• new anxiety before pokes, 6 years old, any advice to lessen the anxiety?

    Asked by mkm9028 on Tuesday, March 10, 2015

    new anxiety before pokes, 6 years old, any advice to lessen the anxiety?

    Emily has been receiving pokes, finger and port access, for the last 4 months with minimal anxiety and stress. In the last 2 weeks, her anxiety has gone through the roof. We are to the point that after her port access, we have to wait an hour or so for her blood pressure and heart rate to get back to normal before they can start the chemo.We are working with all of the professionals at Children's hospital also, but I wondered if any caregivers out there have any tips or tricks? She is very experienced at getting these pokes now, so I don't think it is fear of the unknown, she knows what is going to happen and how much it will hurt...

    6 Answers from the Community

    6 answers
    • GregP_WN's Avatar

      There is a cool product/website called ChemoDuck www.chemoduck.org They make a duck that has a port to use to teach kids about chemo and cancer. Take a look, it may be helpful. And I believe they will donate these to kids, not for sure though. Our best to the little one as they go through this. Let us know anytime we can help.

      about 6 years ago
    • CAS1's Avatar

      I would look for some meditation cd's for kids, they exist, and start meditating. It will help her close her eyes, turn inside and go somewhere else. Whatever your religion just put your own or faith or words into any chant. and ask her where is her favorite place to go around your house and then go there after chemo.
      Meditation has all kinds of proven benefits.

      I am without a doubt so very very sorry for this experience that she has to go through. its children that made my treatment plan nothing because I saw kids being treated and I said to myself I have no right to complain..

      All the best,

      about 6 years ago
    • cam32505's Avatar

      It seems to me like it's not the obvious needle pokes, but the actual chemo that she's afraid of. She's figured out that after she gets chemo, she gets sick. Maybe you need to approach it from that aspect. If there is a nurse who is better with her, maybe request to have that nurse with treatments. Kids kind of like familiarity, so seeing the same face might help. I'm sure she's not the only kid crying and upset in there. I was once in chemo and the woman next to me had issues with her port, so they had to do an I.V. and she was crying like a baby (she was at least 60 years old!). It upset me to hear her so upset. We're all having a tough time dealing with it. She may be experiencing more side effects from the chemo, as it is cumulative. I know they don't usually like to give kids pain medicine, but maybe that's what she needs.

      about 6 years ago
    • cllinda's Avatar

      How about listening to music on headphones during the prep? It may help her relax and have a little less anxiety. After all that I went through, I can't imagine a child going through cancer treatments without anxiety. She knows what is coming, and her body is just not cooperating any more. It has to be so scary. I will keep children with cancer in my prayers.

      about 6 years ago
    • Vivenia's Avatar

      I know that as my treatments went on my body built up a stress response to the pokes, I would flinch and jump even when I was prepared and it didn't really hurt. And my port would get really sore, so sometimes having it accessed felt like being punched in the chest. You could practice some deep breathing exercises with her, and later when there are no imminent pokes ask her what she thinks will help, she might have better suggestions than any adult - and if she feels like she has some control over the situation that might help her mentally. Good luck, I hope you find something that helps, I'll keep you in my thoughts and prayers.

      about 6 years ago
    • glam's Avatar

      I am so sorry to listen to that....so unfair....cancer is a terrible illness and totally unfair, especially for children and senior citizen to deal with....with your permission I will keep her on my prayers....I would ask her facility if there is a community of children with cancer that she could get connected to.....and you also....I guess being in contact with families, people and children that have to go through similar challenges may be helpful for you both.....also ask in the church and local community as well in the internet....I wish her a very successful treatment and that this nightmare get stuck in the past.....and she can have only happiness after that....God bless her, you, your family and continue blessing all of us

      about 6 years ago

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