• No psa

    Asked by DavidRM on Thursday, October 11, 2018

    No psa

    I'm overdue for psa. I don't want to know and I've chosen so far not to. Although I'm conflicted about it. Not that I would go back on lupron if it was on the rise anyway

    10 Answers from the Community

    10 answers
    • GregP_WN's Avatar

      Sounds like "PS-Anxiety". I know the feeling of not wanting to hear them start a sentence with the word "unfortunately", but I've heard it 3 times. So far I have chosen to dig in and fight. I know it's tough, but I couldn't see myself tapping out. I wish you the best with your decision, whatever it may be.

      over 1 year ago
    • majahops' Avatar

      You could buy some time on peripheral blockade (finasteride, bicalutamide) if Lupron is just too much for you... There is the issue of gynecomastia, which can be quite disturbing and tender for some, but some tolerate it very well. How high was your last PSA, and what rate was it increasing at, if I can ask? You might not NEED anything right now.

      over 1 year ago
    • Songwriter's Avatar

      Just live your life. PSA isn't all that accurate. How are you feeling now? Did they do surgery and Lupr

      over 1 year ago
    • po18guy's Avatar

      Some rise in PSA is generally associated with prostate cancer, but PSA by itself means little. It is not diagnostic of any cancer - by itself. Many with elevated PSA never develop cancer, and some with normal or even low PSA eventually do develop prostate cancer. If you still have a prostate, a DRE by an experienced urologist is a good basic step.

      over 1 year ago
    • Indyeastside's Avatar

      I get it. But "head in the sand" don't work too good with Mr. C. Better to know and treat then hide a "snake in the basement" not knowing what damage its doing or when it might strike.

      Manage the disease-stay on top of it. I have relapse three times but still here ten years later.

      God bless and warrior on.

      over 1 year ago
    • carm's Avatar

      Hello, I'm an oncology nurse and @Indyeastside is right. The best way to fight this disease is to stay on top of it. I understand that you are not fond of TIP therapy but trust and believe that it is a valuable lifeline. Knowledge is power and ignorance will make you a slave to your disease for the rest of your life. Best of luck to you.

      over 1 year ago
    • JaneA's Avatar

      You won't keep from knowing by not doing the recommended follow-up. If your cancer has returned, it will keep progressing and you'll know by an increase in pain and/or decreased urine flow and enlarged lymph nodes.

      Get screened like recommended. There are new treatments and you and your medical team can decide on some that can help you while reducing symptoms and side effects. Best wishes.

      over 1 year ago
    • DavidRM's Avatar

      My PSA has been showing near non-detectable. I'm on holiday right now but haven't had a PSA test in maybe nine months. They had an appointment for me to check that and scan my kidney for recurrence. (Also have late stage III kidney cancer). If my PSA starts rising I figure what does that really mean? I don't want lupron for sure right now, and from what I understand there is an uncertainty of wether it works or not. It's complicated for me with having stage IV prostate cancer and stage III kidney cancer. Gets confusing. Also some many doctors with so many opinions. I try just listening my team, and I don't necessarily get a straight answer. Suppose nobody wants to commit to anything. Too difficult to answer maybe.

      over 1 year ago
    • LiveWithCancer's Avatar

      @DavidRM, are your two cancers treated by the same oncologist or two different oncologists? I can see how treating two late-stage cancers could be very mind-boggling. Hoping for the best for you, whatever you decide.

      over 1 year ago
    • DavidRM's Avatar

      Two different doctors

      over 1 year ago

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