• Mediport Nonaccessible swelling pain

    Asked by RobinCen on Tuesday, March 4, 2014

    Mediport Nonaccessible swelling pain

    I have had a mediport for 4 weeks now. Since the surgery I have had extreme painful swelling in my neck and left breast. I have been to the ER and seen my surgeons assistant twice. Ive been to the cancer center to have it flushed but it was so swollen they wouldnt touch it. Then I went to have a dye ran through it to see if it was placed correctly. Once again, even with the help of xray it could not be accessed because of the severe swelling. The radiology guy said he thought he got it but it wouldnt flush or draw blood. He thought it may be kinked. I am miserable, grouchy, in pain and sleeping a lot. I havent laid eyes on my surgeon since he put it in although he has been notified numerous times. I have another appt with him today but there is no assurance it will be him that I see. It is not infected. It is so awful I cant stand it anymore. The office wont give me pain meds, just Zofran for the nausea. Has anyone else had so much trouble? What should I do?

    5 Answers from the Community

    5 answers
    • lilymadeline's Avatar
      lilymadeline

      Hi Robin,
      What should you do? You should have your port taken out as soon as possible.
      And I am so sorry that you are going through this! Most of us have had some awful side effects from cancer treatments but this sounds like a complete nightmare, ugh! And they need to do something about the swelling, have they done an ultrasound and checked for blood clots? Is it hot? Are your veins more pronounced on that arm? That is probably the first thing that they looked for but I am asking because swelling and pronounced veins can be a sign of blood clots and that is extremely serious.
      OK, I had some serious problems with my powerport, it caused a ton of problems including infections and blood clots and they had to take it out. I got through treatment with it but just barely, and honestly I do wish that I had it out sooner because if I had known how bad it would get I would have saved myself a lot of pain. So please have your mediport taken out. My body rejected my port and it sounds your body rejected yours as well. I have Lupus by the way and we though that might have been the reason my port was rejected but that is only a wild guess. But if you have any other health problems besides cancer it could be a factor.
      I hope that you appointment goes well today and that you see the surgeon who put in the port, but it is also possible that he might of messed something up so maybe it would be better to see a different surgeon. And if you aren't getting anywhere with your doctors about this, get a second opinion on your port- go to a different hospital and a different cancer center. It is a big pain but you might have to.
      Good luck and god bless!

      over 6 years ago
    • HOBO's Avatar
      HOBO

      Sorry to hear about all your troubles. I could not have made it without my port but then, I was lucky and have had very little issues. My port is tipped and does have scar tissue which makes access a little more difficult, but it has been nothing compared to trying to get blood out of my arms. Keep us posted. Sending warm hugs.

      Jane

      over 6 years ago
    • RobinCen's Avatar
      RobinCen

      Thank you for answering. I did get to see my surgeon finally. He says the swelling is not from the port even though I had NO problems before placement. He is going to try to access it himself next week. If it works Great, if not, I have no idea what he is going to do. I only had it put in because of poor veins. I dont have chemo or anything of that nature. I regret hving it done. It was suppose to save me from being stuck 30--40 times each time I needed bloodwork or an IV. I am still getting needle sticks and several unsuccessful attempts to access the port.

      over 6 years ago
    • HOBO's Avatar
      HOBO

      Due to having shingles on the side of my port the nurses won't access my port until the shingles are gone. So for the past two weeks they have done my blood draws in my arms. Yesterday they pokes me five time and finally got a vein in my hand. By the time they were done I as distraught. Great example of why my port has been a very good thing. I hope they get your issues resolved.

      over 6 years ago
    • Tiger29's Avatar
      Tiger29

      I have port placement twice. The first one flip, now the 2nd, my neck swells up. I went to ER last night but have to wait till next day for dr. to see. Final Verdict, Cancer Surgeon will not touch my port because another Doctor placed it on my chest. So now waiting to be sent to original Doctor for 2nd port removal. What a life. I have had three surgery in 4 months and it is really taking a toll out of my body. I don't want to blame the original doctor original doctor for port malfunction. One of you maybe right, could be my body is rejecting the port. Suggestion for me and the others who have the same problem, go back to the same doctor who placed the port. Other doctors will not touch your port. Whoever place it take.

      over 1 year ago

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