• need to know basis

    Asked by sugarbear on Monday, April 8, 2013

    need to know basis

    has anyone gotten the feeling with oncologists that we are on a need to know basis? all the dr wants to do is stay on the same regimen and wont talk about new treatments or alternatives .frustrating when weve done all this research and the dr wont discuss the possibilities.almost like they have given up .

    8 Answers from the Community

    8 answers
    • Nancebeth's Avatar

      My oncologist is not like that at all. It may be because he is young, but he is all about the lastest and greatest treatments out there. He is willing to listen to my ideas and applauds me for being proactive in my care.

      over 3 years ago
    • CAS1's Avatar

      Ditto Nancebeth,
      Do not accept this..Ther is so much going on with melanoma bringing cures to even advance stage cases. You must fight for the treatments to save your life. Do not wait but find experts at one of the top 5 cancer centers for Melanoma or call the NCI and ask them for experts.

      over 3 years ago
    • StrongSteph's Avatar

      My doctor always had my back! He would listen to me and definitely discuss treatment options. I almost quit my treatment about 1/2 way through because it was so hard and he offered me a clinical trial. (which I did not do as I finished bio-chemotherapy). I agree with the other answers, get a second opinion.

      over 3 years ago
    • Peroll's Avatar

      I have nbot had that experience. I have had to push a bit to get my Drs to look for new treatments but I can be a bit pushy and usually get them to open thier minds. CAS1 is right to tell you to look for a Dr associated with a research clinic or hospital that specalizes in your type of cancer. They will know about all of the treatmetn options and clinical trials and how to get them for you. The good news is that some of these places are now offering virtual consultations over the internet so you don't have to travel until they know they can treat you. Good Luck

      over 3 years ago
    • Ydnar2xer's Avatar

      Why not just get a DIFFERENT doc? Mine was OLD (he's since retired, which was a shame!), but he was ALWAYS on top of the latest treatments and we talked about them. Sometimes I'd ask him about something new that I'd read and he would eagerly discuss it with me. I don't think it's a matter of young v. old, or necessarily a doc from a research clinic (mine wasn't), it's just that you need to find one that meets your needs in as many ways as possible during this crummy time in your life! Good luck to you. There ARE plenty of good Docs out there!

      over 3 years ago
    • Queen_Tatiana's Avatar

      We have not experienced this at all. My husband's oncologist is great and as he's not been treating him for 8+ years he knows what to expect when he comes in, My husband comes in with lots of questions about treatment and what to do next and at this point they really do work as a tear to fight the cancer. I also appreciate that the Dr. always listens and converses with my husband, but then always looks at me and asks me what I am thinking, in fact today the doctor and I agreed on treatment that my husband is wanting to change and a compromise was come to, which will be revisited in two weeks after another CAT scan is done. It is always a pleasure to visit with the Dr. and leave knowing all the questions were addressed and the best is being done for him. If you are near a teaching hospital you might want to make an appointment there and get a second opinion. We have a big research facility in our city and our oncologist is connected to it, and this helps a lot with my husbands are as his cancer is so far out of the box at this point.

      over 3 years ago
    • Clyde's Avatar

      My onc was pretty clear with me that he didn't feel like there was much new out there for melanoma, but...but....he has been nothing but supportive of my own research, listens when I tell him about treatments I have learned of, discusses them fully and is very encouraging in that regard. He has never discouraged me in any way and often points me toward new places to do my research. He seems particularly interested in the European treatment ideas I find. (I'm not into the snake oil, so that never comes up.)

      If I were you, I would certainly get a second opinion. If nothing else, it will either bolster the advice you are now getting (which you are questioning) or it will possibly tell you you need a change. This is your life and you have to be comfortable with your treatment plan. The reality of it may not be what you want to hear, but you have to know you have exhausted every possible route to that knowledge.

      over 3 years ago
    • melanomamama's Avatar

      When you say "new treatments or alternatives" that you have researched, are you talking about treatments that have a scientifically based track record (meaning they have already passed clinical trials and have gotten FDA approval) or are you talking about cures that are touted on the internet on alternative medicine websites? My oncologists will discuss both types, but they lack patience for lengthy discussions of unproven treatments, since they can't ethically offer them or recommend them. Some such treatments might be safely tried in conjunction with standard medical care, but many are risky or a waste of time and money because their results are unproven. Some people seek "complementary care" from integrative medicine sources so they can combine palliative or supplemental care (acupuncture, massage, dietary changes etc.) with standard medical care. Most modern oncologists support this form of self-care as long as it is not a substitute for standard treatments. Some people opt for alternative care instead of standard medical care, but they should first be fully informed and they should weigh the risks and benefits of foregoing standard care. I find the American Cancer Society website useful for advising whether there have been any controlled studies of "alternative" treatments on human cancer patients. If that website says there is no proof the treatment helps cancer patients, then perhaps that is why your doctor gives the discussion short shrift.
      Constance Emerson Crooker

      over 3 years ago

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