• My latest issue is my voice, or lack of it. I am losing it totally.

    Asked by GregP_WN on Sunday, January 13, 2019

    My latest issue is my voice, or lack of it. I am losing it totally.

    I just went for an annual checkup last week and was scoped. All is good inside my throat. The vocal cords are good. But I've been losing it slowly for a couple of years. My oncologist suggested to start taking Zyrtec in addition to flonase to try and completely dry my sniffles up. 3 days ago I woke up to no voice whatsoever. Just a whisper. I asked my doctor if I was going to eventually lose it altogether and she couldn't say. She said there was nothing wrong with the cords other than being "tight" from radiation. Sort of like how a piece of bacon will shrink up while frying it. That's what has happened inside my throat with everything that radiation touched. As we often say, "cancer-the gift that keeps on giving". Curious, has anyone here lost their voice completely due to treatments?

    32 Answers from the Community

    32 answers
    • beachbum5817's Avatar
      beachbum5817

      Greg, I am so sorry to hear this. I hope that there is something that will help your vocal chords work properly. When I had a polyp removed years ago from my vocal chords, I saw a speech pathologist to help me get my voice back, but I am sure you have probably done that. Sending prayers that this will be temporary. Take care.

      almost 2 years ago
    • cllinda's Avatar
      cllinda

      You have gone through so much! No I haven't had that happen but it seems Lymphedema is making quite a return. It's always something. Take care of yourself. It's the gift that is unexpected and not wanted. Ever!

      almost 2 years ago
    • banditwalker's Avatar
      banditwalker

      I kinda remember you saying you went thru' a throat stretch? Would that "iron" out the bacon wrinkles? Any way, I don't have that problem and I don't know where you go for treatment but a second opinion couldn't hurt. Keep us in the loop. Sorry.

      almost 2 years ago
    • GregP_WN's Avatar
      GregP_WN

      I have another stretching scheduled for sometime in the next month. I will say the last time I had it done all of a sudden I could speak much easier and didn't have the gravel in my voice. This is a little different than what I've had before. I'm down to only a whisper. I'm trying some remedies, breathing warm moist steam, drinking more water, and stopping my antihistamines. We shall see.

      almost 2 years ago
    • JaneA's Avatar
      JaneA

      Oh, Greg, I am so sorry. Hopefully, the stretching will help fix your voice too.

      almost 2 years ago
    • andreacha's Avatar
      andreacha

      Greg = I finally pulled my old computer out of the closet so I can interact more. At least what I write on this one won't disappear. I'm so sorry to hear about your problem with your voice. Do you think you should bother to first bring it to the attention of the person(s) that do the stretching? Let us know how it goes.

      almost 2 years ago
    • Carool's Avatar
      Carool

      Greg, I'm so sorry. I hope the stretching will once again enable you to talk much more easily and loudly. Please keep us posted.

      almost 2 years ago
    • faithfully58's Avatar
      faithfully58

      almost 2 years ago
    • jvbaseballmom2's Avatar
      jvbaseballmom2

      Oh no, Greg. So sorry to hear this. I had an issue where I lost my voice last year for several weeks. I was given two rounds of steroids which helped but my voice still wasn’t like it was before. After a lot of tests/scans to ensure it wasn’t cancer related, it was determined I had a weakened vocal cord. I did speech therapy which wasn’t too effective. They mentioned another option was Botox injections into the vocal cord area. I decided not to try that and I’m living with a semi-raspy voice. Not sure if this could be an option for you though. I hope you’re back to your full voice strength soon.

      almost 2 years ago
    • meyati's Avatar
      meyati

      Greg, having had my voice lost for months and months in 2017---I know part of what you are facing-- the many, many problems.

      Have you contacted a Speech Pathologist? They specialize in that.

      Thursday, I went in for my eyes. i told the first nurse that I had head radiation in 2013, and that left me with eyelid problems and dry eyes. Then I'll be 77 the 27th, which makes it worse. I thought that I had an eye infection it was so horrible. The nurse told me to quit talking about cancer or go to an oncologist.

      OK- the doctor comes in, and I said-- I had head radiation in 2013 which left me with eyelid problems and dry eyes. He thoroughly examined me, and he declared this is from head radiation from cancer, so I needed to start taking care of myself. I was given a handout that told me to use hot compresses-and I have been doing that since radiation. Then he told me to regularly use eye drops, instead of when I feel like it.

      So i doubled the hot eye compresses. OK--I keep the recommended eye drops in the kitchen, by the PC, in my purse, and on my night stand. So, since the visit, I put the night gel on my eyes every 12 day. That is helping me a lot. Because I was already doing what he told me to do.

      I was raking and bagging leaves after Thanksgiving, and that set my eyes off.

      almost 2 years ago
    • myb's Avatar
      myb

      So sorry to be reading this Greg.

      almost 2 years ago
    • Gumpus61's Avatar
      Gumpus61

      "who a man is speaks so loudly I need not hear what he says"...........keep tapping the keys Greg.

      almost 2 years ago
    • Jayne's Avatar
      Jayne

      Really sorry to hear about this, hope you find some answers very soon.

      almost 2 years ago
    • PaulineJ's Avatar
      PaulineJ

      So sorry.I'm lost for words.You've been through so much and still holding up all these years.And been there for us here.God Bless you and your wife.

      almost 2 years ago
    • Ashera's Avatar
      Ashera

      Ah Greg...so very sorry to hear of this new gift with purchase, that we all seem to be unwrapping without notice. I'll send positive energy to all your people that they have something new to improve your whisper! Communication is so much more than a loud voice - and you speak loudly and clearly to all of us everyday...and we listen. You are amazingly giving and you will be in our thoughts extra hard these next few weeks that a quick fix is found!

      almost 2 years ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Greg, I am also very sorry to to read this. I can not imagine a man with such a strong online voice having to whisper. I wish you good results with the stretching procedure and keeping everything I can cross , crossed.

      almost 2 years ago
    • carlie's Avatar
      carlie

      Greg, Sorry to hear you are having challenges with your voice. I'm praying you will find some improvement when your throat is stretched. Keep posting updates on your progress.

      almost 2 years ago
    • SandiA's Avatar
      SandiA

      Greg I am so sorry. Hoping that the stretching and some of Donna’s ideas will help.

      almost 2 years ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      I'm going to echo the speech therapy idea. Although I've maybe your employees and family are enjoying the quiet.... Hope you find your voice soon.

      almost 2 years ago
    • mtnraindancer's Avatar
      mtnraindancer

      Wishing you the best and sending you good energy...you do so much for this "family" and it appreciated more than you know!! Hugs your way!!

      almost 2 years ago
    • Bug's Avatar
      Bug

      I'm really sorry to hear this, Greg. I hope you find relief soon. BTW, my husband was using Flovent - unrelated to cancer - and he started losing his voice.

      almost 2 years ago
    • RubyFaye's Avatar
      RubyFaye

      My voice is very very raspy and many times it sounds like it is going out if I have been talking alot. My Onc, Primary and Hospice nurse tells me it is from the cancer in my brain. You are the first person I have heard from that is having the voice issue. I am so sorry to hear that and I will pray they find the cause and can fix you....

      almost 2 years ago
    • kalindria's Avatar
      kalindria

      Yikes! Sure hope the stretch helps.

      almost 2 years ago
    • Russ' Avatar
      Russ

      I am so sorry to hear about this Greg...hopefully all works out okay. You are in my prayers...Russ

      almost 2 years ago
    • DarylB's Avatar
      DarylB

      Greg, in the name of Jesus, I declare this is a minor set back. God has the answer for your problem. I pray that you take time to quiet your surroundings and your mind and listen for the soft voice of the Lord giving you His recovery treatment. Blessings!!

      almost 2 years ago
    • andreacha's Avatar
      andreacha

      So sorry, Greg. Hope you recover soon. Prayers from GA.

      almost 2 years ago
    • meyati's Avatar
      meyati

      Don't over-do it. We want you you to be able to yell and sing--

      almost 2 years ago
    • GregP_WN's Avatar
      GregP_WN

      I did tell my Oncologist last Monday that I was going to have to quit my music job since she wasn't able to restore my "Steve Perry" singing voice.

      almost 2 years ago
    • Ilovemydoc's Avatar
      Ilovemydoc

      Oh I am so sorry Greg! Hopefully they will stretch out again. Maybe a speech therapist could help. Keeping you in my prayers

      almost 2 years ago
    • Jayne's Avatar
      Jayne

      Hey, Greg....how is the voice situation going?

      almost 2 years ago

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