• looking for experiences with taxol and herceptin

    Asked by Janni on Monday, May 30, 2016

    looking for experiences with taxol and herceptin

    I'm Her2 positive and starting 12 week once per week chemo this thurs. Have one breast not completely healed from surgery. Worried about infection and implant health as well. Already postponed one week due to lack of complete healing. Trying to stay positive !

    19 Answers from the Community

    19 answers
    • PinkPickle's Avatar

      I'm a 6 year survivor and has Herceptin Taxol and Carboplatin (TCH) as my regime I had 6 rounds of all 3 Then a year of Herceptin. I didn't have any "out of the ordinary side effects. My nails actually grew better. They had ever! About 3 days after each treatment I'd get Chemo fog for about a week. Just lethargic and sleepy. I took a walk every day, nothing major strenuous.
      I did get mouth sores around the 3rd treatment. Nothing horrible.
      When. I was on Herceptin alone I felt like I had a mild flu and my eyes watered. My hair started to grow in but was slow. Once the Herceptin was over, it grew in fast. 5 years after completing Chemo and Herceptin I feel pretty good! Only lasting aide effects I have are from my mastectomy surgery.
      Best of everything to you!

      over 5 years ago
    • Redsoxfan1129's Avatar

      Good morning - hope you are feeling well this morning Janice and that your treatment went well. My day was long, started at 10 and left right around 5. Went much better than I expected, although I wasn't really sure what I was expecting lol. I had a slight reaction to the taxol which made them stop it and give me more steroids and Benadryl. After that smooth sailing. Stopped for dinner on the way home, I was starving! I did feel the steroid affects as I was still wide awake at 11:30 last night. I took an Ativan as suggested and slept wonderfully. So far I feel good this morning, just groggy from the Ativan. The good news is we have 1 down and only 11 more to go!!

      over 5 years ago
    • Janni's Avatar

      Hi Ann I'm so happy things went well. Mine did too. I probably overdid but I did get the EMLA and gooped over the port as jouska (above) suggested. I put a piece of Saran Wrap over didn't need any tape since my bra held it in. I asked the nurse to spray anyway and I didn't feel a thing. We did the hour of premeds including benedryl then went right to taxol. Reason we didn't do taxol last is I'm using a cold cap therapy for hair preservation and that itself is a process. I have to change the cap every 20 min and it is done b4, during and 4 hrs after chemo. left at 430 pm. Finished up at home by 615. Took longer on the taxol since it was the first time and it was done prior to herceptin they dripped slower. I took anti nausea b4 as a precaution, skelaxin ( muscle relaxer for my chest after mastectomy) and Ativan. I slept between every cap change until mid afternoon !

      Brought protein Pack in to eat and salad for my helpers BUT had weight watchers
      Ice cream when I got home. Double. Maybe triple. Don't be fooled by weight watchers -ice cream is ice cream. Makes me feel better indulging ! Feel good today and nurses told me by mid July as white blood count goes lower will expect to be more fatigued. We also have to closely monitor the one breast that had not yet completely healed from surgery as we don't want the good new tissue to be eaten by chemo. So enjoy your weekend ! More to come with round two! J

      over 5 years ago

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