• Mantle Cell Lymphoma

    Asked by Ellie59 on Thursday, September 24, 2015

    Mantle Cell Lymphoma

    Feeling frustrated about long term side effects. Can't even bake. Hard to mix, hard to remember what I am doing. Hard to keep my
    Hands from trembling when I poor liquids.
    My new normal.
    I was a silversmith. Now my hand trembles so much! It is impossible to hold a torch.
    Today when attempting to bake I burst into tears.

    I am alive when so many others aren't. I really have NO right to complain.
    Hard day

    8 Answers from the Community

    8 answers
    • Santana's Avatar
      Santana

      It will pass. When I feel I had a rough day and hate that I can no longer do one more thing. I focus on the things I can still do. Some times all I can do is smile. That awalys make me feel better. But as soon I xan i always push it and try hard to test my limits. Glad I am able walk today Jan I was heading toward paralyses and in a wheelchair.
      Plus remember we are Marathon runners now.
      Peaceful vibes
      Santana

      over 5 years ago
    • greytmomm's Avatar
      greytmomm

      Yes feel free to complain then let it go. You are right on target it's a new normal. It's not really beating cancer, it's living with the side effects. I can't do many of the things I could do only 3 shot years ago. Radiation fibrosis is what I live with not and a bunch of other fun filled things. Some days I cry out with frustration too. You will learn to adapt to your new normal. God Bless you

      over 5 years ago
    • dboland30's Avatar
      dboland30

      I had an autologous stem-cell transplant4 years and 4 months ago. I still have chemo-brain, but it's a little better. The neuropathy seems to very in severity but is always there, and I have noticed my hands shaking recently, but had not yet connected it to the chemo!

      But I'm still alive, as are you, and just trying to adjust to my new normal. Concentration is very difficult which sometimes interferes with my work

      Keep on fighting!

      over 5 years ago

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