• Mortality rates for NHL WHEN INMUNOTHERAPY IS NOT USED?

    Asked by LJacobson on Sunday, April 30, 2017

    Mortality rates for NHL WHEN INMUNOTHERAPY IS NOT USED?

    5 Answers from the Community

    5 answers
    • Schlegel's Avatar
      Schlegel

      I am not sure why you are asking this question. With Rituxan many of us with follicular lymphoma are surviving 15 to 20 years or more. I was diagnosed in 2005. Unfortunately, they did not have immunotherapy then, so I got chemo. Now I have most of the late term side effects. No more chemo for me.

      over 2 years ago
    • rene2's Avatar
      rene2

      My oncologist has never mentioned immunotherapy, beyond the Nuelasta. She also said that with Rituxan DLBC NHL is one of the most curable forms of blood cancer.

      I agree with @GregP_WN - I am not a statistic!

      over 2 years ago
    • po18guy's Avatar
      po18guy

      Immunotherapy is in its infancy. Thus, there are some serious problems with it. It is fairly easy to turn the immune system 'on' or re-program it for a specific purpose. The difficulty arises when it cannot regulate itself and begins attacking the body in a manner similar to graft-versus-host-disease following marrow or stem cell transplantation. It has a great future, but 'future' is the operative word.

      The thing about statistics is that they represent only populations and not individuals. They are an artificial mathematical construct made for research purposes and have zero bearing on us. On one level, it does not matter how others have done or are doing. What matters in our individual fights is how we re doing. Selfish? Not entirely, because the better we do, the better those who come after us will do. There are patients who have survived all cancers. No cancer is 100% fatal, despite the statistics, so the best course to chart is to be the outlier. By fighting, we create our own survival curves. My chance of being alive today is so infinitesimally small that there seems to be no word in the English language to describe it. I can 'live' with that.

      over 2 years ago

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