• neuropathy

    Asked by kghalva on Sunday, January 25, 2015

    neuropathy

    This is a question asked by a friennd of mine, she finished chemo last July: Chemo can cause neuropathy, and being diabetic, for me it was a pretty sure thing that I would be hit pretty hard with it..but a price I was willing to pay and the chemo worked so worth it. But today it is really bad..not sure why some days are worse than others but even my lips and cheek bones,nose and top of my head are numb today, along with my feet, lower legs, fingers and forearms..NEVER had it this bad before..wonder why?? It's driving me a bit crazy if I'm to be honest!! Any one else who's a past chemo survivor or know of anyone else that has experienced this?

    19 Answers from the Community

    19 answers
    • Phoenix76's Avatar
      Phoenix76

      Oh, wow - sounds like you got hit with a double whammy! I don't have a lot of answers for you; maybe you can check with your doctors/team or on the web. I had neuropathy in my fingers and feet; this has slowly dissipated after treatment ended (early September). It is now only in the tips of my toes, but is lingering.

      Are you still in treatment? The onc can change the "cocktail" of chemo to minimize the effects as much as possible.

      Good luck to you and hope things improve.

      over 6 years ago
    • dsjmrpt's Avatar
      dsjmrpt

      I didnt get any neuropathy feelings until my last round of chemo when they changed up some of the meds. The doctors have never seen a reaction like mine. I had tingling from the waist down. Some days its just my feet and ankles nowdays, but other days out of the blue it will be up my thighs. No logic behind it. I can't figure out what causes the difference. From everything I've read this is supposed to gradually get better. We'll just have to wait and see. Good luck to you.

      over 6 years ago
    • leslie48240's Avatar
      leslie48240

      That sounds just awful. Hugs! Mine just in extremities and that was bad enough! Did fade away entirely after chemo was finished...but took months. Hope they can find something to help you.

      over 6 years ago
    • Suzieq2u's Avatar
      Suzieq2u

      My neuropathy was really helped by taking vitamin B-100. I take 2 capsules a day. If I forget to take it then it gets bad again. I also have a friend who went through chemo and she is a diabetic so hers started to get really bad until I got her to start taking the B-100. The B-100 was something my oncologist started me on because they have had good results with it for most patients. I hope you will give it a try and it works for you as well. Hugs :)

      over 6 years ago
    • Julie99's Avatar
      Julie99

      My neuropathy got pretty intense after chemo ended June 2013. I tried creams and liodocane patches which didn't work. Then I trued Lyrica but that wasn't a good fit for me. Neurontin has really helped, finally, but I still have numbness, tingling & pain at times.
      I've noticed that my shoes play a role as well as how active I Walking the dogs kills me. Writing out Christmas cards left me unable to do anything with my hands.
      Also the weather effects me. In cold, it's worse. Plus, (not sure if you're a football fan, but I'm from Boston & love the Pats!) think "deflate-gate". Air pressure changes really impact how I feel. I know when a front is passing. My body feels the change.
      Wishing you lots of luck!!

      over 6 years ago
    • cam32505's Avatar
      cam32505

      I had neuropathy during and after chemo. It's been 3 years now, and it's better than it was. But, it's always there.

      over 6 years ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      I'm in the same boat as Julie. 2 years out of treatment this coming Wednesday. Still have issues. And you are right -- some days are better than others. I asked my oncologist if cold could cause it to worsen. He said no, but my experiences tell me yes. My feet are much more painful in the cold. I am on gabepentin (neurontin). Hope you feel better soon.

      over 6 years ago
    • Teachergirl's Avatar
      Teachergirl

      I am finding that on days that the barometric pressure is unstable due to storm fronts or drastic weather changes I feel it worse. Suzieq2u thanks for the tip about the B-100. kghalva I hope you find relief soon. Best wishes

      over 6 years ago
    • Megs_here's Avatar
      Megs_here

      Ask if your friend has had her blood checked for levels of B vitamins. Her neurologist and oncologist should advise her before she begins anything new. Being low on B6 or B12 vitamins may contribute to problems but one can not go over the normal levels. I saw a neurologist whose specialty was cancer patients. I use Vit B6 50mg twice a day per his instructions and I have my blood checked from time to time. More than 100mg a day of B6 can actually cause more neuropathy symptoms so be careful. Up to three years is what I was told for the healing to take place and that it might never go away completely. I completed chemo Aug 2013 so I'm beginning to think that I will always have some neuropathy. What has taken away my foot pain is an over the counter rubbing oil that contains Frankincense which I purchased at Walgreens. I only used it on the soles of my feet and within three days of using the pain was gone completely and has not returned but the numbness is still there. The name of the product is Neuropathy Rubbing Oil and it claims on the label to be "temporary pain relief." It worked completely for me and I no longer need it after using it once a day for three days. All the sharp pains and restless feet problems at night were the worst but they are gone. Numbness remains. I don't know if diabetics can use this so have your friend ASK her Doctors. Also I massage my feet as often as I can to increase blood circulation which is supposed to be healing. Hope some of this is helpful.

      over 6 years ago
    • Donnie's Avatar
      Donnie

      I had problems before in my feet. But after chemo it was worse and I also got it in my fingertips. I t has improved some,but the balls of my feet are very numb. I do have the patches and have begun the vitamin b. But I am going to try the neuropathy rubbing oil.

      over 6 years ago
    • Teachergirl's Avatar
      Teachergirl

      Lisa1964, thank you for posting. You have described exactly how I feel. It's the first time I have read someone having the exact symptoms. Trying to walk after sitting can be such a challenge until I get going. Thanks everyone for the ideas.

      over 6 years ago
    • Nonnie917's Avatar
      Nonnie917

      Megs_here, thank you for the information about the Neuropathy Oil. I wonder though, do you think it would help with muscle pain. I am having a lot of muscle spasms in my thigh and it pulled my hip joint out of place. After 3 days in a row of seeing the chiropractor the hip has finally stayed in place, but this muscle pain is causing me to be unable to walk upright. When I try to straighten up it cramps up so bad I loose my footing. If that oil helps with nerve pain, I am hoping it will help with muscle pain as well. Does your label say anything about muscle pain? I don't want to go buy it if it isn't going to work for me. Thanks again for the post.

      over 6 years ago
    • MLT's Avatar
      MLT

      Lisa and Teachergirl, Your symptoms sound like plantar fasciaitis (sp). Heel spurs, fallen arches. Of course, that wouldn't explain problems with your hands. I still have neuropathy after 5 years, mostly numbness in my right foot. It's worse with lots of walking, being on my feet a lot. Taking Metanx, concentrated B vitamins. Helps some, but expensive. Susieq, How much is the B-100? Do you have to have a prescription?

      over 6 years ago
    • Megs_here's Avatar
      Megs_here

      Hi Nonnie, dear. I am sorry about your muscle pain. The label states "for temporary relief of symptoms of neuropathy such as pain, numbness, tingling and weakness." The main active ingredient is Boswellia Carterii which is the Latin name for Frankincense. You might try to Google the Latin name and also the common name for Frankincense and see other uses? It's made in New Hampshire for a company called Wise Consumer Products, Cincinnati OH. They say that the plant is an FDA inspected contract manufacturer. They do have a website that has a FAQ page that may answer your question better than I could. http://www.frankincensemyrrh.com/faq.html The phone number on the bottle is[phone number redacted] Please let me know if it works for you. Sending you healing thoughts.

      over 6 years ago
    • kghalva's Avatar
      kghalva

      I use essential oils for a lot of things, and I think frankincense would be a good one to use for this problem. Need to check with my doTERRA consultant and see what she recommends! I'll get back to you all!

      over 6 years ago
    • BoiseB's Avatar
      BoiseB

      Please tell your friend to have the neuropahty checked out by her PCP. There are lots of side effects that mimic the symptoms of other diseases and cancer does not make you immune to any of them. Her PCP could find relief that oncologists are not aware of. I know mine has.

      over 6 years ago
    • Marge_D's Avatar
      Marge_D

      I had neuropathy in a most terrible way (though only in my hands). I took everything anyone recommended for it including but not limited to: B-6, Vitamin E, alpha-lipoic acid, acetyl carnitine, melatonin, B-12 (should be natural not synthetic). I use Vitamin E oil on my hands - it seems to help. Tried acupuncture. Also took glutamine during chemo but was told it is tough on kidneys. I may be forgetting others. My neuropathy is virtually gone (after being so bad I could not work or drive). Hang in there. I also think that exercise helps cure everything -- get yourself sweating and get those toxins out.

      over 6 years ago
    • barbdee's Avatar
      barbdee

      Hi all,
      I know I'm getting late into the discussion but here's my two cents.....
      Weather does affect my numbness & tingling in hands & feet.
      I must take 900mg. gabapentin in order to work.
      Preventing it popping up, is easier than getting it to tame down during the day.
      Key for me is taking the meds on time.
      Stress makes mine worse, as well as being dehydrated.
      Finished hard chemo in August 2013 & Herceptin in April 2014.
      Everyone ask your PCP or oncologist what supplements you could safely take. We are surviving but our bodies are different. I'm battling allergies now in Southern California! Haven't had to deal with those in decades. So glad to be here to complain. Hugs all around. Barb

      over 6 years ago
    • rondavail's Avatar
      rondavail

      On my third round of chemo the neuropathy in feet and hands was really bad. Found neuropathy in the Vermont Country catalog and it made a major difference in the degree of pain. However 2 oz does not go vaery far and contacted Wise Consumer to obtain larger quantity but they did not carry it. Would like to get to the manufacturer and if anyone knows the company would appreciate this info. Using at least 4 times per day and this small amount I s gone in a jiffy and the cost is outrageous.

      over 5 years ago

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