• Just starting down this road, just diagnosed, the plan is being put together.

    Asked by BugsBunny on Wednesday, February 13, 2019

    Just starting down this road, just diagnosed, the plan is being put together.

    What would you say has been the most difficult part of having cancer and going through all that comes with it? I am trying to learn what to expect. Thanks for your input.

    9 Answers from the Community

    9 answers
    • BoiseB's Avatar
      BoiseB

      All cancers are different and there are different versions of the same cancer. What's more every person is different. So I really can't tell you what to expect. I can recommend a guide book here is a link https://www.livestrong.org/what-we-do/program/livestrong-guidebook
      My one piece of advice is if you are not sure of your Dr. or plan get a second opinion. Keep posting on WhatNext we have your back.
      I have beat three cancers two came with an expiration date. Nine years ago on March 19 I was diagnosed with stage IV esophageal cancer they told me I had 4-9 months to live, but I found a surgeon doing a different kind of surgery (ALWAYS GET A SECOND OPINION) and here I am today. I won't say survival is easy but it is doable.
      Mark April 26, 2042 on your calendar You are invited to my 100th birthday party

      7 months ago
    • GregP_WN's Avatar
      GregP_WN

      If I had to say what was the most difficult, It would be different for each of the three diagnoses. The last one was right tonsil, the worst of that one was recovery from the radical neck dissection. In the second one, it was chemo, and the first one was the chemo. Radiation was pretty tough on my last dx, but I still say recovery from surgery.

      I would say that if you get 10 more answers you might get 10 different answers.

      7 months ago
    • BoiseB's Avatar
      BoiseB

      I really believe the worst thing about my cancers has been the financial worries.

      7 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      This hasn't been a problem for me, but it is a problem for many and that is worry about what is coming. Or, worry about what MIGHT come. Worry.

      @BoiseB is so right that every cancer is different and every person's reaction (mentally, emotionally, and physically) to their cancer is different. I personally decided from the very beginning that I was not going to let cancer control me or my life any more than I absolutely had to. So, I have tried my hardest to keep living my life ... dragging cancer along with me ...

      I can't think right now of what I would say "the most difficult part" of having cancer has been. Maybe just telling my family and trying to get them to accept the diagnosis without worrying themselves sick.

      7 months ago
    • JaneA's Avatar
      JaneA

      Waiting for treatment to begin. Juggling work and financial costs of cancer. No energy to do household chores.

      7 months ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Like you, t came to WhatNext in 2013, shortly after being diagnosed and before treatment started. I was already going through the most difficult part for me, fear of the unknown and being given a possible expiration date by my doctor. I was scared, depressed ,bloated with ascites and having breathing and coughing difficulties . I came to WhatNext searching for a lifeline and found it with the additional support offered from other women survivors . I took their advice to heart to take things “ one day at a time.” Once you have the right mindset, you surprise yourself.

      7 months ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      I agree with Jane. I had already had an abdominal surgery for a hernia, so hysterectomy didn't faze me. Waiting to start chemo and getting a game plan down, now THAT scared me. I think that anticipation was actually worse for me that anything else. I know that is not true for everyone, but it was for me. Even though I was diagnosed stage IV, I was lucky that I had very mild side effects.

      7 months ago
    • BarbarainBham's Avatar
      BarbarainBham

      BugsBunny, with the above replies in mind, I'd say try to make your life as stress-free as possible, and it will help. Things to do now that can keep you relaxed during treatment are having child transportation duties taken care of, making arrangements for taking off from work (?file FMLA papers), find help with visiting your parents, and other chores, even including help with cooking a meal or cleaning during treatment. Explain to your husband and family.

      You should talk to a Financial Counselor at your doctor's office and/or hospital/medical center, so you will know what's covered by your insurance. Afterwards, if you call the American Cancer Society 1-800 phone number, they can mail you a list of organizations who will cover the co-pays or uninsured portions. Start applying for help now while you feel up to it, so that won't cause stress later.

      Then, just focus on scheduling and getting to your appointments. Remember it doesn't change anything to worry, so concentrate on having a healthy lifestyle as far as nutrition and exercise, so you can feel as well as possible. DO NOT try to lose weight now---some doctors tell their patients to gain weight before chemo. Relax and pamper yourself when you can.

      You can always come to this website with questions, but stay in close touch with your doctor's office if you have side effects.
      Wishing you the Best.

      7 months ago
    • Woodburn9's Avatar
      Woodburn9

      Hardest part, dealing with the diagnosis and facing the fact you might die. Depression hits, then you waddle you way out and start living again. You get to face the five stages of grief but you get through them.

      7 months ago

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