• Looking for an Oncologist who specializes in both Esophageal and Neuroendocrine cancers

    Asked by Bjsj69 on Thursday, February 14, 2013

    Looking for an Oncologist who specializes in both Esophageal and Neuroendocrine cancers

    I live in Indiana and am frantically searching for an oncologist who specializes in both Esophageal cancer and Neuroendocrine carcinoma. My EC tumor is mixed, containing both adenocarcinoma and NEC, while only NEC was found in my liver (I am stage IV). After 6 aggressive chemo treatments, the tumor seemed to have responded so my current oncologist referred me for an esophagectomy but the surgeon recommends that I not have the surgery. I am in limbo right now and need to get a second oncologist opinion before deciding for or against the surgery. The only oncologist I have found works out of the University of Kentucky. Does anyone know of any other oncologists in the US that specialize in both EC and NEC?

    6 Answers from the Community

    6 answers
    • GregP_WN's Avatar

      We recently had someone searching over the US for a center to go to. She settled on IU I think it's the Simon Caner center. Have you checked there? There will be some of those same people that were in that conversation to give some feedback and suggestions. Be patient.

      over 4 years ago
    • chiefomni's Avatar

      I do not specifically know of an oncologist that specializes in both but I think a major cancer institute like MD ANDERSON Houston or MEMORIAL SLOAN-KETTERING CANCER CENTER in New York would be the places to check. There is a Dr. David Ilson at MSKCC that deals with esophageal cancer and he might be a person to contact.


      over 4 years ago
    • carm's Avatar

      Here is a link, I hope it will get you what you need, Carm RN.

      over 4 years ago
    • SueRae1's Avatar

      I am being treated for two active cancers at Columbia Presbyterian Hospital in north Manhattan. They have a great oncology department that work collaboratively with each other. When I was diagnosed with TNBC while under treatment for Advanced Kidney cancer the whole department reviewed my treatment plan.

      over 4 years ago
    • Queen_Tatiana's Avatar

      My husband is being semi cross treated at Cancer Care Alliance and UW/Valley Medical. His is all for the same cancer as it's metastasized to places colon cancer doesn't travel to which makes him unusual and a researchers dream to watch.

      over 4 years ago
    • Cmurphy's Avatar

      My husband is treated at UCSF. His esophageal tumor was high and surgery would have necessitated removing his voice box - and there was an issue as to how much tissue would be available to reconstruct the esophagus. There was no obvious cancer elsewhere although it had spread to distant lymph nodes. The surgeon was willing to do the surgery. The radiologist was firmly opposed and the tumor board recommended against surgery. My husband decided not to have the surgery which turned out to be the right decision for him. Cancer has never returned to the esophageal area due to the excellent work by the radiologist but, unfortunately, the cancer had already begun its spread elsewhere. He has been able to eat normally and keep his weight up during chemo. He can speak. This, alone, has been a huge factor in his quality of life. Each decision is different and sometimes you are left with making that decision in the midst of competing medical advice. In our case, we believe my husband made the right decision for him.

      over 4 years ago

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