• Long term side effects of Whole Brain Radiation

    Asked by vpi992000 on Sunday, May 26, 2019

    Long term side effects of Whole Brain Radiation

    My wife was diagnosed with stage 4 NSCLC in February 2013 and it metastasized to her brain that summer. She received 10 WBRT and between that, chemo, and Alecensa she's held her own pretty good. But over the last few months she can hardly walk and has started have weird hallucinations. Just wondering if anyone else is seeing this too?

    3 Answers from the Community

    • LiveWithCancer's Avatar
      LiveWithCancer

      Has she had a brain scan? Are they sure there are not new tumors causing the trouble?

      5 months ago
    • wmsavs' Avatar
      wmsavs

      What type(s) of testing-Pet CT or MRI is/has doctor prescribed? Does she have any back pain with the decline in her ability to walk? How frequent have these hallucinations been? You should bring these to her doctor's attention so he can properly follow her.

      5 months ago
    • BudBandit's Avatar
      BudBandit

      my radiologist said I wouldn't remember my name or who I was talking to in a year or two,he also said it was just going to slow down the growth in my my brain...for 2-4 months but the cancer also spread to my spine and too dangerous for radiation.I tried the chemo mix 1 time,my nerves have been shot since then,always shaking.Since both doctors recommended Hospice,I have been under their care for a month or so.I finally lost most of the side effects from the treatments except the shaking,eating better,I am able to get up and go sit in the shade on the deck instead of laying flat on my back starving or throwing up.My memory from previous brain radiation is shot,I I still know everybody and things in the past but recent conversations I forget if I asked them the same thing twice or not,it might have been the chemo,who knows.In the end end its all in Gods plan any how so I have no idea how this will turn out.Good luck with your journeys and I wish you all the best.

      5 months ago

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