• New here/newly diagnosed...

    Asked by twinTluv on Saturday, December 7, 2013

    New here/newly diagnosed...

    Hello all. I was diagnosed this past Halloween with Stage 4 stomach cancer. I was very sick for over a year with stomach pain and vomitting and went undiagnosed....I am getting aggressive chemo both pill chemo twice daily and IV chemo every other week. I am soooo tired.....constantly nauseated and in immense constant pain. The tumor has taken up my entire stomach so they put in a stint to try and allow me some better quality of life and to eat food. They are hoping the chemo will shrink the tumor so it can be removed....but they aren't really giving me much of a chance medically. Currently they are only saying 6 to 12 months life expectancy or me..this is scary but my faith in the God has brought me serenity. I am a fighter and I know anything is possible. I am just wanting/hoping to hear from others...survivors...anyone...just really looking to just ...i dont know....just want to reach out to a community that understands...... thank you in advance.

    21 Answers from the Community

    21 answers
    • GregP_WN's Avatar
      GregP_WN

      Hi Twin, sorry for your having to be with us, but I'm glad you dropped in. We have lots of folks on the site that were told only a certain time, 6mos, year, whatever, but that was years ago. They are still with us today. I'm sure some of them will share their stories with you when they see your question. In the mean time you might take a look at our blog where we have interviews with several stage IV survivors, click here to see www.whatnext.com/blog Just scroll down through the posts and you will see several interviews to help.

      over 7 years ago
    • twinTluv's Avatar
      twinTluv

      thank you!!!!

      over 7 years ago
    • glam's Avatar
      glam

      Dear twin....I am so sorry to hear from your diagnosis.....last year In October by husband was diagnosed with kidney cancer and at the same day of his surgery I was diagnosed with colon cancer that after deeper analysis was discovered to be stage IVB....most doctors gave me 06 months of life and some told me not to take treatment because it would make my days and life very difficult and I should dedicate my time to organize life and papers......I didn't hear any of those and although I was also very scared and very very sad......I decided to fight with all my energy and soul....I looked for those doctors who were committed to save my life, grabbed God's hand and started an aggressive fight against my cancer.....It was not easy at all....I lost 11 kilos, lost my hair, to say some of my side effects and of course 09 new scars from the surgeries.....but I am here after more than a year....more than double of what people had gave me........we can .....and we will.......while there is life there is hope.....for God nothing is impossible.....grab his hand.....be strong.....be faithful......research a lot about your tumor.....setup google alerts and don't lose any opportunity to question your doctors....get in charge of the decisions of your treatment....it is your life...literally...and count on us here for anything we may help you......with your permission I will keep you in my prayers....God bless you and continue blessing all of us

      over 7 years ago
    • HOBO's Avatar
      HOBO

      Dear twin,

      We will.walk.this journey with you. There are.lots of wonderful.folks on this site. We are all here to beat the odds. With God all things are.possible. I am sorry you have had such a rough time of it. Be kind to yourself. We are here to listen. Sending warm hugs.

      Jane

      over 7 years ago
    • lilymadeline's Avatar
      lilymadeline

      I've been fighting stage IV breast cancer for over 3 years, and I have had 2 other primary cancers as well! I was supposed to have months not years, but now I am stable and hoping to live for years, decades. I keep telling myself I just have to outlive my dogs! And if I were you I would definitely seek out 2nd and even 3rd opinions, believe me I know how expensive it is and I know that you are probably too tired to go running around to different doctors. But it can't hurt to get another opinion from a different cancer center, because you've got to have an aggressive medical team that is fighting as hard or harder than you are. And you never know, because no matter how bad things look they can always turn around. I also had a stage III-IV lymphoma boyfriend that was given roughly a year to live and that was about 19 years ago now and he is doing great and cancer free. So much luck is involved because it depends on how your body responds to the treatments, the machines and drugs that you have access to, and prayers as well! Take care and god bless! xoxoxoxo

      over 7 years ago
    • twinTluv's Avatar
      twinTluv

      Thank you all for your responsesand support. It is nice to hear sucessful treatment...the ast website I joined most of the messages were from loved ones of people who had fought but ultimately lost the battle withstomach cancer. Not that I was loosing hope......

      One thing I did want to mention, because I do really like and trust my team of doctors. My doctor is really being aggressive and is really good at answeing my millions of questions and making sure I understand my treatment and ht is going on...currenty Iam meeting with her once a week.....just wanted to mention that...didnt want to misrepresent my doctors just because they answered when asked for a time line....

      over 7 years ago
    • mgm48's Avatar
      mgm48

      Smile - If the doctors were right I wouldn't be here today and if you check out my picture taken yesterday, I'm actually doing pretty much ok and not in a pine box either. So get to a positive place anyway you can and smile. It will keep you going and you just might beat those odds. One other thing insist that your doctors help you deal with the pain. They have drugs galore to help you in that area. I know all too well.

      Keep it positive and smile :)

      over 7 years ago
    • Peroll's Avatar
      Peroll

      I don't put too much time into worring about the probailities as I have managed to hit the5% probability 5 times in a row and my Dr stopped quoting me probabilities several years ago. Stastically speaking I should be dead, but I'm not. I just deciided that I was going to be in the group that survives, no matter how small it might be. You can do the same thing. Good luck!!!!!!!!!!

      over 7 years ago
    • Toto's Avatar
      Toto

      Hello twinTluv, I am so sorry to hear about your diagnosis. Often times it is unfair of the doctors to predict a life expectancy. In fact, I think it does nothing but to knock one's faith a bit to hear of a time limit they place on life's challenges. It is good to see that you are strong. Keep the faith and be persistent in asking questions about your diagnosis and your treatment regiments. It is important that the doctors remain informed about all phases of your recovery. Read as much as you can about your condition. It will help you in understanding where you are and where you need to be. Good luck. As a caregiver who continues to encourage and treat m husband who is healing from a recent stem cell transplant, I can tell you that there are both good days and bad, but the good far outweigh the bad if you remain focused on the positive. My continued prayers are with you and all who suffer with cancer.

      over 7 years ago
    • rmh's Avatar
      rmh

      hello, I am sorry for your pain, I will pray for you. But life is a funny thing ...you will live the time God wants you here in this world before he brings you back to him. Be good to yourself...

      over 7 years ago
    • created's Avatar
      created

      Twin, If I have learned anything at all from having cancer, it is very simply this...God holds my next breath in the palm of His hand, and it could not be in a safer place...cancer or no cancer. Know you are in my prayers. Patricia

      over 7 years ago
    • girlstrong's Avatar
      girlstrong

      Dear Twin,
      With a fighting atttitude and God by your side you can win this one. Meditate on that tumor beginning to shrink and be contained in the stomach.Then on to surgery to remove your stomach and a new life without the pain. You will learn how to eat again even though it seems impossible at this time. I am a little over 2 years from a total gastrectomy and have learned how to eat, what to eat, and to not listen to those nasty statistics. Have faith!

      over 7 years ago
    • Darryl1's Avatar
      Darryl1

      Don't give up hope,my husband has stage 4 prostate cancer that spread to his spine and neck,when he was first diagnosed they only gave him a month to live,it has now been almost two years and thanks to all the new meds out there he is still with us.Its a hard tough journey,but with faith and a willingness to win this battle you can have many years ahead of you.I wish you the best of luck and will keep,you in my prayers,KEEP FIGHTING! Best wishes, Diane

      over 7 years ago
    • meyati's Avatar
      meyati

      Hi, my Dad really started vomiting without a fever. This was back in the 1950s. They opened him up for exploratory surgery. He was filled with cancer. We were told that he'd probably die in the hospital within a few weeks. He died 3 years later. We had lots of fishing and hunting trips. He became a building inspector in Los Angeles County, taught night classes at UCLA for several years.

      over 7 years ago
    • mkjetset's Avatar
      mkjetset

      I am so sorry you have had to join this club, I am so happy you have found us. WhatNexters come from all walks of life and have so much to offer you in the way of support, encouragement, and information. There are some many people here who are experiencing exactly what you are experiencing. I would strongly recommend following SueRae1 and Lirasgirl33. They are very active on the site. Both of them have shared, in detail, their journeys and I have found them to be incredibly focused on fighting and living in the now. I have found them to be very inspirational.

      We are all here to be by your side.

      over 7 years ago
    • BarbarainBham's Avatar
      BarbarainBham

      Hey, twinTluv! We all know people who were given 6 months to live who got treated aggressively, went into remission, and lived a long time afterwards. I know a lady who lived over 30 years after being told 6 months, and she was 90 when she died! As young as you are, you have everything going for you, so keep taking the aggressive treatment, and we are all praying for you to go into remission.

      I think it's great that your doctors told you a life expectancy, so you will tolerate as much as you possibly can to get well. It's good to know what you're up against. Remember you are young and you should be able to handle it. You are in our prayers.

      over 7 years ago
    • TinaLR's Avatar
      TinaLR

      I have a friend who was diagnosed with a very rare stomach cancer and not given much hope for success or a future. That was three years ago and she's still going strong. Another friend was given 6 months to live - that was two years ago and she's feeling great. Don't stop fighting - there is always hope.

      over 7 years ago
    • Pooh64's Avatar
      Pooh64

      Well you certainly were handed a bag of bad news. You are young and obviously a fighter. Keep fighting. We may not have the same diagnosis, but we know your fear, we know chemo, we know nausea, we know tired. You are not alone. It's good you have a strong faith. There still may be days you feel alone, weak, tired of the journey...don't give up. Try to be positive, and remember we are here for you as well. Keep the faith. Warm wishes and I will keep you in my prayers.

      over 7 years ago
    • Pooh64's Avatar
      Pooh64

      Are you a twin? Me too.

      over 7 years ago
    • DrPeter's Avatar
      DrPeter

      Hello

      I was just wondering if there are any updates on how you are getting on? Hope you are ok?

      almost 7 years ago
    • Russ' Avatar
      Russ

      Hello Twin, I can already see that you are a fighter, and that is more than half the battle. People ask me how did I beat pancreatic cancer, (stage iv)? I say it is my persistence and determination. It is all the cards, letters, emails, and phone calls from all my family and friends...and from people I didn't even know some of them. Then I said..."I would be a fool not to believe there was some Devine intervention on God's part." I tell those who I am supporting to fight with a passion everything this disease tries to do to you. I am a 17 year survivor of pancreatic cancer on this past November 3rd. I saved all those cards, letters and emails, and pull them out every year on November 3rd. It is so refreshing to read all of them every year. Just keep on the track that you are on, and never give up hope. Hope is the last candle fluttering in the darkness while all of the others have gone out. The light at the end of the tunnel is the candle of hope. We here at WhatNext will help you to keep that candle of hope lit. My best to all of you on WhatNext! Russ

      over 3 years ago

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