• Life after advanced cancer diagnosis

    Asked by Lisapitt007 on Tuesday, May 28, 2013

    Life after advanced cancer diagnosis

    My breast cancer has spread to my lung and spine. Everything I read basically states to prepare for the worst. I have heard of people living for years after an advanced diagnosis. Are there any of you out there to give me some hope?

    27 Answers from the Community

    27 answers
    • Clyde's Avatar

      I'm not in the same shoes you are, but what I can offer is that it ain't over till the fat boy sings. As you said, you have heard of people living for years with an advanced diagnosis, why can't you be one of them.

      over 3 years ago
    • itsjustme736's Avatar

      Stop worrying about what might happen!!! If you feel good Ok, If you feel bad sometime OK, Live for today and let tomorrow take care of itself

      over 3 years ago
    • cearnsha's Avatar

      I have similar metastases from pancreatic cancer. I'm getting radiation which I'm assured by the doctors will remove the cancer from my bone. I've heard a lot about people with cancer in the lungs benefiting from chemo. I myself will look into chemo alternatives (I've already done one course of chemo).

      My friend's mom, in her early 90's, lived a whole year with cancer in her lungs . She didn't get treatment at all (tried chemo pills and didn't like them). Her cancer was very advanced and she'd get a lot of fluid in her lungs, so they put in a kind of device to drain the fluid off. Also, she used a mini oxygen tank she carried in a backpack. She'd even go swimming in mountain lakes with the little tank floating in a kids' little inflatable boat.

      I recently met a woman whose breast cancer had spread to her bones (I don't know about lungs). She had no signs left of cancer in her body, after a course of hormone treatment (I don't know exactly what) and was going to start chemo.

      I've heard other stories of people doing well with cancer in their lungs, getting chemotherapy.
      A great resource is www. blochcancer.org. The Bloch Foundation was founded by a member of the H & R Block family who got lung cancer in the 1970's and survived it. They have free books, a survivors' network for all kinds of cancer, and telephone support , among other resources.

      I say don't give up, and get multiple opinions from different doctors. A big part of the battle is keeping one's courage up. There are indeed many many cases of people living years after an advanced diagnosis, and I know some of those people.

      over 3 years ago
    • JennyMiller's Avatar

      Do not give up -- the number of survivors in this world proves that there is always hope.
      A positive attitude is absolutely essential and seems to be the key to long term survival.
      When I was lost in my fears, I found a specific website for long term survivors of women with breast cancer who had lymph node involvement. When I saw the postings of women who had over 20 positive lymph nodes who were 15 and 20 years out -- I knew there was hope for me and I took on the positive attitude. I have great faith in the power of prayer -- the Good Lord brought me through this storm and I know he will continue to be with me. I wish you the best.

      over 3 years ago
    • Benge's Avatar

      We always have hope. I personally got through difficult times because of my faith, knowing that this here is all temporary. I sent a prayer for you!! Here is a verse of hope: Jeremiah 29:11-12 (New International Version)
      For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future. Then you will call upon me and come and pray to me, and I will listen to you.

      over 3 years ago
    • princess123's Avatar

      My breast cancer had spread to my liver (70% cancerous) spine and lymph nodes. I am stage IV. This all started a year ago. I improved greatly when I started chemo. I have been told I am not curable but I am treatable and will be on treatments the rest of my life. I was bombarded with chemo for 3 weeks then had to take a week break for low counts. After 3 months of treatment my onc. predicted 5 years or better. For my age I think that's pretty good. Hope you have the same reaction to treatment.:)

      over 3 years ago
    • MillieS's Avatar

      I have stage IV BCwith mets to bone and liver. Though I am only a year out from diagnosis, I have found several on this web site that are seven ,eight years out. This has given me hope . There's one lady with advanced ovarian cancer, who has no evidence of it today! Hope is always there. Please stay positive and find ways to take care of your body and your mind. The most important thing is to embrace today, prepare for tomorrow. There was an old song...use to run me crazy.." Don't Worry, Be Happy". But now days it is my motto. Hugs and prayers your way.

      over 3 years ago
    • Gena's Avatar

      I have stage IV breast cancer that spread to liver, bones and neck. I was 1st diagnosed in April 2005 and had it come back in Nov. 2008. I am still here. My oncologist told me Stage IV cancer is treatable, but not curable. I am having to change chemos as the one I have been on, 4 years, has stopped working. The good news is, there are many chemos out there for Stage IV breast cancer. We will try another until we find one that works. If you prepare for the worst, you will probably end up worse. Quit reading everything you find on the internet. It is too overwhelming and we are each such a unique case. And don't forget about putting the number one healer in charge of your life. God can help you in so many ways.

      over 3 years ago
    • PaulineJ's Avatar

      Gena >>>God bless you.Like your comment very much.

      over 3 years ago
    • dls1007's Avatar

      Yes, I can. My cancer metastisized to my spine in 1997 after first being diagnosed with Stage 1 BC in 1993. I was told when it spread to my spine to get my things in order. Thanks to my great oncologist and great surgeon at MD Anderson in Houston, I'm still here today. As of last April, I am fighting for a third time after a tumor showed up in the same spot as it did the first time. The cancer has spread to my lung and I have a spot on my spine, but I am still doing well. I work every day and live life like I have a chronic illness, not a death sentence. So you can see how long I've been dealing with this and I'm still living a normal and happy life.

      over 3 years ago
    • PaulineJ's Avatar

      dls1007 >>>God bless you.Like your comment very much.

      over 3 years ago
    • Risa's Avatar

      Hi Lisapitt007,

      I met a gal in the Chemo room who had Her2 breast cancer when her children were only 5 and 6 years old and was devastated. Her breast cancer spread to her lungs and she survived 17 years to see her children as young adults! We lost her last year.

      over 3 years ago
    • Cordy33's Avatar

      I was just diagnosed with met. breast cancer, Stg. 4 , in my bones. I have a monthly xgeva shot for bone strength and daily generic anti estrogen pill. For pain, 2 tylenol, 2x daily along with tramadol and celebrex. I try and meditate late afternoon and some days just stay home. I try and continue my very busy life as best I can. I hope this helps. good luck. Delie

      over 3 years ago
    • Nanajudy's Avatar

      It's been 4 yrs so far...stage IV breast lung l5 spine and liver......I'm doing great.....it's not as scary as it sounds ...stay strong msg me if you need

      over 3 years ago
    • geekling's Avatar

      This is where I pretty well intensely dislike western medicine. Obviously you are reading the wrong books!!! Choose new ones.

      Doctors can be OK with a diagnosis (not always perfect - they call it practice) but really awful with prognosis.

      My Mom was given 6 months at the outside (heart disease) so I decided to come to be with her in her last days. She died 18 years later. I am over a decade beyond my own expiration date.

      Sometimes a sharp right turn in lifestyle can make all the difference.

      Best wishes for you to discover a way to complete recovery.

      over 3 years ago
    • carter4's Avatar

      you are not alone in this - I have to live with a pain patch for my spine mets - but it gives me quality - hang in there - the worst for me when I first found out was that I was the only one going through this (everyone else was like 1,2 3 - not the same at all!) - reading others with stage 4 helps me out for some reason - you are LIVING with cancer not dying from it!

      over 3 years ago
    • Bug's Avatar

      I am not in your same situation but I would like to pass on what someone on this site said one time (and dls1007 alluded to this in her response) - "It's a diagnosis, not a death sentence." I try to remember that. Hugs to you, Lisapitt007.

      over 3 years ago
    • Grandy's Avatar

      My BC went to my liver, so I am stage IV too. My oncologist said the statistics are irrelevant for me, because I've had a mastectomy AND am taking Herceptin. ( I am HER2 positive, and herceptin has been like the new miracle drug.)

      And remember, I will be in the statistics in about 8yrs. or so, because they are studying me now. So by the time anyone is a statistic, there have been so MANY advances they are fairly outdated stats too.

      over 3 years ago
    • leslie48240's Avatar

      Absolutely!! Lisa...hang on "for dear life". Do get your family stuff in order so you don't have to fret over it...and then forget about that end. I also am/was stage IV breast cancer: but mine was spread to liver and spine. Now It's 5 1/2 years since diagnosis. 18 months of chemo worked for me. I am happy, active, and feel well. Honestly, still terrified every time I go for re-test...but so far clear. Each and every case is different...do what you can to fight back and make up your mind to enjoy every single day you can. You'll be surprised at some of the good that comes out of this nightmare. You can enjoy lots of things you took for granted before. Hugs!!

      over 3 years ago
    • Lisapitt007's Avatar

      Hi all! Is it possible to reply/respond to the answers? Can you msg people directly on here or is there a way to post something on their page? I have loved and appreciated all the answers and feedback that I have received, but I sometimes have questions for the people posting answers.

      over 3 years ago
    • GregP_WN's Avatar

      @Lisapitt007, you can reply to people individually by putting their user name like I did your's put the @ sign before their name, and just answer this question yourself. They will get a notice that someone has responded to them.

      Another way is to click on the person's user name, this will take you to their home page, you can then write on their wall. I prefer to just respond under the question, that way it keeps all the conversation about this question in context, all together. But you can do either way.

      As you can see the answer to your question is an overwhelming YES!!

      over 3 years ago
    • Clyde's Avatar

      Lisa, you can write on anyone's wall. Just click on their name.

      over 3 years ago
    • Clyde's Avatar

      As always, Greg has the better answer. Guess we crossed in the ether.

      over 3 years ago
    • Tallgrass69's Avatar

      Hi I am stag IV BC Mets to lung liver abd/pelvis bones The dr's brought hospice in I gave my kids 6and 9 too my sis n law This was Dec/2012 I refused hospice and starded chemo in Jan. took another P.E.T. in April and on the first day of Spring results showed It was gone from everywhere except for two spots on my left lower lobe and even they had shrunk. I am like you everything I was reading and being told was just bad news I'm still doing chemo 1 day a week. Im scared and I cry but Im fighting while im crying. I wish you all the best. not forgetting Jesus Prayer Works.

      over 3 years ago
    • Topazcat's Avatar

      Some of the best answers I have seen on this site!! It has given me hope and will help others out there in the same situation!!

      over 3 years ago
    • Peroll's Avatar

      Does hitting the 5% probability five times in a row count as giving you hope? I did it and you can too! I just wish it would apply to the lottery in my case too. But I will take surviving over the lottery any day. Good Luck!!!!

      over 3 years ago
    • BradsCancer's Avatar

      After main stream medicine has given up on you begin your own research. My son heard those words. He was given 3 months and lived more than a year on immune system boosters, Noxylane 4 and Essaic Tea, (green box). Must brew it yourself. Brad was looking good and doctors were amazed. He felt so good he went with friends to a fire burning. Toxic chemicals in his lungs sent him over the edge. Would he have lived if not for the fire, I'll never know. What I do know is what he was doing was helping.

      over 3 years ago

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