• my family is really scared chemo will wipe mom out. Has anybody tried radiation only due to same fears. Any regrets or positives?

    Asked by jodir on Friday, July 26, 2013

    my family is really scared chemo will wipe mom out. Has anybody tried radiation only due to same fears. Any regrets or positives?

    Also, we're hearing so many conflicting reports of oral chemo side effects. I'd appreciate any first-hand experiences anybody would like to share. Thanks.

    18 Answers from the Community

    18 answers
    • DaveWaz's Avatar
      DaveWaz

      A very dear uncle was diagnosed at the age of 81 with Glioblastoma. At the time he opted for surgery and then radiation. He did very well with the surgery and the radiation did tire hime but he also tolerated it well. At a later time, 6 months, he received a more direct radiation to the tumor area. When he started to regress he received an IV treatment and could not tolerate it and at that time decided to end treatments. One thing I did learn through this process is the fact that all of us want to live as long as possible and the extra time that radiation and chemo gives the individual brings some acceptance to the terminal disease. Blessings to your mother and the family.

      almost 8 years ago
    • PattieB's Avatar
      PattieB

      Dave, thank you for your reply. Maybe that will be the only gift in this. The process is helping with acceptance. It is such a mean and ugly disease.

      almost 8 years ago
    • PerryLowell's Avatar
      PerryLowell

      Jodi,

      My sister has inoperable GBM, she was diagnosed in June of 2012, had Temador and radiation and has been in remission until yesterday. They're going to start her on Avastin now, which has good results for recurrent GBM in giving a few more months.

      She didn't tolerate Temador well, as it plunged her platelets, and had to be taken off it, but radiation was easy on her. Most of her symptoms seemed to be because of the tumor itself, and not the treatments, other than the platelet thing which left her tired.

      -Perry-

      over 7 years ago

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