• metasticized to brain in 2 parts

    Asked by andreajd on Wednesday, March 20, 2019

    metasticized to brain in 2 parts

    Need uplifting prayer and guidance. 6 1/2 years in.
    Just needed new lung biopsy to target. Now radiologist, oncologist local, and Moffit for insurance coverage. Weary, brains imploding

    9 Answers from the Community

    9 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      I'm sorry to read about the brain metastases, @andreajd. I will be praying for you.

      As I am sure you know, brain metastases aren't unusual for those of us with lung cancer. I think very frequently, they can be taken care of with some radiation. Is that what they're suggesting for you?

      On your profile, it said you did immunotherapy for a brief time. Did you start having issues from it?

      Again, I'm so sorry and I'll keep you in my prayers. I wish I could help more.

      4 months ago
    • Skyemberr's Avatar
      Skyemberr

      I have a friend with metastatic lung cancer that has gone to the brain and liver. He has been having some rough times, but they did sbrt radiation for the 7 small mets he's got to the brain. That has worked very well.

      For his chemo they did chemo with an immunotherapy at the same time.. He had very good improvement from that. Now he has to have chemo once a month for maintenance while we wait for an immunotherapy that can do more than keep him stable. I am not sure if he had to be on immunotherapy at this moment or not. I think he was on keytruda.

      Good luck and please keep coming back. There are people.on this site who know a lot more about lung cancer and available therapies than i do.

      4 months ago
    • andreajd's Avatar
      andreajd

      Thank yoU. I'm nervous because Moffitt seems focused on surgery on frontal lobe. Broca region is undoable, too dangerous).
      I thought I was just having a current lung biopsy. Only other was November, 2012.
      P.S. My insurance didn't cover Keytruda. There may be a new combo immunotherapy. (I can't take Opdivo). Local radiation in November was fairly successful on Broca, went from 14 to 9.

      4 months ago
    • Shortstuff's Avatar
      Shortstuff

      I am so sorry for your metastasis, and that you were unable to follow through with the Keyturda. But you’ve beaten the odds already at 6 1/2 years! So try to remind yourself every day of that, and of your strength because you can beat the odds again. A close friend with kidney cancer metastasized to brain has been treated at Moffit for years and years ( they’re the best in our area!) successfully, allowing him to be here with his children from toddler to now college age-his next goal is their weddings!

      4 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Why in the world will your insurance not cover a standard of care treatment (Keytruda)? I can't imagine that. I'm not arguing with you ... just indignant that your insurance is not covering a treatment that DOES cross the blood brain barrier and can be very effective. I guess your doctor tried arguing with the insurance company to no avail?

      Have you considered getting into a clinical trial? I don't know much about the ones that are out there right now, but I do know they're doing a lot of treatments with combo chemo/immunotherapy (as standard of care) and some of my friends have responded well to that. Seems like I have heard that they might be looking at a Yervoy-Opdivo combo, but you said you can't take Opdivo.

      You have had genomic testing, right? No targeted therapies are good options? (They aren't for me :( )

      You're in my prayers and in my thoughts.

      4 months ago
    • GregP_WN's Avatar
      GregP_WN (Best Answer!)

      I cannot help you with the drugs or metastasis part, I had two different types of cancer and different treatments. But, I want to wish you all the best on behalf of all of us here at WhatNext.

      4 months ago
    • andreajd's Avatar
      andreajd

      Radiologist gave me best news. No tumor in Frontal, just Broca has grown BUT
      There's some kind of reaction to the radiation that causes swelling, etc.
      and may not be cancer mass. He won't radiate and will MRI end of May!
      Thinks going to Moffitt in Tampa on Monday is great because if anyone can cut out
      surgically (safely), they can. Oncologist tomorrow and still have not found out about
      lung biopsy in Tampa. He said the decadron needs time to work to reduce
      the swelling. God is good. Feeling lifted in pray and positive healing.
      p.s. Called 3 referrals from CA Society about transport and lodging. Such loving ppl.
      Also, 211 (on phone) United Way gave me volunteermatch.org to sign up for household

      4 months ago
    • wmsavs' Avatar
      wmsavs

      Hi @andreajd. We are saying prayers for you. I was ready to suggest surgical removal if neurosurgeon can access metastasis followed by radiation to clean things up. Try this link for assistance with Keytruda when ready: https://www.keytruda.com/keytruda-patient-support-program/. Please keep us posted.

      4 months ago
    • andreacha's Avatar
      andreacha

      andreajd - I have added you to my prayer list. Let us know about your progress.

      4 months ago

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