• JRP's Avatar

    MS and breast cancer

    Asked by JRP on Monday, March 31, 2014

    MS and breast cancer

    Have MS, now breast cancer. What impact does radiation and anti-hormone drug have on MS

    4 Answers from the Community

    4 answers
    • lilymadeline's Avatar
      lilymadeline

      I have a neurological case of Bechets disease which is somewhat similar to MS and Lupus as well...autoimmune diseases often come in clusters. And I have multiple primary cancers as well including estrogen positive BC. I've done lots of chemo, radiation, and I am on two hormone blockers. Believe it or not I am actually pretty healthy considering and I was a semi professional dancer before cancer despite the autoimmune diseases.
      The bad- I have gotten some really weird responses to cancer drugs and my body has overreacted, my oncologist has said that I am hyper sensitive and I have had more infections than usual as well. I am often running a fever, I have had a lot of eye problems, and terrible depression from the hormone blockers, severe hot flashes much worse than normal apparently, and this doesn't apply to you but I got severe neuropathy from the chemo, the worse case my oncologist has even known. My fatigue is also unusually overwhelming.
      The good- radiation and chemo both compromised my immune system and as you know autoimmune diseases are overactive immune systems, so my autoimmune diseases have more or less gone into remission. I am not longer getting mouth sores and I don't have seizures anymore which is huge. I also no longer get the rashes that I used to get from the Lupus, and I had absolutely no skin problems from radiation even though I had my chest and pelvic area radiated. So every cloud does have a silver lining. I think that I am the only person who stopped having mouth sores because of chemo.
      I wish that someone was studying cancer patients with autoimmune diseases, but so far nobody seems to be doing that, at least I haven't been able to find anyone. Your experience will probably be completely different that mine but I do think that you might surprise your oncologist with some unusual side effects. Good luck and god bless!

      almost 7 years ago
    • lilymadeline's Avatar
      lilymadeline

      You should probably give your oncologist your neurologist's contact information and vice versa, just in case something comes up where they need to talk to each other.

      almost 7 years ago
    • JRP's Avatar
      JRP

      Thank you, that is helpful. My oncologist and neurologist have each other's info and plan to talk. I just like to do my own fact finding too. Agree that studying co morbid cancer and autommune is necessary.

      almost 7 years ago
    • little_fut's Avatar
      little_fut

      I too have MS and Breast Cancer...OK that's not quite right, I kicked cancer in its butt...last treatments 7/13 (chemo) and 8/13 (radiation). I'm hoping ALL my doctor's are in contact with each other, but I doubt it. I know one doc will say it's due to chemo, the other will say it's due to radiation, then there's one who says that's your cancer causing it, while even another says it's MS. What I can say is, I have severe case of neuropathy, along with bunch of other issues. After all is said and done, I'm greatful to be alive. Sometimes it's very hard to differentiate the side effects of cancer and MS. I have what's referred as Re-occurring M.S. My experience is I'm always tired, can't take hot weather very well, my speech is off kilter at times, neuropathy is no joke, neither is Chemo Brain. I've become forgetful, (old timesrs, alzheimers, I say it's sometimers illness), am very suseptible to anything and everything..colds, flus probably the runs, if someone around me has it, I'll get it.I never know from min to min if I'm going to be ill or not, while headaches, joint-aches, slurred speech, mobility issues, eyesight drastically worsened(especially after chemo) and digestive problems are a few things I can say I am VERY FAMILIAR with..ok I apologgize, I forgot what what I was going to say, so I will stop for now and get my thoughts back together and will return..I'm sorry.

      almost 7 years ago

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