,to vote ,as they need our vote to get him out.

      3 months ago
    • tracyt's Avatar
      tracyt

      Fluteplayer, I thing you should try a clinical trial. Im not suppose to be alive but thanks to God and clinical trials, Im still here!

      3 months ago
    • BarbarainBham's Avatar
      BarbarainBham

      molly72, I believe this is the same case as before of a pastor being evil. If you consider that preaching is just an occupation to feed your family, it's easy to have a preacher who isn't a man of God. We have to be aware of that so we won't follow the wrong people. If their words aren't supported by the Bible, then they aren't from God.

      Fluteplayer, I agree you should vote Nov 1st, but since the voting and replacement will take some time, I think you should attend another church until he leaves. This is a time in your life you personally need support as a cancer patient. Go to a different church tomorrow and make an appointment for a meeting next week, just for you. Wishing you peace and that you be surrounded by love.

      3 months ago
    • petieagnor's Avatar
      petieagnor

      @Julesmom, lots of discussion. Yes, it is scary to think that you may be taking treatments for the rest of your life. Took me a while to digest that fact, but it is necessary for some types of cancer. I went 10 years cancer free; now, I have mets breast cancer, diagnosed 2016. Positive attitude is a must; hope this discussion didn't scare you off. It took me nearly a year to "TURN IT OVER TO GOD". This site has been a blessing.

      2 months ago
    • fluteplayer's Avatar
      fluteplayer

      The pastor was fired by the deacons and is gone so going back to play the piano this Sunday. Looks like the vengeance of God got him. One of my friends prayed it back on him. So far he has no job nor a home . It has cost us some people as they left with him. 6 but only 20 left as,it's a small church . He told the kids they would go to XXX if they missed church and he said I should pray to die as that was our objective in life. Having my 3rd chemo right now and praying it works

      about 1 month ago
    • geekling's Avatar
      geekling

      A direct link between a man and his maker does not require a go between.

      If you wish to pray, do so, as no one can commune for you.

      The writer Salmon Rushdie wrote that Paradise would be a place where men are free to discuss ways to honor their creator without fear of reprisal. Take a deep breath and live for a while as a free and grateful human.

      about 1 month ago
    • BarbarainBham's Avatar
      BarbarainBham

      Fluteplayer, I'm glad you got relief, but beware of the devil still in your midst tempting you to do evil---it's evil for your friend to "pray it back on him," too!! Please don't get caught up in the devil's games, which is all around your church and preacher.

      Pray every day for God to keep the devil and evil from you and your friends. The Bible says to pray for your enemies, and God says vengeance is mine.

      about 1 month ago

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