• Newly diagnosed, what now?

    Asked by sylviashinn on Monday, April 1, 2013

    Newly diagnosed, what now?

    12 Answers from the Community

    12 answers
    • Vjp2012's Avatar

      When I was newly diagnosed, I prayed. I researched as much as I could about the cancer I was diagnosed with. I joined this site and learned from the sources here also. I read the book "Crazy Sexy Cancer" and many others. I consulted with 4 different doctors and compared what they said. Then I decided on my team and said let's beat this! Good luck!

      over 4 years ago
    • carm's Avatar

      Educate yourself!!! Learn about this disease and options given to you by your doctor. This is a useful support website and there are many here to encourage and become a source of strength. Many may try to advise you but only your oncologist knows your disease best. Knowledge is power. I am an oncology nurse that specializes in gyne cancers so if you need educational materials or educational sources, I can help you with that. Best of luck to you, Carm.

      over 4 years ago
    • SueRae1's Avatar

      Hugs. Take a deep breath, and try to be calm. I know that's pretty hard, I didn't do the calm part too well. Vjp and Carm have given great advice here's some more:

      Do things you love and enjoy. I know I saw lots of silly movies while waiting for my treatment plan to be put in place in 2009, laughter really helped, and it took my mind off of things for a few hours.

      over 4 years ago
    • rjtom's Avatar

      Take a deep breath, try to stay calm and resolve to beat this cancer! This site is a great source to connect with other people who are going through the same things you are. The road ahead may get bumpy and difficult but it is not impossible. Chemo was hard but bearable. I wish you the best of luck with your treatment, you can beat this!

      over 4 years ago
    • Clyde's Avatar

      Now you wait. The first few weeks are all about waiting. Don't let it freak you out. When the answers start coming in you will start to feel a level of relief, believe it or not. Stay away from the internet if possible, there are lots of scary stories out there, most of which will not relate to you, but you won't know that yet because you are in wait mode. You can research when you have some answers. Most important, don't stop enjoying life.

      over 4 years ago
    • fastdog's Avatar

      The initial diagnosis is so hard to deal with. My husband and I stood in the parking lot of the hospital and just bawled. The first time we had to go to another hospital to discuss surgery, and had to turn in at the sign that said "cancer," I wanted to freak out. But, humans are remarkably resilient. The shock gets absorbed, and when you have a treatment plan, you feel better because you understand more and are able to be proactive and "do something." I would be very careful what you read on the internet. Your oncologist can recommend sites that can give you information you can trust, as can Carm and other WhatNexters. I have a rare cancer, so joined a couple of Facebook groups for people who have "my" kind of cancer, plus WhatNext. Best wishes to you.

      over 4 years ago
    • BuckeyeShelby's Avatar

      If you happen across prognosis numbers, remember, those percentages are at least 5 years old, and there has been a lot of research and new treatments since then. When I was diagnosed, I read eveything I could get my hands on. That's how I handle a crisis. I research the heck out of it. Find whatever it is that can help you cope and feel that you have a little bit of control. It does get less scary as you build your team of providers and get a treatment plan in place.

      over 4 years ago
    • Gabba's Avatar

      I agree with what others here have said...the waiting is the hardest part...use this time to do a bit of research but do not forget to get on with the business of living...surround yourself with positive people, be sure to have someone accompany you to upcoming appointments, if possible, because an extra set of ears is a big help...they may hear things that you do not...watch funny shows and movies...this is not the dire diagnosis it was even just a few years ago...there are many good websites and some "not so good" ones so be careful...I wish you luck as you start this journey. God bless!

      over 4 years ago
    • Kathy's Avatar

      After my surgery, the surgeon was the one to explain the results and next was an appointment to see an oncologist. My first time, these were two separate doctors in different locations but they did confer with each other. This time it was the same doctor with both roles. Bring someone with you to take notes. I know the first time when I was told it was cancerous I don't think I heard one word after that - it was like a Charlie Brown episode of wa wa (can you LOL? maybe?). Like was stated previously my husband and I bawled in the parking lot. It is so emotional. Eventually you deal with it and begin gathering information. I was able to draw strength from here and many other places of people who had survived. This wasn't a death sentence after all. Good luck and contine to reach out to others, like us, that are in this same boat.

      over 4 years ago
    • c25862's Avatar

      research about your cancer is the best thing. also i dont know how much you are into altenative things but you should see about her taking coral calcium or acidophilos or even a probiotic will will help out. research on those vitamins as well. good luck and we are all here for you

      over 4 years ago
    • geekling's Avatar

      It all depends.

      My experience was, I would hope, unusual. In someways, getting diagnosed was a goal.

      I'd carried a tumor around, externally, for 13+ years and it had been misdiagnosed as a hemorrhoid or wart by a plethora of doctors for that whole time as it slowly grew to stage 2 and as I got more and more tired. I got oddly lucky in breaking a toe and gaining some weight while I sat around healing. The extra weight demanded the removal of the growth in order for me to comfortably walk because it had grown in size along with the rest of me. A biopsy showed it to be cancerous.

      That was over a decade ago and the treatments available were not so hot in their success ratios. I began looking into alternative options. Four months later a new combination of drugs became available which were said to be 95% effective.

      Without completely abandoning the alternative solutions I'd begun, I opted for the new drugs combined with radiation. Although I am grateful for my life, I will always wonder if I chose correctly. I still keep to many of the nutritional changes I made and find them quite helpful. I still suffer from certain damages done by the radiation and chemotherapy.

      If you haven't already, a best thing you can do is to find an oncologist you trust. I interviewed six oncologists before finding one who would give me the new chemotherapy, treat me like a human being able to make my own decisions once provided with information, had a clean office, spoke to me as a sentient creature instead of a patient number, and in whom I thought I could place my trust.

      It is important to trust your oncologist and to have him accessible to you because any problems or complaints must be addressed to him or her. Think of the oncologist as the leader of the band who runs and coordinates the show.

      Assuming you've already decided that you do wish to live, learn everything you are able to learn about your own particular condition and as many both off and on the wall treatments as you are able to discover for it.

      Very best of luck to you.

      over 4 years ago
    • keithe2934's Avatar

      I have been diagnosed with vocal cord cancer. Start radiation treatment thursday. Have no idea what to expect

      over 4 years ago

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