• No scans ?!?!?!

    Asked by channing2623 on Tuesday, February 12, 2019

    No scans ?!?!?!

    So i’ve finished radiation treatment and have now begun to take tamoxifen. Saw my oncologist and asked if i would be needing any scans like a pet or ct. i have a mamo already scheduled. I was told no scans unless symptomatic. I have faith in my dr but i am concerned about this should i be or is the the normal course when the lymph nodes are clear?

    12 Answers from the Community

    12 answers
    • GregP_WN's Avatar
      GregP_WN

      Yes, that's normal. Some types of cancer just don't get scans after treatment unless there is a big symptom that can't be ruled out. My first two diagnoses were Hodgkin's disease, it is basically followed by physical exam of the neck looking for lymph nodes and a blood test. No scans at all. My last dx was head and neck, after treatments were over I did get scans every 6 months for 2 years, then no more. It depends on the type of cancer and the proven protocol. Congratulations on being clean and on the road to recovery!

      2 months ago
    • Carool's Avatar
      Carool

      As Greg said, it's normal. PET and CT scans emit a lot of radiation, and unless symptoms warrant their use, it's best to not expose anyone to them - in the case of non-metastatic breast cancer. With my stage 1 breast cancer I had no scans until, during chemo, my cancer markers rose; at that point my oncologist prescribed a CT scan of everything but my head and a bone scan of everything (both negative). Btw, my hospital (MSK) no longer uses cancer marker tests for breast cancer, as they are unreliable.

      2 months ago
    • channing2623's Avatar
      channing2623

      GregP_WN
      THANK YOU so much for your answers and well wishes. i’m struggling with loud noises of constant worry that this diagnosis has left n my head. but hoping they will become at least a bit quieter at some point.

      2 months ago
    • channing2623's Avatar
      channing2623

      Carool
      Thank you as well

      2 months ago
    • cllinda's Avatar
      cllinda

      It's normal. After surgeries chemo and radiation, I thought for sure there would be scans. But no scans were ordered. I thought it was odd, too. But that is how it is. I had mammograms every six months on that side, for two years. And then it went back to once a year. I do ask for 3 D mammograms just for extra peace of mind. They can charge about $75 for the extra 3 D kind but my insurance has covered it all these times. And even if I had to pay, $75 is not much for peace of mind.

      2 months ago
    • channing2623's Avatar
      channing2623

      @clinda
      thank you for the response. i’m going to make sure i add that to. heist of request for me when i go for the 1st mamo in may, that schedule you spoke about is what they told me as well,

      2 months ago
    • lujos' Avatar
      lujos

      It’s certainly protocol to not be scanned, but I think all of us feel the anxiety and ‘loud noises’ that you do! After all that treatment, it’s perfectly normal also to feel a bit abandoned - it does get better with time, and the anxiety does reduce.

      2 months ago
    • ChildOfGod4570's Avatar
      ChildOfGod4570

      I've been there too, and I remember it like yesterday. They stopped my scans post active treatment. Yes, it's normal what you are feeling, and yes, it's normal to not have scans unless absolutely necessary post surgery/rads/chemo. It's easy to feel a little scared because you're going from having all these doctors and nurses buzzing around you, to suddenly them saying they will see you in a few months. Perhaps you mightlike to call the ACS hotline or take part in a support group? You may find what you are going through is more normal than you think. HTH HUGS and God bless.

      2 months ago
    • gpgirl70's Avatar
      gpgirl70

      I was stage IIIc and just after finishing breadt cancer treatment, was disgnosed with thyroid cancer. Even with this history, I got no scans after treatment. I thought my mind would never give me any peace. Worry and anxiety were always with me. I am now three years post-treatment and I definitely noticed a difference in my worry level last year. I did start seeing a therapist in 2

      2 months ago
    • gpgirl70's Avatar
      gpgirl70

      2017. The therapist has really helped me with stratgies dealing with post treatment anxiety.

      2 months ago
    • ChicagoSandy's Avatar
      ChicagoSandy

      Absolutely normal! I'm Stage IA, and after lumpectomy, radiation & 2 yrs. of semiannual (twice a yr) diagnostic mammos I've transitioned back to annual screening mammos. There is no need to expose asymptomatic, mammo-negative patients to unnecessary radiation from both PET and CT scans, not to mention invasive radioactive contrast injections, high expense of both scans (as well as MRI), and diversion of hospital resources from urgently ill patients. If you have dense breasts that may not reveal calcifications or tumors, supplementation with ultrasound is appropriate--noninvasive, no radiation, readily available & portable, instantly readable, and relatively inexpensive.

      2 months ago
    • akwendi's Avatar
      akwendi

      I had the same question from my doctor because everyone kept asking me when my next scan was. She said that they get too many false positives with scanning. So if no symptoms all is well. Positive thoughts :)

      about 1 month ago

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