• kyphoplasty - Has anyone here had this done?

    Asked by WNMyeloma on Thursday, July 5, 2018

    kyphoplasty - Has anyone here had this done?

    Someone has emailed us a question about how it's done, time to recover, etc. Can you please share your experiences?

    13 Answers from the Community

    13 answers
    • Debio's Avatar
      Debio

      I have had 2.5 kyphoplasties. .5 because of a complication with my 1st when a blood collected at one of the sites and was pressing on my spinal cord. Spent a week in the hospital after the corrective surgery. It is good to know that the fractures have stabilized but the pain relief was fleeting. I suppose the pain might have been worse if I did not have the surgeries. My MM was stage 3+ when diagnosed so hopefully your damage wasn't as bad as mine. Recover was simple and quick after everything with my first and very quick when I had no complications with my second. Good luck to you

      over 2 years ago
    • lynniepoo's Avatar
      lynniepoo

      I had balloon kyphoplasty done on two of my 5 compression fractures. I was diagnosed after 8 months of symptoms and was in extreme pain. The radiologists who did the procedure said they could only do 3 at s time and when they did the first surgery they worked on the worst two fractures . Decided to only do the two due to length of time it took to work on those. I was scheduled to do the next 3 the following week but came down with shingles. By the time I was able to do the second procedure it had passed the time that it would help. They said there was a window of opportunity for the surgery to work after the initial fracture.
      The procedure was not bad and it did help somewhat. Of course I had no idea I would get shingles so who knows if iI would have done it if I could have known.

      over 2 years ago
    • Debio's Avatar
      Debio

      Lynniepoo, question- you had a radiologist due this type of surgery and not an orthopedic surgeon? That seems strange. Are you sure? Radiologists normally read scans and x-rays, they don't operate. I have fractures in all my vertebrae. The time constraint is that the fractures have to be new. If they have started to heal (the bone calcifying) it is too late.

      over 2 years ago
    • lynniepoo's Avatar
      lynniepoo

      Debio you are correct about the teadon for the time constraint. As I said I had finally been diagnosed several months after the pain began so with the shingles as well the time had passed. The radiologists are called interventional radiologists or neuroradiologistds who are specially trained to use image guided X-rays to do the procedure. I presume surgeons also do the procedure but my clinic used the specialists. There was no real surgery, little recoup time and only tiny holes in my back from the insertion of the balloon.

      over 2 years ago
    • Debio's Avatar
      Debio

      Yes, I am aware of the process. During my second kyphoplasty the anesthesiologist didn't allow the local to take hold before the process began. I felt it all. I was informed that I had to lie still or it could damage my spinal cord. Don't think that can be classified as "no real surgery". I have a niece who is a surgical tech. I wouldn't want her to so such a serious procedure

      over 2 years ago
    • lynniepoo's Avatar
      lynniepoo

      I’m sorry you had that experience. Can’t belirve you had to feel the whole thing!! As I said the interventional radiologist was specially trained so I just followed what my team of Drs recommended. I’m sorry I said no real surgery, that was misspoken. Hard to explain why my procedure didn’t feel like surgery. I also had two years later an interventional cardiologist do an aortic valve replacement that involved radiology putting a line up my femural artery to my heart and replacing my valve. In that case it was done by interventional cardiologist and his team including regular cardiologist, surgeon just in case, etc. Normal procedure is open heart surgery and long recovery. They are developing all sorts of new procedures and we have to have faith that they get the proper training. Between MM, chemo, a hernia repair, a SCT, the balloon kyphoplasty, a broken hip and heart surgery I’ve seen a lot in the past 7 years. I’m still here so feel pretty blessed.

      over 2 years ago
    • lynniepoo's Avatar
      lynniepoo

      Debio how do you deal with the pain in your back. It’s chsnged my life to the point I am most comfortable laying on the couch watching tv. I take pain meds but that doesn’t do it totally. I use prescription lidocaine patches as well. Am going to try acupuncture in a few weeks so we shall see if that works. I have a pain management dr on my team so we are working on it!

      over 2 years ago
    • Debio's Avatar
      Debio

      Ido the same. Like last night, I didn't sleep much because of the pain. I have been taking Percocet which lessens the pain so I can function. Now my oncologist wants me to try and ween myself from the Percocet to Naproxen. Doesn't seem to be cutting it. But I am going to give it a little time and see. I get up everyday and do...I teach 3 days a week during the school year, I clean, cook, do laundry, meet friends for coffee or a walk, try to exercise a little, but by 3:00 I have had it and need to put my feel up and relax. My youngest still lives with me. He just graduated from college and moved in with his girlfriend to help me and to help them save up for a place of their own. Don't know what I'll do without them or when I can't work anymore. My health is a struggle but honestly, the day to day finances are more of a problem. It makes me physically sick frequently.

      over 2 years ago
    • lynniepoo's Avatar
      lynniepoo

      I take oxycodone and long lasting morphine. It helps but as you said by the end of the afternoon I need to just chill. That’s why I’m going to try acupuncture. I take so much medication between MM and my heart I have to write it all down to make sure I don’t miss anything. I’m retired so do not have the work issue. Cancer affects every facet of our life which many people don’t understand until it happens to them.

      over 2 years ago
    • Debio's Avatar
      Debio

      Lynniepoo, I agree people really don't have an understanding of what it is like dealing with mm. I pray they never have to find out. I am grateful for everyday. Just wish there was a simp
      le way to deal with the pain and still be able to function.

      over 2 years ago
    • annetteOR's Avatar
      annetteOR

      I had vertebral compression fractures and had lost 3" of height when I was diagnosed 4+ years ago. The fractures remain only partially healed, with one year of monthly bisphosphonate injections (Zometa). Never had the surgery, so maybe not my place to comment but I want to throw out there that during my annual visit this April to the large medical center where my SCT was done, I asked if I was safe to assume that at this time I was as good as I was going to get. I still have back and rib pain, the amount varying with activity. He mentioned khyoplasty, but did not push for it, saying that they're not using it as frequently as it had been used in years past, because the effects appeared not to be very long lasting. I do remember reading about it much frequently when I was diagnosed than I see now. Keep on trucking everyone!

      over 2 years ago
    • lynniepoo's Avatar
      lynniepoo

      Like everything else opinions change on treatments, medications, food etc etc. At the time I was in such pain I was willing to try it . Now? Who knows. I still do my Zometa infusions every 3 months but who knows how much it helps , I don’t know how it feels to stop so no way go compare. I will keep doing what my team of doctors recommend as they have the experience.

      over 2 years ago
    • annetteOR's Avatar
      annetteOR

      Exactly, Lynniepoo! It'd be so nice to know what different outcomes would be instead of having to choose and then never knowing! Nice to touch base with you. :)

      over 2 years ago

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