• leiomysarcoma / retroperitoneal stage 4

    Asked by stephanier on Monday, January 7, 2013

    leiomysarcoma / retroperitoneal stage 4

    im 38 years old and i was diagnose nov.2012 and i just want to knoew has anybody going are been through this type of cancer and what was the out come of it and how long did treatment last i will be thankful and greatful for any info it is a lot of sarcoma cancer but im omly intrested in the one listed above if you has or have going through the same stage and area of the cancer.thank you for you respones.

    4 Answers from the Community

    4 answers
    • GregP_WN's Avatar

      This link is for our page for Leiomyosarcoma, to get you started. This is a rather rare cancer, I will look around the web to see if I find some others for you.

      over 4 years ago
    • carm's Avatar

      Stephanier, hello my name is Carm and I am an oncology/end of life nurse who specializes in gyne cancers so I have had patients with leiomyosarcomas of the uteri and peritoneal cavity. Although I am not a patient, if you have any questions that I can help with, by all means feel free to ask. You will find much support here. Welcome to the "What Next" family and best of luck to you in this new year, Carm.

      over 4 years ago
    • chaffinch's Avatar

      Hi Stephanier, I am responding to you because there don't seem to be many of us with exact diagnosis. I am 55, sarcoma 3, second occurrence diagnosed 12-12 (first occurrence misdiagnosed as begnign from hysterectomy pathology report 1-12). Second occurrence is 8 x 11 primary tumor plus 4 small tumors located in retroperitoneal in sygmoid loop. I had 4 infusions of taxotire and gemzar chemotherapy that shrunk my tumors over 30% Jan, Feb, March 13. My small 4 tumors don't show now on scans and my primary tumor is now small enough not have to have a colostomy when surgey is performed . Today will be my 8th of 25 IMRT radiation treatments. Surgery is next step.

      over 4 years ago
    • wvgal68's Avatar

      I have stage IV uterine leiomyosarcoma. I just recently celebrated 5 years since diagnosis. I've had 3 major surgeries, including the initial hysterectomy, a total of 2 1/2 years of chemo, 4 different ones. Getting ready for my 4th surgery.

      over 4 years ago

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