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    Lung cancer, what online resources did you find the most helpful?

    Asked by WhatNextEmails on Tuesday, March 26, 2013

    Lung cancer, what online resources did you find the most helpful?

    We need your help again. We're working to improve our resources page and want to know, What online resources did you find the most helpful? For example, did you google your diagnoses? What cancer sites did you find? Did you look for financial resources, help with prescriptions, help with treatment expenses? Travel expenses, or a treatment center? Give us the run down of the first 48 hrs after you were diagnosed that you spent online. What did you want to know? And did you find it?

    With this information we can develop more resources for our fellow WhatNexters to help them find the help they are looking for, as quickly as possible. Give your tips and resources you found helpful and we may use your information in our articles to help others in the future.

    2 Answers from the Community

    • greensmythe's Avatar

      Since I was diagnosed with Stage IV lung cancer on November 12, 2012- I have actually been climbing a mountain in the dark. Because my profession is writer/ researcher I was more adept at finding information than many. I began keeping a blog in January at


      What I found was that it is important to try to find local resources as well as online resources. My best help came from this site in the beginning from Harry and Shoeless who pointed me toward IU Simon Cancer Center.

      However, I think the biggest obstacle that those of us who are living with lung cancer face is the lack of information at time of diagnosis and the confusion that that sets forth. Not everyone has the energy or even the motivation to seek out all the answers that are needed.

      I have gone to Inspire.com and gotten a lot of good information there because they have a thriving lung cancer community. My own hometown of Fort Wayne, Indiana has no support group specifically for lung cancer so if I need face to face support I would need to go to a general meeting.

      Just putting in lung cancer in google, in my opinion is a frightening action. There are too many statistics out there that are old and will scare the newly diagnosed. In the past three months I have written 51 articles/posts in relationship to my own experience with this beast and although they are not researched, they are my experience and I hope they can help in some way.

      over 4 years ago
    • llmclyn's Avatar

      Good morning, I will try to keep my answer short. When I was first diagnosed I was visiting my sister in Virginia. I am from California. After feeling fatigue since Thanksgiving & now its Xmas and I am still not feeling well, my husband finally convinced me by long distance to go an emergency clinic. After a day of x-rays, pet scans and an emergency room drainage of fluid of a collapsed right lung- I was given my diagnosis & a folder of patient information to read, steps I need to take etc.

      Anyway, before coming back to California and start treatment. I did some internet research and found an excellent resource in the National Lung Cancer Partnership Alliance. Its National Lungcancerpartnership.org. Its has been a great source of answers to my questions, new information on lung cancer research & ways to give back as well. God bless. Hope it helps. [email redacted]

      over 4 years ago

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