• Life after Taxol

    Asked by Valentinegirl on Sunday, December 2, 2012

    Life after Taxol

    A month ago, I completed chemo (4 AC and 4 Taxol). I tolerated the AC with minimal side effects, but the pain from the Taxol was brutal. Since I have completed treatment, I still have neuropathy and pain in my feet, difficulty sleeping, and pain in my legs (a colleague who is also a breast cancer survivor said that she was "arthritic" for about a year after treatment). Have others experienced this post Taxol, and if so, when did the symptoms resolve? Also,when can I expect my hair and eyelashes to grow back? It has been a month since my last treatment, and there is no sign of regrowth.

    16 Answers from the Community

    16 answers
    • karen1956's Avatar

      I had TAC (taxotere, adria and cytocin)....my hair started to grow about a month after chemo ended...of course this was just peach fuzz on my head....my eyelashes and eyebrows fell out after I finished chemo (and hair was growing back).....it took several months before the side effects from chemo went away...but they eventually subsided......insomnia was probably the last to resolve....gabapentin was helpful with neuropathy, joint pain and night sweats.....

      almost 4 years ago
    • FreeBird's Avatar

      With his first cancer, my dad had taxol and carboplatin. He had peripheral neuropathy in his feet, that went away after several months. My understanding is that sometimes neuropathy improves, and sometimes it does not. Hair grew back within 2-3 months.

      Ask your doctor what you might be able to take for the neuropathy if it's painful for you. Some people on here reported good results with gabapentin. I've also read about the possibility of using the antidepressant drug Cymbalta for chemotherapy induced peripheral neuropathy.

      Hope you feel better soon.

      almost 4 years ago
    • nancyjac's Avatar

      I completed chemo 8 months ago. I still have neuropathy in both hands and feet, but it has gotten somewhat better over time. I developed arthritis in one knee immediately following chemo, but I don't know if the chemo caused it or if it was just coincidental timing. I sometimes wake up during the night because of knee pain, but other than that have had no problems getting to sleep. I never lost my eyebrows and my hair started growing back a couple of weeks after my last treatment, but very slowly at first.

      Everybody is different though, those were just my experiences.

      almost 4 years ago
    • Cindy's Avatar

      I had Taxol and Carboplatin. I still have some neuropathy in my feet after a year and 7 months after my last treatment. It has improved over time. I still have the numbness feeling but the pain of even having sheets touch my feet has gone away. I still get cramps in my feet and calves about once or twice a day. I had enough hair to cover my scalp about 3 1/2 months after my last treatment.

      almost 4 years ago
    • JennyMiller's Avatar

      I also had 4 AC and 4 Taxol. Bone pain (in legs) will wake me up in early morning hours -- however, it will subside when I get up and move around. I am not sure if it is post taxol or a side effect of the Arimidex. My eyebrows and eyelashes fell out at the end of chemo -- and started growing back almost immediately. I had enough hair to cover my scalp and to go without my baseball cap in about 4 months. It has been 8 months now -- the back is getting long and is very soft and wavy -- the sides want to stick out -- and the top is shorter as it seems to be growing slower. The color is "salt & pepper". I used Nissan Shampoo which is supposed to stimulate growth. Not sure if it helped but I have to admit it is nice to have the hair back.

      almost 4 years ago
    • CountryGirl's Avatar

      I also had 4AC and 4 Taxol. Doses vary. My treatments were every two weeks. During Taxol chemo (jan-feb 2011) I had neuropathy up to my knees. Now it bothers me only from the ankle down. Now only the tips of my fingers vibrate with neuropathy.

      almost 4 years ago
    • princess123's Avatar

      I have been on chemo break for 2 months. My hair is about 1-2 inches. Some areas growing faster than others. My eyebrows are back. My eyelashes are about 1/4 inch long. Before chemo my hair grew fast.

      almost 4 years ago
    • leepenn's Avatar

      YES - it gets better - I PROMISE! I finished up in January... and yesterday, I spent over five hours on a bike with a bunch of hammerheads (people who like to ride fast). And, it was GLORIOUS!!!! I'm not fully 100% again, and I still have stiffness that I have to work out in the morning, but it's no longer a challenge to bend over.

      You won't be bald for much longer....

      Be as active as you can. Your body will loosen up as you move... and you'll feel better and better, and it will help you sleep and get your energy back. What kinds of things do you like to do? I obviously love to ride bicycles, so that's what I do. And then some!

      I hope this helps. It will get better.

      almost 4 years ago
    • PrettyToes' Avatar

      Talk to your onc about trying gabapentin for your peripheral neuropathy. Sometimes they may choose do prescribe lyrica , but it tends to cause more sedation. That is ok at bedtime , but often not well tolerated during the day for that reason. But like anything else, each of us reacts differently . Try one or both of these to see what helps the best .

      While getting lymphedema treatment from my physical therapist, I casually mentioned my peripheral neuropathy in my feet. She started doing laser therapy and phototherapy on my feet for the peripheral neuropathy . It helped a lot!!!!! You might call around, and see if any physical therapist near you is doing this. Perhaps one working with other cancer patients in your area.

      I had 4 tx of FAC, followed by 12 tx of taxol. My hair is growing back. Dont remember when it started growing.It's been 8 mths since very first tx. Could go without a wig. Hair still short. But eyebrow and lashes are slow to come back. Good luck!

      almost 4 years ago
    • JudithCST's Avatar

      I had the same treatment protocol as you and had a lot of problems from the Taxol/Benadryl/Steroids. I finished chemo on September 10 and I still sometimes feel like someone is hitting me on the toes with a hammer. I also have restless leg syndrome on occasion. I'm told this will all go away. As for my hair, I started to see signs of growth about a month after the last treatment. I have eyebrows again, and my eyelashes are short, but they're growing back. For neuropathy, there is a topical OTC medication called Neurogen or Neurogel (two forms) and it has helped me a lot with the tingling/itching/burning in my feet. I got it at Walgreen's. Hang in there... it just takes some time for all this stuff to resolve itself.

      almost 4 years ago
    • Nancebeth's Avatar

      I was on CMF (cytoxen, methyltrexate and 5FU) for 6 sessions. I had neuropathy in my hands and feet during treatment. I had arthritis before cancer and it seems to have gotten worse, especially in my fingers. The chemo also caused some cartilege degeneration in my knee. I used Latisse for my eyelashes and they grew back much faster and longer.

      almost 4 years ago
    • galiher7's Avatar

      Everyone's symthoms and meds are different. I finished Taxol in Aug. 2011 and I still have neuropathy in my fingers and feet just as bad as it was during chemo. I have tried a lot of different meds for pain and nothing has helped. When I go to the dr. this month, I'm going to try a higher dose of gabapentin, hoping that I can get some relief. My job requires me to be on my feet and they really hurt by the time I get home. I don't know if the neuropathy is causing arthritis in my hands or if it's just age. My hair and lashes were slow coming back, about 4-5 months. I have been told that the neuropathy may ease or it may never go away. Good luck to you. Be optimistic. Ruth

      almost 4 years ago
    • sunne's Avatar

      congrats on completing chemo, I'm a few months out of chemo & radiation and also experienced severe neuropathy, and pain in my feet & legs it is getting much better now, and you will too.
      my hair started to grow back a couple of months after chemo, my eyelashes and brows were last because they were the last to go, please stay positive, and good luck.

      almost 4 years ago
    • Nomadicme's Avatar

      I too had Taxol pain, apparently 25% of us experience it, lucky huh? The pain was brutal, it felt like when I had a bad bout of flu. My pain passed after the chemo ended, but we're not all built the same. The onc offered me strong pain meds which I declined, didn't want anymore strain on my liver and kidneys (I did pop Tylenol like it was going out of style, so probably should have taken the other pain killers). Hope your issue resolves sooner rather than later (I a vision issues which are apparently a side effect my onc had not ever seen, but given all the XXX I was on he said I believe it's happening to you. Good news, that went away too).

      almost 4 years ago
    • Nomadicme's Avatar

      Hair and eyelashes. I highly recommend monoxidil (non branded rogaine). I believe it helped me big time with my hair growth. My hair came back thick and strong two weeks after my starting the monoxidil (went 3 weeks without even fuzz, was despairing).
      For the lashes and eyebrows I used latisse, which helped, BUT I ended up getting an ye infection from using the stuff which caused my lashes to fall, and that was unnecessary trauma. I also have brown eyes so using latisse is no big deal (it can darken blue, green, or any light eyes).

      almost 4 years ago
    • Nomadicme's Avatar

      Oh I had he same chemo you did, plus Herceptin, 4 and 4, dose dense

      almost 4 years ago

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