• my husband has stage IV melanoma. He is BRAF positive and taing Zelboraf chemo pill this is the third month. How long does he have?

    Asked by christinapitts on Saturday, September 29, 2012

    my husband has stage IV melanoma. He is BRAF positive and taing Zelboraf chemo pill this is the third month. How long does he have?

    10 Answers from the Community

    10 answers
    • Peroll's Avatar

      If you are asking how long does he have to live, no one can answer that question but God. Any stastics that you are cited by doctors are at least 5 years old so the curent survivial rates are much better than what is being cited. Also remember that if they tell you 95% of all patients in his condition only last a year it means that at least 5% make it longer and somebody has to be in that 5% might as well be him!. I personally have hit the %5 part of the stastics five times in a row so you can tell how much I and my oncologist really believe in the stastics. If he does everything he is supposed to and takes the meds he has every chance to grow as old as he wishes. If there is any indication of things going bad immediately get to the doctor and if necessary look for new treatments that are being developed every day. Cancwer is not a death sentance and I am proof. He can fight this and have a long and happy life. Good luck!!!!!!!!!!!!!

      about 4 years ago
    • christinapitts' Avatar

      I love your attitude and I had the same in the beginning he has made it 3 years but it spread to his brain in February but he is also an acoholic which makes this very difficult I believe he would have a better chance if it werent for the heavy drinking. I dont know what to do anymore. thanks christina

      about 4 years ago
    • Peroll's Avatar

      Christina, don't give up yet. My cancer spread to my lungs a year after I finished my initial chemo,and I beat that back then three years later it showed up in a lymph node, and now it is in my adrenal gland (at least for another 3 1/2 weeks when I have surgery scheduled for removal). I have heard plenty of stories about people beating cancers that they were told were fatal. While the drinking might not help, it may not be the worst thing. If your husband really wants to beat the cancer he can. I would be happy to write him if he needs someone to talk to. You can write me too for help and support. I realize that when the cancer spreads it seems alot more serious,and it is but it can be beat. I know from my wife that sometimes the cancer is harder on the family than the patient. I am sure my wife would be happy to write you too. Just let us know what we can do to help and stay as positive as possible.

      about 4 years ago
    • Harry's Avatar

      As the others have said, there really is no answer. Everyone is different. Your husband's oncologist might be able to provide an estimate but, even so, it's just a best guess.

      Last year I met a man with the same type of rare incurable cancer I have. 12 years ago he lay in a hospital bed with his family gathered around him. He wasn't expected to live the night. He heard his doctor tell his wife that if he could live 24 hours there was a chance. He lived. Then he took a very risky treatment and is now cancer free. It happens. There is no certain outcome.

      Don't look at it as a death sentence. Savor each day you have together. It may be short, it may be long, there is no certainty. If religion is appropriate, let God do the worrying.

      about 4 years ago
    • SandiD's Avatar

      I think Peroll gave excellent advice. So I want to address addiction, having lived with and lost addicts in my life. I lost my mother and teenage son to it. Please get yourself to an Alanon meeting or get get some counseling for yourself. You can only save yourself! By taking good care of yourself you will be of much better support to your husband. Don't let cancer or alcoholism get you too! You have a lot on your plate. But your health and well being is every bit as important as your husband's. I am not saying to ignore your husband, I just don't want you to become a victim too. You matter!

      about 4 years ago
    • geekling's Avatar

      Only the Lord above knows for sure.

      It is a shame but that your hubby's habits are unhelpful.

      Has he not ever tried AA? Does he not understand his selfishness?

      Doubtless he is in pain. I am saddened that he is unable to see how he spreads his pains to those who love him. You must love him very much.

      My very deepest sympathies for your woes.

      about 4 years ago
    • bjsimme's Avatar

      I also have stage iv melanoma and on my 6 month of Zelboraf. The nurses who have called to check on me with Zelboraf say that most people taking this drug last about 6 1/2 months, but 1 person has been on it for 10 years. Peroll has answered you very well there are several different treatments at this time for melanoma. I have so many turmors they can't mention them all from my PET scans just keep on the prayer lists. Talk with hubby Dr or his nurse there may even be a support group at your Hospital. The cancer group does many different things at the hospials with support for patient and family also. I also have MD so I am different than others....hope this helps.

      about 4 years ago
    • Terri's Avatar

      Not to be negative, but my oncologist basically told me it is a end stage drug. I don't know if that is true because I have heard people being on it for years and doing well. he told me 9 months max and then it will probably stop working and you will have a lot more melanoma tumors. I was given 3 months to live in 2009. I am still here. So who knows?

      about 4 years ago
    • StrongSteph's Avatar

      Hello Christina, I am reading your question with a heavy heart. I am sad that your family is going through this... I want to share my story with you. In fall of 2010 I was diagnosed with stage IV melanoma. I had a large tumor under my left arm, which grew to 16 cm in size! I had lesions in my lungs, on my bones, and a "subcutaneous" tumor above my belly button. By the time I got into the hospital I was bad off! I found a speciality clinic in Santa Monica that, along with the John Wayne Cancer Center, saved my life. It is a horrible diagnosis and terrifying, but I am here, NED (No Evidence of Disease!) If you have any questions about my treatment and how I made it through, please contact me: you can call me, email me, ([email redacted]) or fb me.... Take Care!! There are those of us who have fought a stage IV diagnosis!

      about 4 years ago
    • JackieK's Avatar

      I have stage IV melanoma and have taken zelboraf as a treatment for two months and the good news is that it saved my life and that you can use it over and over again. Talk to his doctor about when to take zelboraf and when to come off of it before the resistance to it builds up in his body.

      over 2 years ago

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