• Necrosis

    Asked by Kawagrl on Saturday, January 19, 2019

    Necrosis

    I had radiation 28 years ago for stage 4 squamous cell carcinoma. Now I have necrosis and they say my teeth can not be pulled. I had 5 root canals 2 years ago and my teeth are killing me again. What am I suppose to do

    7 Answers from the Community

    7 answers
    • GregP_WN's Avatar
      GregP_WN (Best Answer!)

      I had radiation 30 years ago that almost destroyed my teeth. During the next 20 years I had several root canals, some fillings, some pulled, and during all of that nobody mentioned the possibility of necrosis (ORN). If I had known that my teeth were going to continue to decline I wouldn't have spent the several thousand on all of that, I would have just had them pulled.

      So in 2008 I was diagnosed with SCC of right tonsil, I had radiation again, this time focused on the left and right neck/jaw areas. This dime my teeth disintegrated. I started having them pulled as they each reached the point of no salvage. I finally went to the Oral Surgery dept at my hospital and they told me I couldn't have them pulled without having Hyperbaric Oxygen Treatment. That was going to cost almost 50K, in addition to the 8K for cutting them out. I couldn't afford any of it. So I asked your question, "what am I supposed to do"? My teeth were falling out, chipping, wearing down, looked like worn out horse teeth. I told the Oral Surgeon that they were coming out one way or the other. If he didn't do it I would have a local dentist rip them out. They decided to take a chance and take them out a few at a time, All were removed and NO ORN. So it can be done. Also, I had no HBO with the extractions either. If you already have necrosis, that may be a different story, have they discussed HBO treatments before, and after extractions?

      about 1 month ago
    • po18guy's Avatar
      po18guy

      Time for a second opinion at a large, nationally accredited center - if you are not already at one. The more sets of eyes on your case, the more options you will be presented with. If you are in the US, you can find the closest comprehensive cancer center here: https://www.cancer.gov/research/nci-role/cancer-centers/find

      about 1 month ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I am sorry :( problems with teeth as a result of radiation is not uncommon, unfortunately.

      about 1 month ago
    • Kawagrl's Avatar
      Kawagrl

      Greg, yes they have discussed with me hyperbaric oxygen 30 day treatment. They have said that I do have necrosis. I hope my medicare pays for it.

      about 1 month ago
    • Kawagrl's Avatar
      Kawagrl

      Thank youpo18guy, I will take that into condideration

      about 1 month ago
    • thestarr's Avatar
      thestarr

      I too have Osteonecrosis discovered when they pulled my first tooth after radiation. It is extremely painful. They have me on antibiotics it seems like forever. I just had two more teeth fall out which left the roots still in. I've been seeing an oral surgeon and he wanted me to go for hyperbaric oxygen treatment, however, I'm claustrophobic and could not do it even with pills to relax with. I wanted the oral surgeon to pull all of the bottoms out but he said that wouldn't be a good idea because once they make the dentures, I might not be able to wear them because of the pain involved. This is certainly a dilemma for me as I'm afraid this is an ongoing situation. I wish you the best Kawagrl.

      29 days ago
    • Kawagrl's Avatar
      Kawagrl

      I wish you the best as well. I have been blessed to have my teeth intact for the last 28 years. My worst nightmare has always been losing all my teeth. I was told I could not have dentures, or implants

      28 days ago

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