• My oncologist is changing drugs

    Asked by Jesse0218 on Sunday, December 15, 2019

    My oncologist is changing drugs

    I was all excited in Nov when I went to my oncologist because I hit my 5 year mark. She said yes, it was 5 years. But she wasn't as excited as I was and I wondered why. I thought I'd be getting off the Femara and Effexor for hot flashes and be done with the drugs and everything.
    NOPE! She's changing me to Tamoxifen instead. I'll be on that for 5 years and they'll watch me closely. I've had so much going on since then I forget everything she told me as to the reasoning. Something about they want me to start making a little bit of Estrogen now. But, if I'm doing fine as is, why are they changing things? Tamoxifen has some really nasty side effects and 1 in 800 gets cancer from that.
    In other words, 'if it ain't broke, don't fix it'.
    Has anybody else gone through this? Did you have problems making the change? Or, was it an easy change?
    Thanks for your answers.

    8 Answers from the Community

    8 answers
    • MerryMaid's Avatar

      Sorry for the change of plan for you. I know how that feels when you think everything is going along just great and then cancer seems to tap you on the shoulder and say, "hold on a minute". Hopefully, the Tamoxifen won't be harsh on you. As for the doctor's decision, I am used to being the one that gives the orders, commands and controls everything, but when it comes to my treatments I rely solely on what my team wants to do. Sometimes it's hard to give up that control, but it's best.

      about 1 year ago
    • Bengal's Avatar

      After researching the potential side effects of Tamoxifen I refused it. I have a history of bad drug reactions. I could not see the benefit of a drug that had the potential of giving me yet another, not to mention really nasty, cancer. Drugs like Tamoxifen and the AI's slightly reduce the chance of recurrence but plague us with all kinds of debilitating side effects . Again, I think the drug companies play a big part in this. They want to sell product. They convince doctors they needed to prescribe this stuff. We, for the most part, trust our doctors to lead us in the right direction. Are we being duped??

      As for your doctor wanting you to start producing estrogen again, to me that makes no sense. Perhaps you need to talk about this with her more for a better explanation.

      about 1 year ago
    • Coloman's Avatar

      I am new to all of this so whatever my doctor says I take with blind faith that it's going to be OK. I haven't studied enough to be able to make educated questions about my treatment drugs to my doctors. I'm learning though. I have read so much here I fall asleep with the computer on! Thank you all for your questions and answers because I am learning a ton from them.

      about 1 year ago
    • debbien507's Avatar

      You are your own best advocate. Research, ask your doctor questions, get a second opinion, and then make an informed decision. Congrats on 5 years!

      about 1 year ago
    • cllinda's Avatar

      They have done more research and they found out that keeping us on these drugs can help us from getting a breast cancer and other cancers. I'm on Arimidex and have been on it for six+ years. My doctor said that when I hit the five year mark, that research has shown that it can help keep the cancer away. So I'm on the 10 year plan. Now I'm wondering once I hit 10 years of they will keep me on it longer. I guess I will hit that bridge when I get to it in 2023.

      about 1 year ago
    • junie1's Avatar

      First, congrats to hitting the 5 year mark! and I can relate to how you feel about taking on a new drug or another drug. I have been going thur breast cancer since 1994, went 20 years and no problem,, in 1995 I was on Tamoxifen, was on it for 5 years, with not that bad of side effects. slight weight gain,, which I lost when I went off it. I went for 20 years, clean mamo's and then in 2014 I had recurrence of cancer. and because it was so long after my original BC,, the doctors said it was a new BC. I had a double mastectomy,, and went on Arimedex, Im sorry to say that, it didn't work for me. I then had cancer come back in the neck area, in 2018 and now im taking shots of Fulvestrant, which they say will be a long time thing. I'm like some people,, I do what the doctors say,, looking up things on the computer- confuses me. I get all messed up when I do that. I trust that my doctors. I have new Oncologist, and it has been the best change in things.
      I'm hoping you get the answers you are looking for. Cancer is very confusing. God Bless all of us.
      Prayers to all

      about 1 year ago
    • petieagnor's Avatar

      I was on the 5 year plan with Arimidex in '06.. My Dr.at the time didn't think I should be on it any longer as everything was clean. At 10 years exactly I got MBC in my lung. I have a new oncologist. I've been on 8 different chemos in 3 1/2 years, Ibrance being the latest. I really trust her judgment, but I will ask questions so I understand. I, too, get confused when I try to research some of the drugs. There is so much to take in.

      12 months ago
    • Jesse0218's Avatar

      Saved for now anyway by my neck. I found out I have a very herniated disc at C5 C6. It is/has been causing problems down my arm into my hand. I'm having it removed Feb 21 and I called her office and told them I want to wait. I don't want to be getting used to Tamoxifen and having surgery with all the drugs used for that. So, for now I'm still on Femara.
      Petiagnor, I'm sorry yours came back as MBC. I hope the different chemo's help you.
      Thanks to everybody else for their answers. When I go back to the Nurse Practioner, I'll have a lot of questions.

      12 months ago

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