• My father just days ago was diagnosed with Non-Hodgkin's Lymphoma and is starting chemotherapy next week. What is best place to learn more?

    Asked by JAMMS4 on Tuesday, January 22, 2013

    My father just days ago was diagnosed with Non-Hodgkin's Lymphoma and is starting chemotherapy next week. What is best place to learn more?

    Is there a support system for Adult Children of People with Cancer? I am in Northern Virginia.

    9 Answers from the Community

    9 answers
    • carm's Avatar

      Hello and welcome to the site. I don't know what information you seek regarding chemotherapy but a great website is chemotherapyadvisor.com. It is free to join and on the right side of the page is a listing of cancers and their regimens. If you are seeking a support, might I recommend www.mycure.com? You can sign up for a free subscription to Cure magazine and your first issue will come with a valuable booklet full of resources. The magazine comes out 4 times a year and is free to patients, caregivers, and health care workers. I am an oncology nurse and I have been getting it since it's inception. Best of luck to you, Carm.

      almost 4 years ago
    • Harry's Avatar

      There are a lot of different types of NHL. What type does he have? And, what is the chemotherapy he will receive?

      almost 4 years ago
    • debbie1951's Avatar

      Welcome to the WhatNext website. There are many experienced NHL survivors on this wonderful website, so please reach out for information and support. My diagnosis was Diffuse Large B-Cell Non-Hodgkin Lymphoma (DLBCL NHL). My treatment was R-CHOP-21 chemo plus (25) Radiation Therapy. Treatment achieved complete remission and I am still symptom-free with no evidence of disease (NED) at 13 months from diagnosis.
      Chemotherapy is dependent upon the specific subtype of Non-Hodgkin's Lymphoma. There are 50+ subtypes, so once you know the NHL subtype, you can find the standard of care treatments on a great website. www.chemotherapyadvisor.com website.
      Another resource for information, support, and assistance is the Cancer Support Community chapter in your area. All services are free. There is a CSC office in the Washington, D.C. area.

      Cancer Support Community/The Wellness Center
      1050 17th Street Northwest #500, Washington, DC 20036
      Phone:(202)[phone number redacted]
      Transit: Farragut North Metro Station

      To learn more about CSC's free support programs and services in the DC area, please call[phone number redacted] or email [email redacted].
      Your father will do well. NHL is very treatable, sometimes even curable. My 76 year old uncle just celebrated 10 months from diagnosis with DLBCL Stage IV. He is doing great enjoying a complete remission.

      almost 4 years ago
    • jhale17's Avatar

      Here are a few sources on the web. As you gain more details after staging is completed and treatments are selected you can search additional sites to address those items.

      1. I have uses www.lls.org and their newsletter for years.
      The Leukemia & Lymphoma Society® - Official Website http://www.lls.org
      This page is your resource for information on all types of leukemia, lymphoma,
      myeloma, myelodysplastic syndromes and myeloproliferative ...

      2. http://curetoday.com Cure magazine comes out quarterly, is free and is on the web at curetoday.com

      3. http://www.cancer.gov/

      4. http://www.mayoclinic.com http://www.mayoclinic.com (for general information)

      almost 4 years ago
    • luvnlife's Avatar

      Please contact the Leukemia and Lymphoma Society. They are wonderful, kind, caring and have a wealth of information. In some cases they may be able to help financially.
      I had NHL in 1993, there have been alot of advances since then. Good luck to your father and family.

      almost 4 years ago
    • RachaelC@StF's Avatar
      RachaelC@StF Community Outreach Coordinator 317-528-7794

      Hi JAMMS4,
      If you go to the top of your webpage here on WhatNext, you'll find a purple tab. Click on resources, and enter your zip code. It will bring up any resources the American Cancer Society has to offer in your area.
      Sending good thoughts your way.

      almost 4 years ago
    • TinaJacques' Avatar

      Hello! Welcome to the club! I am a survivor of NHL also, a subtype called follicular. It's most common in males over the age of 60... I am female and was 25 at the time of diagnosis. I started a blog when I was diagnosed www.larrythelymphoma.com and I really like the support group on facebook which you can search for. It's called lymphoma and Hodgkin's disease awareness and survivor's club (it's for patients and care givers/family members). Lots of support and information there. This website has also been great.

      almost 4 years ago
    • Schlegel's Avatar

      Contact the Leukemia and Lymphoma Society, The Lymphoma Research Foundation, and the American Cancer Society. LLS and ACS have lots of good literature on a variety of subjects. LLS and LRF have good educational events. Also, I highly recommend the Smith Center in northwest Washington, D.C. This is a support center for cancer patients. There are some good cancer magazines. "CURE" is free to patients and family members. "Coping" is not free, but many hospitals pass it out. Check at the resource center of your cancer center.

      almost 4 years ago
    • bambi68's Avatar

      We were extremely lucky & got a nurse first visit in hospital who literally sat in the room with us for 45 minutes or more & gave us lots of info & answered all our questions! Try the American Cancer Society & you will find other connections there as well & your Dr. should know of meetings & support groups in your area where you may also get info. Good luck & prayers to you & your family!

      almost 4 years ago

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