• Lymph nodes

    Asked by SandiA on Friday, February 8, 2019

    Lymph nodes

    Hi! I had my 4 month scans. I have been off treatment since July 2016. Was really hoping I would hear okay let’s go to six months, but no. Two lymph nodes in my neck have increased in size. That’s my primary site. He said still normal size but larger than 4 months ago. Of course we are hoping for an infection but report said possibly metastatic. Never words you want to hear. Anyone else have experience with lymph nodes increasing in size?

    5 Answers from the Community

    5 answers
    • carm's Avatar

      I can imagine how frustrated you are. It could very well be an infection however, you have to consider every scenario. The lymph nodes are where your immune system brings invaders marked for destruction, so clearly your immune system is working. Once that is done, then those lymph nodes are flooded with T Cells so it is possible that the enlargement could be the rush of those immune cells crowding into the node. Let's think positive and know that you have many here to lean on and I count myself among the many. Best of luck to you.

      3 months ago
    • GregP_WN's Avatar

      All three of my Dxs were found by enlarged lymph nodes, so each time I have one I think the worst. I've had several and most always it's been nothing. Except for the 3 of course. Hoping it's nothing for you too.

      3 months ago
    • LiveWithCancer's Avatar

      I did. The supraclavicle lymph node (collarbone) was where my metastatic cancer was first discovered. After 4 years on Opdivo, the tumor started growing again. I had to have it radiated (or, rather, I chose to have it radiated. My oncologist wanted me to wait and join another clinical trial). I've been stable again for the last 18 months or so.

      Good luck! I hope it ends up just being an infection, but the scans are doing their job and catching problems early. I'm sorry you didn't get the news you were hoping for. That's hard :(

      3 months ago

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