• looking for stage 4 throat cancer patients

    Asked by dar237 on Sunday, March 15, 2015

    looking for stage 4 throat cancer patients

    We are new to all of this. doc appt. Blood work. Feeding tube. next we start treatments. just looking for some insight or help, what maybe helped you and now looking back wish you could do over to help with pain or mouth sores.

    3 Answers from the Community

    • Danfan714's Avatar

      I was diagnosed in March 2012 so it has been 3 years. I started with chemo and radiation. The chemo was OK, but the radiation kicked my butt. I have scars all over my neck and it made for a really difficult 5 months. Use whatever is recommended, I used a hydrating ointment after trying everything. With the mouth rinse I used I never got any mouth sores was prescription and not inexpensive called Caphosol. It worked amazingly. One mistake I made was not getting my teeth taken out before. I am going through that now and it is as bad as the treatment was. If you have the choice, do it now. I have been using my feeding tube for a few years now; it's just something you have to get used to. Flush it with water after every use. Unfortunately I am still in pain, was in pain through the treatment but Tylenol works for 4 hours a time and you muddle through it. The worst side effect is what they call 'chemo brain' (I believe that it is caused by the radiation), I lose my train of thought, words escape me...a lot, find myself unable to finish sentences in conversation, stuff like that. It is seriously frustrating.
      What I found worked for me was maintaining the most positive attitude I could. Ever meditate? Try it, it works. Surround yourself with as much positive energy as possible. Travel if you can.
      Any questions you have I will answer to the best of my recollection.
      This site is a wealth of information and camaraderie. Use it. I certainly do. Best of Luck to you. Sending positive vibes.

      over 6 years ago
    • Kebohs' Avatar

      I was diagnosed 3/14. I had surgery on 3/27/14,on my 63rd Birthday so I'm coming up to my one year anniversary. I was diagnosed with squamous cell carcinoma of my left tonsil remnant with two positive lymph nodes. I had surgery. Left tonsillectomy and a partial neck dissection. 22 nodes were removed.of the 2 that were positive the Cancer remained encapsulated which was a good thing. I did not have chemo. I had 6 weeks of Radiation. 30 treatments. It was very hard to do but, I never missed a treatment. I kept my eye on the prize. Not everyone has the same after effects. I did not need a feeding tube. I did go to the dentist before I started treatment thigh and had one tooth pulled and had dental trays made so I could do flouride treatments on my teeth every day.ome year later and I am using the flouride every day. It is a prescription brand called preventident gel. I recommend it. My teeth a in good shape so far. I used Silvadene cream on my neck when the burns got bad and it helped. That is also a prescription. I rinsed my mouth with Biotin mouthwash,used their other products too. Eating was tough because everything tasted horrible. I ate a lot of cream of wheat. I still eat it because I like it! Drank instant breakfast too. Let us know if you need any pointers as you go through your journey to wellness.there are some really awesome people here!

      over 6 years ago
    • krbrowndog's Avatar

      I was diagnosed with squamous cell carcinoma of the lower pallett. At first it was a pea sized growth under my tongue which was removed (before it was known as cancerous). I believe that this procedure is what spread the cancer. Next was major surgery. All my bottom teeth removed, 82 lymph nodes in my neck. part of my tongue. trache' feeding tube, misery. After a year of healing posts were installed in my lower jaw (for future teeth). After about 6 months the cancer came back and more surgery, removal of the four (expensive) implants and then radiation. So far so good, its been two years now and no cancer, long time to heal due to nerve damage from the radiation. I was grateful that I didn't have to have more radical surgery and lose my jaw and maybe more. I will never get any lower teeth as my tongue and jaw are pretty much gone. I have had lots of support from my family and especially my wife, without whom my recovery may not have even happened, she is very strong as is the rest of my family. with a strong belief in God and his power we all have recoverd and are still doing so. My best advice to you is to pray, get second opinions, GET SECOND OPINIONS, SECOND OPINIONS. You may avoid a lot of what I had to go through.

      over 6 years ago

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