• My husband has two types of cancer or three. The specialty doctors want to address their specialty and are not loooking at his issues as one

    Asked by 12ccw on Saturday, February 9, 2013

    My husband has two types of cancer or three. The specialty doctors want to address their specialty and are not loooking at his issues as one

    Anyone ever had this experience? What did you do?

    5 Answers from the Community

    5 answers
    • nancyjac's Avatar

      Do you mean he has totally different cancers or he has NHL in multiple places? In either case, it is good to have specialists on your team, including a surgeon, radiation oncologist, etc. but his medical oncologist should be coordinating the overall treatment plan.

      over 3 years ago
    • SueRae1's Avatar

      I am currently being treated for Advanced Kidney cancer and Metastasized TNBC. My kidney oncologist recommend my Breast oncologist, and they work as a team addressing the issues of treating both my cancers. Speak with the head of oncology about your concerns, also get a 2nd opinion on each of the cancers. Look for a team and cancer center that are willing to collaborate productively.

      over 3 years ago
    • grandmafran's Avatar

      I would definitely recommend a second opinion to look at your husband's medical condition as well as totally explain to both of you what is going on. Lymphoma can appear in several places at once but that doesn't mean it is several types of cancer. There is a cancer center in Tampa called the Moffitt Cancer Center (and other centers in Florida).
      Our cousin's wife lives in Florida and was diagnosed with lymphoma. Her local oncologist created a treatment plan for her. She went to the Moffitt Center for a second opinion and they took over her treatments which were far less aggressive. She has been doing great for 8 years. At the very least, a second opinion will help you understand your options, your overall condition and that you are getting the best advice.
      Knowledge is always power but with cancer it is essential. I am the same age as your husband and I have survived 18 years with lymphoma! Be your own best advocate. I know it is a very scary process for both of you but there is great hope these days.

      over 3 years ago
    • ElizaM's Avatar

      I know how helpless and confused you feel being told one thing by one doctor and something else by another, neither of which takes the whole person into consideration. My oncologist didn't care that I am diabetic and admitted he was only interested in killing cancer cells. I don't think my cardiologist is interested in the effects of chemotherapy either. I have only found someone to take a comprehensive look at my whole being and body by stepping outside the totally Western medicine world, and I have for years, worked with my Athroposophical doctor who took the regular Western medicine degrees then went further to incorporate a much more holistic approach acknowledging the value of regular medical treatment and incorporating them into a protocol that is working for me. You may find a doctor in some other field who you trust, but one where there is a way to view the entire person and all the aspects that play into the full picture. I guess it depends on where you live and what is available to you. I have tried to incorporate the best from both worlds but it really is up to you to be proactive in finding the care and treatments that suit your husband and that you can both agree to and live with.

      over 3 years ago
    • ElizaM's Avatar

      I do wish you well with this monumental search you are embarking on. Please know that there are many of us out there who know what it's like to be in your shoes, and there are also many alternatives than to swallow piecemeal what any one medical adviser may have to say. Trust your own "knowing" in your gut, and keep asking questions until you find the right fit for you. All the best to you and your husband in your quest, and to all of us with this invasive disease.

      over 3 years ago

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