• Just diagnosed w/lymphoma. Dr"s recommending regimen w/ Rituxan & Treanda. So very scared. Not my first cancer but 1st chemo. Any advise.

    Asked by Lilly721 on Thursday, October 25, 2012

    Just diagnosed w/lymphoma. Dr"s recommending regimen w/ Rituxan & Treanda. So very scared. Not my first cancer but 1st chemo. Any advise.

    Not my 1st cancer: had soft tissue (29 yrs ago);thyroid (8 yrs), lung (last yr). No radiation or chemo for any. Now don't know if I even want chemo. Have had enough! But Dr. says it's curable. Please help. Thanx!

    5 Answers from the Community

    5 answers
    • Harry's Avatar

      I would definitely suggest that you go along with your doctor on this one. For one thing, if it is a curable form of NHL, then it is probably also something that can progress quickly.

      Someone else will have to tell you about Treanda, but Rituxan should be comparatively mild. Most people experience their worst reaction, hives and feeling like they have the flu for a day or so, the first time they take it. After that, the reactions are milder. Some people have a greater reaction so be sure to tell your nurse and/or oncologist about your reactions. And, talk to your doctor about pre-treatment for side effects with steroids and benedryl.

      almost 8 years ago
    • CourtW's Avatar

      Hi, I have NHL and was first treated with the RCVP cocktail but my tumors did not completely go away. I just had my first treatment with both Rituxin and Treanda last Thursday and Friday. I was fine all of Thursday and most of Friday. However; Friday in the early evening I became absolutely exhausted and slept in on Saturday morning. Sunday, I felt like I had a horrible case of the flu and ran a marathon. I thought it was arthritis flare (I also have Rheumatoid Arthritis) but now I think it was a "chemo hangover". After Sunday I was back to my version of normal. I am sure you will be fine. Just make sure to take it easy for a few days afterwards. Good luck!!!

      almost 8 years ago
    • AmyC's Avatar

      I am currently in treatment for Large B Cell NHL. I have had Rituxan but not Treanda. I received Rituxan with RCHOP and with RICE treatments with no side effects (with the Rituxan) but I did recieve benadryl and tylenol as a premed for the Rituxan. So that may have been my magic. :) My doctor also said the type I have is curable so I'm doing everything he tells me. I'm not there yet but I'm banking on getting there! I wish you the best of luck with everything!

      almost 8 years ago
    • jhale17's Avatar

      My fourth occurrence of Diffuse Large B cell NHL started Dec 29, 2011. The cancer was located in lymph nodes of my abdomen. The treatment used was six treatments of Treanda+R. I completed this treatment six month ago. Results: remission.

      I have had CHOP, RICE and EPOCH+R chemo treatments going back twelve years. The Treanda+R has by far been the easiest for me. A friend of mine had this same treatment one year before me and is doing well now. His was slow growing and mine was aggressive and we have both obtained remission.

      Everyone is different so there is a risk for everyone starting a new regime. In talking with my doctor and nurse advocate they say patients are having good results with Treanda+R. This chemo has been around thirty years in Russia and recently became available in the USA and is well established showing a good track record.

      With previous treatments I lost hair all over my body. Treanda resulted in only a little thinning of my hair.

      Here is the drill for Treanda+R outpatient treatment.

      You sign in at the doctor’s office; then wait to be taken to the infusion room. Once there a nurse’s aide may take your vitals; temperature, oxygen level on your finger tip, pulse, blood pressure and ask how you are feeling.

      Most doctors’ offices have a separate infusion area with recliners and blankets for your comfort. You will be able to walk with your IV pole to the restroom or the vending machine, as needed. You may snack, read or bring in a portable video player or use your cell phone if you like. They usually have a TV running some station.

      The nurse will prep you putting in an IV in your arm. This is the only stick you should get and the nurses are very good at this.

      You will probably get the Rituxan first and there is prep for that. I received two Tylenol tablets with water and a small IV bag with Benadryl in it. This infusion is quick -- like fifteen minutes. Then that IV bag is replaced with the Rituxan bag which will be administered slowly at first and then increased later. This will take around one hour. The Benadryl may make you sleepy. I have had Rituxan fourteen times and with no side effects.

      Then the prep for Treanda is started. It is another little IV bag that takes about fifteen minutes. A portion of this bag contains steroids. This is to help your body deal with the chemo. I just love this as they provide what I call a false feeling of wellbeing that gave me good dividends when I got home. In fact, after my third treatment I took a trip for four days out of state. I did take some rest time on some days but enjoyed getting away.

      Your IV site will be removed and a dressing placed on it and you will be released to go home. I drove myself home as there were few notable side effects. For me treatments were four weeks apart.

      I believe everyone is inconvenienced to some degree by chemo; just remember there are a limited number of treatments. When I asked my doctor twelve years ago, “what happens after my last chemo treatment?” his reply was: “Every week just gets better and better.” That has been the way for me for the four occurrences I have be though.

      I am holding good thoughts for your treatments and their successful results.

      almost 8 years ago
    • Harry's Avatar

      Oh. I didn't realize. Treanda is just another name for Bendamustine. I've had that. It is a very easy drug to take. No side effects for me.

      It was developed in East Germany.

      almost 8 years ago

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