• My husband is newly diagnosed with B cell Lymphoma. He is receiving Chop at the moment and I have so many questions.

    Asked by saraloh on Wednesday, July 11, 2012

    My husband is newly diagnosed with B cell Lymphoma. He is receiving Chop at the moment and I have so many questions.

    He just had his second round of chop without rituximab due to interstical lung disease. he has been infused with rituximab in the past for ITP and that is what caused the lung disease. We had a second opinion yesterday and the dr mentioned Epoch which will be even harder on his body. Has anyone had any experince with this. I am also concerned with him working and being immune suppressed to start from the ITP and adding the chemo on top of that. I am just wondering if anyone has any experience with this combo of diseases. My head is spinning with trying to make sure the love of my life is well as well as trying to keep my family afloat!

    3 Answers from the Community

    • GregP_WN's Avatar

      I had Hodgkins disease, twice, 20 years ago, and squamous cell carcinoma, 3.5 years ago. Not the same as what he is going through, but some similarities. I went through several operations, chemo, radiation, and worked through my treatments. Each person is different and reacts different to the treatments so it's hard to say if he can or can't work. You do have to be carefull to not be around sick people. I once was in the hospital for 10 days taking antibiotics for an infection I got internally. I don't even remember being around anyone sick either. It's just one of the things we have to watch. I don't know if I can help, but feel free to ask what you want, glad to tell about my experiences.

      Good luck in treatments, I wish you both the best.

      over 4 years ago
    • lucifee83's Avatar

      I haven't had to deal with that particular set - my husband has diffuse large b cell NHL - but R-CHOP therapy is taking a major toll on his immune system. Each round makes him neutropenic (low white count), so if your husband work around people, he needs to be SUPER careful. Anything from a cold on up could land his butt in the hospital. My husband had the side effect of severe diarrhea, and he got a blood infection from the diarrhea. Now he uses hand sanitizer like it's going extinct. It also tires him out. If your hubby is able to work, let him - the more "normal" a life he can have, the better. But use appropriate precautions, and warn him there will be days he just won't feel well enough to do it Most importantly, keep away from sick people, keep a mask around (just in case), and use sanitizer.

      about 4 years ago
    • erie94's Avatar

      I also had diffuse large B-cell lymphoma, I received R-chop, (not just CHOP). Sorry to hear that you are feeling that way. Hang in there. Hug!

      about 4 years ago

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