• melanoma situ found, wide excision done plus 4 "suspicious" moles excised. path reports show pos melanoma x 4.... highrisk and scared...

    Asked by avahannkirk08 on Saturday, September 8, 2012

    melanoma situ found, wide excision done plus 4 "suspicious" moles excised. path reports show pos melanoma x 4.... highrisk and scared...

    im confused on what my treatment plan ... fam history melanoma, fair skin with blue eyes, over 200 moles on body, numerous birns during adolecense, and im not proud of this last one, negligence was related to poor education. never followed by a dr, no insurance for many yrs. finally one o m hundreds of moles kept getting bigger/ darker/dr shave biopsy resulting in my first melana diagnosis... now have a history of 5/5 melanoma & dr tells me to keep an eye on moles.... hello! i have over 200 spots on me & its so overwhelming trying to keep track of every tiny change! i have given it aduquate attempts yet so fusturating & discouragingi never successfully complete this important task ! whats to say all the other spots dont have melanoma invadion ? do all melanomas present with the abc's of melanoma ? are my risk factors worrisome to my dr and a total of 5 melanomas cause any concern to my provider? i dont know what to do or what queations to ask about requesting more tests!

    6 Answers from the Community

    6 answers
    • FreeBird's Avatar

      Hello. I'm not really familiar with melanoma. But here's a booklet from the National Cancer Institute http://www.cancer.gov/cancertopics/wyntk/skin.pdf
      or you can also order a free copy of that here https://pubs.cancer.gov/ncipl/detail.aspx?prodid=P196

      The American Cancer Society has information here http://www.cancer.org/Cancer/SkinCancer-Melanoma/index

      Both the American Cancer Society and the National Cancer Institute have ways to contact them on their websites for additional information, or to ask questions. www.cancer.org and www.cancer.gov

      No sense worrying about the past. We don't get an owners manual when we're born, and we learn as we go.

      If you check with local hospitals, they might be able to direct you to free skin cancer screenings where someone can help. You would need a computer program, or schedule and good record keeping system to track that many moles and measure change over time. I don't think that's very practical. They probably just mean to scan over your body and see if any of those characteristics they define stand out at you. That's a good question for one of those websites.

      Good luck.

      about 4 years ago
    • Clyde's Avatar

      Hello. Take a deep breath. You can't change the past, but you can alter the future. Don't obsess about moles changing. What they want you to watch for is just what you already caught, a mole that is changing dramatically. Go to a dermatologist and have a head to toe exam done. They should be able to point out which moles in particular you should watch (this changes over time as I found the hard way, so go back every 6 months or so). This exam isn't invasive and shouldn't cost that much, but well worth it for peace of mind. Don't worry about asking questions either. Your Dr. should be willing to answer them easily. Try to look at yourself objectively. Write down your questions to take with you to your Dr. so you don't forget them. It will get easier. Good luck.

      about 4 years ago
    • Mindy91's Avatar

      Did your doctor's discuss with you the staging of your tumors? Are you or did you have any chemo? You have a lot of high risk factors for reoccurrence and you do need to be monitored closely. I agree with Clyde and seeking out a dermatologist. This would also give you a second opinion on your situation. Maybe think about brining a family member or close friend with you to the appointment. It's hard to remember all your questions and remember everything the doctor says. This person can help ask questions and write down what the doctor says. Stay strong.....

      about 4 years ago
    • theresarae's Avatar

      I totally understand how you feel. My family calls me their hypochondriac. Yes its true. It also saved my life. I am a breast cancer survivor. Had moh's surgery to remove what was a squamous cell tumor on my eyebrow and last but not least a very small freckle looking spot which turned out to be melanoma. Like you I'm covered head to toe, but in freckles. The melanoma spot I didn't find. My Dermatologist found. I guess what I'm getting to is that my Dr. said to have someone else look at my body, like my husband or daughter. as It is totally impossible to be aware of all of the moles or freckles on your body. Take pictures of anything that looks suspicious and just watch it. Hang in there. I so grateful that there is this sight to get information from. The first time I started researching on the internet, I pretty much diagnosed myself as terminal when I'm not. Too much info can make you crazy. Hope this helps. So sorry for the rambling.

      about 4 years ago
    • Blepta's Avatar

      Hi, I had a melanoma in-situ 12 years ago. Mine was just a bit concerning on all four of the ABCD's, but had never changed as far as I could tell. It was on my chest so I could always see it clearly. The doctor gave me the option of removing it or waiting to see if there were any changes. I'm so glad I had it removed! Now I go to a dermatologist for a skin exam once each year, and have educated my husband about the signs to look for. If all of your moles were melanoma in-situ and not active melanoma, then your prognosis should be very good. Try to relax, and wear your sunscreen every day from now on!

      about 4 years ago
    • Cricket's Avatar

      Is mole mapping an option for you. I am part if a clinical trial and have my moles checked, photographed, measured and checked digitally for changes every month. Have at least 100 on my body, but only 18 are checked monthly. The others are normal and not of concern. In addition the treatment I take Zelboraf is actually breaking down several of the 18 and they are slowly going away.

      about 4 years ago

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