• Medical Miracle Maybe

    Asked by Jalemans on Wednesday, September 14, 2016

    Medical Miracle Maybe

    dx= high grade uterine leiomyosarcoma with extensive vascular invasion & rare OLGC variant. prognosis= "extremely poor". Had scan on Friday. 28 months & no new tumors! I've read the journals with this OLGC & most people don't even live this long - let alone disease free. Even my onc is cautiously optimistic. I think I may be the first to be disease free for this long (although one woman lived for many years with the disease, most died within 2 years). She is telling me probably no more scans until something comes up. Yippee!

    So, I am hoping now that I will make it for another 2 years so my husband will be retirement age & I don't have to worry about the Munchkin. I feel like I can plan ahead for things now like maybe a vacation next year.

    Just thought I'd share. Thank you all for your support on this journey we call life. Jules

    20 Answers from the Community

    20 answers

    Help the community by answering this question:

    Create an account to post your answer Already have an account? Sign in!

    By using WhatNext, you agree to our User Agreement, and Privacy Policy


    Read and answer more uterine leiomyosarcoma questions.  Also, don't forget to check out our Uterine Leiomyosarcoma page.