• Longsurf

    Asked by Hellbent on Monday, September 11, 2017


    For my husband with Stage IV metastatic colon cancer, can you please tell me what experiences have you had with Longsurf?

    5 Answers from the Community

    5 answers
    • GregP_WN's Avatar

      Also searching our experiences tab for Lonsurf, I find three people that have reported experiences, here is the search https://www.whatnext.com/search/experiences?utf8=%E2%9C%93&search%5Bquery%5D=Lonsurf&commit=Search

      almost 3 years ago
    • Hellbent's Avatar

      Thank you both - Living with Cancer and GregP_WN for your thoughtful research, relentless follow up and feedback. I understand Lonsurf was approved by the FDA in 2016 and it's unforgiving side effects, particularly for one with already low blood counts, is not good news. Our immediate goal & efforts are to find a viable clinical trial match for my husband, but that too can be problematic. In any case, I'm hellbent and we're not giving up. Much appreciated.

      almost 3 years ago
    • LiveWithCancer's Avatar

      Hellbent, i was in a clinical trial for nivolumab (Opdivo) for 4 years. It was, quite literally, a life saver for me. I hope you find a viable trial.for your husband. Hellb ent is a good way to be when dealing with cancer...

      almost 3 years ago

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